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» LymeNet Flash » Questions and Discussion » Medical Questions » PANDAS or PANS

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Author Topic: PANDAS or PANS
willbeatthis
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Hi All: Does anyone know of any experts for children and adults with this?

PANDAS = Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections

PANS=Pediatric Acute-onset Neuropsychiatric Syndrome

I have a friend that feels her children and husband are dealing with this. They have had great success with abx but want other answers basically to be proactive. Does anyone know of an expert doc in this area I could have her contact. Thank you!

Posts: 852 | From Southeast | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
Brussels
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Most strep, as far as I know, are antibiotic resistant.

What does it mean 'great success'?

If they had great success, wouldn't that mean that the problem is solved for good, so no need to keep asking for help?


Anthony William says PANDAS is due to HHV-6 or possibly HHV-7 or even shingles (in rare cases, EBV can cause that too), and strep is just the co-infection, not the cause for PANDAS.

In any case, herpes family viruses cause that, he says.

Tics and anxiety are a sort of result from a combination of mercury and viral neuro toxins.

If the kid has rashes, think herpes family viruses causing the symptoms.

If antibiotics are not solving the problem, think viral infection, and that may explain why the problem remains (but I also think strep is long abx resistant).

You can lower the amount with abx, but chronic strep infection remains.

Posts: 5927 | From Brussels | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
hopingandpraying
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PM sent.
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willbeatthis
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Thanks, Brussels. You are always so helpful. Great success meaning she saw her husband and child improve. But you are right, there is most definitely still a problem. I will pass this information on. I really appreciate it. I sure hope you are doing great! I sure miss Germany! HUGS!
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Brussels
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You're welcome.

You know that A William is just a medium.

I use the approach: test and see if it works!

Like with lyme, no one really knows what works and not, right?

Do you really miss Germany?!

Funny to know that Germany is one of the favorite places to visit for young tourists (I saw that in a website, could barely believe!!).

I like the positive points of Germany, but no place is perfect.

Germanic culture is great for alternative treatments, I find. Very creative, seriously trying to look for deeper causes, with all sorts of crazy ideas!

I'm doing fine, thanks. I hope you too!!!

Posts: 5927 | From Brussels | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
willbeatthis
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Thank you Brussels - I have passed the info on and I know she is grateful. Yes, I miss The Guest House and Karin Kline. I loved staying there for a month in June of 2012 to see Dr. W. That is what I feel really helped me get and stay off of abx for Lyme. I crashed every other time. I loved walking up the mountain trail and just taking in all of the beauty of Dobel. It was one of the best months of my life-- if not - the best. Of course I was not working and could solely focus on treatment, healing, enjoying nature and my new friends. I like Germany's mindset in seeking answers [Smile] God bless you, Brussels - you are always so generous with your knowledge!
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Brussels
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Oh, sorry to know you crashed after...

I wonder how much we have does not come from stress, actually... I guess many would improve only to take a vacation without their smart phones and computers and enjoy life in the present time, not in the the virtual world.

I like the way you describe your experience. Sad that it didn't hold... Today, after reading A William, I wonder how much we missed ignoring immuno suppressive viruses...

That's why the photon + nosode is limited to the nosode you use. In that case, Borrelia only...

for me, it solved lyme because I suppose Borrelia was the last trigger that caused me lyme. Erasing Borrelia was enough for my body to recover to pre-lyme condition.

But I suppose many suffer from other conditions, and possibly, viral infections are even more prevalent for some...

I hope you can find out more answers. I'm kind of getting herxes with anti viral treatments (natural) such as a mix of lemon balm (concentrate tea), then licorice and ginger (raw), all in one day.

When I still add cats claw + chaga + liposomal Vit C, I swear I herx.

All these stuff treat chronic viruses. But I have the impression that if I ate still milk products, gluten, and big amounts of grains, I think no treatment in the world would make me herx and improve...

I'm sticking to A William, as part of my trial and error experiment.

It was not easy to do the transition, but now that I'm in (not 100%, but pretty much), things are getting more clear.

The good news is that I feel a lot of changes in my body, and I feel herxy on and off. Whether this will lead to a complete resolution of all my pre-lyme problems, i don't know. Only time will tell.

I hope you feel optimist, Willbeatthis... Not fun to suffer for so long!

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willbeatthis
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Hi Brussels: I am actually doing a lot better. I bought a mhbot chamber two years ago and have been diving every day. It has been a very helpful treatment. Like you, I have had to make the dietary changes, etc and feel that it is all about getting the immune system on board which I think mhbot does a good job at. I agree with you- photons with the one nosode and even blood had its limitations for me.

I am glad it worked well for you and that you keep finding ways to improve your health even further.

The PANDAS stuff is for a friend. God bless her. Thanks, Brussells!

Posts: 852 | From Southeast | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
   

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