posted
Guaifenesin protocol is taking a certain dosage
of guafenesin(mucinex) twice each day and increa-
sing the dose until symptoms of fibromyalgia
flare then staying at that dose. Then lumps and
bumps of fibromyalgia start to clear from the
body. I was on this for awhile but I quit
because I was doing too many other things.It
caused cysts to come close to the surface and
then rupture.
Posts: 290 | From ohio | Registered: Dec 2005
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
I tried the guai protocol for 6 - 9 months with no positive results when I thought I had fibromyalgia.
I don't think it will do anything to the Lyme spirochetes in any form.
I thought it was mainly to rid the body of some form of acid build up? (I forgot the technical name of the particular acid)
Lyme is a parasite or form of bacteria.
I might be mistaken since I'm not a scientist - but they are 2 separate things.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
There is also a particular diet for this. Avoiding certain greens and other foods with oxalic acid ( I think).
There are many pages of their own links. Some Q & A and chat interviews from the author: R. Paul St. Amand M.D. (you might also search his name on PubMed and Amazon for books).
Best to find works authored by him first so others' variations might not lead one astray.
In 1994 I had been accepted to participate in a study of this protocol for FM. I was soon rejected due to ulcer history. They may have developed ways to work around that by now, though. -
As mentioned in previous posts, be very sure if this is meant to be antimicrobial (I don't think it is) or to work on FM in some other way. And note, that many FM researchers don't fully look at some of the stealth infections as being possible causes of FM.
That said, there are certain protocols that may still help FM pain but, if there is an infection that is not addressed, it will have serious limits.
For instance, a gluten-free diet helps tremendously with FM/CFS/lyme to reduce pain and inflammation. That is excellent, but not enough all by itself.
So, if the guaifenesin might help in some ways (other than antimicrobial), perhaps, it could be part of a TBI protocol, but I don't know for sure.
His research seems to be highly regarded by many. Even if you don't choose this there may be good information to consider.
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I have been on the guaifenesin protocol for 8 years and abx for 2 years. I take plenty of supplements but since one cannot take herbs while on this protocol, it would be impossible to combine most of the lyme protocols with the guaifenesin protocol.
I believe MMS would be OK because most sodiums are OK but I would probably look up the molecular structure and make sure it does not have the makings of a salicylate. If you need help with that, let me know.
Dr. St. Amand (the originator of the protocol), feels that guai removes excess phosphates which accumulate as a result of a genetic defect. Guai for an oxalic acid problem is used for another condition called vulvodynia.
Many other doctors have said that guai works because it is a detoxifier. I heard second hand by someone who attended the Euro 2006 lyme conference that a presentation was made by an LLMD who said that guai works because it treats part of the body's reaction to the infection.
In a nutshell, ATP is blocked from exiting the mitochondria translocator protein (the energy producing part of the mitochondria wall) because of a buildup of debri from the immune system attack on borrelia etc.. This gets in the way of the cells ability to release energy.
I think that drainage remedies could work to replace guai because they clear cellular debri. I'm looking into phospholipid exchange or NT factor as a way to make the cellular wall less permeable because I think that may play a role in allowing excess debri inside the cell. That is speculation at this point, I'm sitll in the process of researching this.
For me, guai helped with some symptoms such as concrete muscles, trigger points, chemical sensitivity, allows me to sit up for longer periods (a problem due to orthostatic hypotension, removed numerous lumps and probably some other things that I've forgotten.
It increased my pain quite a bit which did not get better until I started tryptophan. The protocol does not work if you block with salicylates such as herbs. You can eat herbs but cannot take them in concentrated herbal products. It is a fairly complex protocol.
I don't know if does anything for cysts. My feeling is that it does not but there would be no way to know for sure.
I have recently come to feel that aloe and/or collagen may have some effect on borrelia cysts but I have no proof of that and it is only through use and muscle testing that I have come to feel that it is a possibility. Someone recently posted in a thread that they take aloe to open cysts which caught my eye because I was wondering about it myself. It is all speculation on my part.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
I've heard that some people with fibromyalgia do well with the protocol. As mentioned prior, you have to avoid all contact with herbal preparations, beauty products, etc. (anything with slaycilic acid).
There was a double blind study performed with a Dr. Bennett (a fibromyalgia specialist) on it's effectiveness with fibro & they didn't find that it helped much.
Some people feel the study was flawed due to the salicylic acid (the ingredient in herbs that blocks the guai from being effective). Some people may have been exposed to it while doing the study.
This is another situation of healing that is supposed to make you worse before you get better. It's hard to say if it will help but I don't think it's overtly harmful.
It is difficult avoiding all the products that block the guai. You really have to be committed to guaifenesin to continue using it. They say you have to do it for the rest of your life or the symptoms will return.
I just did'nt feel like I wanted to go without taking a hot bath with essential oils or never eat mint again (among other things).
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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Noticed you mentioned permeable cell membranes. You might want to research phosphatidylserine. This supplement is supposed to help with that. Should also help with adrenal issues.
Hubby takes 100mg 3 times daily. He had to work up to this dose. Was overly stimulating at first.
This is not medical advice, just info based on hubby's experiences.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Yes, you can take abx with guaifenesin. Most prescription medicaiton is fine. I found that spironolactone caused me to block guai's effect due to a strong salicylate (peppermint) in the medication but most other prescriptions are fine.
Thanks Bea. I do take phosphatidyl serine and have for years. Taken for too long it can depress the adrenals but I keep being told that I should stay on it and when I cut down I feel a lot worse so for now, I'm still on it but every few weeks I try to cut down the dose.
My LLMD told me to add phosphadityl choline as well for cell wall permeability but I've already been taking that for several years.
My herbalist has me on cordyceps (a huge dose of 2.5 grams 2X per day) and 1 indole-3-carbinol (sp?) per day for a period of time.
There is a Dr. Patricia Kane who developed a treatment for permeable cell walls but I think it's IV.
Bea - I don't want to divert the purpose of this thread but have you considered looking into methylation cycle problems for you hubby? If you want further info, please PM me.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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