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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Need feedback on Dr. F in NY

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Author Topic: Need feedback on Dr. F in NY
rueyroo
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Having bad neurological symptoms...pressure in head, sensitivity to light, floaters, visual auras and lots of autoimmune issues.

Scary stuff!

Has anyone seen or have feedback they can post or send me on Dr. F? [confused]

Did you see her? Do you know someone who was treated by her? Success or failure stories...anything will help.

Thanks so much!

[ 05-09-2017, 11:02 AM: Message edited by: faithful777 ]

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TF
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I sent you what I have. Doc is in New Jersey, however, not NY.
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hopingandpraying
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There is a Dr. F in NY. She is asking about that one, not the one in NJ.
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TF
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rueyroo, see the following thread that includes a video of Dr. F. in NY and also a warning about her by Rumigirl.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=027461;p=0#000008

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Rumigirl
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More info on Dr. F:

I went to see her lecture recently. Several people I know either have gone to her or still do.

She's smart. I believe she cares.

But she's been in neuro practice for @ 11 years; just started treating TBD's last November. That's not long for TBD practice!! Even not super long for a neuro.

Look at her website carefully about policies. Check prices (on phone with office). Carefully consider your options.

For Tick-Borne Diseases (sorry about the unexplained initials above), I would go with Dr. J, if possible. Ask to be put on a wait list.

For neuro help, if need be, you could consider Dr. F or Dr. K in CT. At least that is my opinion. You need to look into everything and make the best choice for your situation.

Going to your local Lyme Support Group(s) is the most helpful thing. There you can speak to people who have been to the doctors, or who know a lot. Plus, the local groups have online forums, where you can ask, also.

Research before jumping into it; it's a big important decision. But don't wait too long, of course!

PS Oh, wait! I mixed up this thread with the one TF linked to. You're not looking at a pediatrician! So forget Dr. J in CT. So more to look into about treating Tick-Borne Diseases.

I just, personally, would be wary about going to someone with so little experience treating TBD's. Go to a Lyme Support Group; there people can discuss it more in depth with you, giving you good feedback.

PPS One other thing about Dr. F, the protocols she was mentioning seemed like they could be more comprehensive. But I haven't been to this doctor myself. The people I know who go there are going to her as a neuro, not to treat TBD's, at least most of them.

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hopingandpraying
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Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help. They would know best about NY.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

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Rumigirl
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There's a NYC Lyme Support Group, too:

NYC Lyme Support Group

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rosiegeorge
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quote:
Originally posted by rueyroo:
Having bad neurological symptoms...pressure in head, sensitivity to light, floaters, visual auras and lots of autoimmune issues.

Scary stuff!

Has anyone seen or have feedback they can post or send me on Dr. F? [confused]

Did you see her? Do you know someone who was treated by her? Success or failure stories...anything will help.

Thanks so much!


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rosiegeorge
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Oops forgot to actually reply (brain fog) duh...
Rueyroo... Did you ever go to see Dr F ?
I'm thinking about going too? But would either have to borrow the $$ or cash out my 401k since it's very expensive, since I can't work because I'm so sick. Would love to hear your feedback if you went?? Please private message me....

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rosiegeorge
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Oops forgot to actually reply (brain fog) duh...
Rueyroo... Did you ever go to see Dr F ?
I'm thinking about going too? But would either have to borrow the $$ or cash out my 401k since it's very expensive, since I can't work because I'm so sick. Would love to hear your feedback if you went?? Please private message me....

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Rumigirl
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There are other threads on Dr. F where I, and others, weighed in.

I still feel the same way about her treatment of TBD's; she's only ben treating TBD's for a little over 1 year, which isn't long. Plus, her protocols didn't sound comprehensive. She doesn't believe in treating TBD's for too long from what I hear from a patient (no more than 3 years tops, and that is a child).

As a neuro, that's another thing. I hear she is good for that, but see below..

But carefully check all the policies with the office before you jump. On many reviews, they said that she had changed her policies, and you can only see her once, and then have to see a neuro under her. I'm not sure if that it the policy now.

If so, I would look elsewhere. The neuro's under her have not gone through training with experienced LLMD's as far as I know. Plus, I hear they leave the practice a lot (or so I've seen in reviews).

Read all the reviews online. Many people complain that she used to be good as a neuro, but now isn't, as she's been promoting herself so much. That isn't bad in and of itself, but how she's changed with patients and policies doesn't sound good.

Requires a lot of investigation and thought IMO, and even more so when you are traveling so far and investing so much.

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