posted
I've been keeping up with all the threads on here regarding parasites and it's participation in the overall problem.
I have many of the symptoms of someone who is infected with parasites. I met with a new GI doctor yesterday, who is supposed to be "Lyme friendly."
After I explained my whole situation, and talked about my GI problems, we scheduled an endoscopy for next week.
I said, "So, this endoscopy will check for parasites as well?"
"No, it will check for how bacteria is affecting your intestine. You don't have any parasites, don't worry."
I didn't know what to say. I don't know what kind of test I should be requesting to check for parasites.
Posts: 829 | From MD | Registered: Dec 2009
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posted
Stool testing, and even it's not accurate. No parasites showed up in my stool testing, yet I SAW them!!
Even doctors think parasites are a third world problem.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
Hi Wolf'd,
I know it's very frustrating... Even after being in remission for a few years now, I know that there are supplemental tx's that are needed. I don't have sx's of parasites (macro), but want to make sure if they're present, they get gone!
Instead of arguing with my doc about Alinia or other ridiculously expensive rx's, I'm going to try Enula first; which is an anti-parasitic tincture (6gk liked it.). Then, I'm going on Clarkia tincture next (Gael turned me on to this one), which contains a bit different ingredients, instead of Humaworm. For me, the tinctures are less likely to burn my stomach than capsule remedies.
It's so hard to find doctors who want to be on my team.
And thank you ping for the suggestions. I actually purchased Nutramedix Enula on an idea I got from reading one of Six's posts. I'm glad she chimed in too
I've been talking Cumanda the last 2 weeks, and I'm ready to try Enula. But, I'm loaded with ABX, and other supplements too. I don't know if it's safe to take them altogether. This is just a gut-feeling I have, nothing more.
I take:
Morning:
Minocycline or Zithromax (bi-daily) Bactrim DS Pulsed Artemisinin (3-days a week)
Mid-Afternoon:
BioPure Garlic FishOil Turmeric Resveratrol Bromelain Enzyme Vitamin B Complex Biotin Super C Complex w/ Bioflavoniods Vitamin D Vitamin E
Occasionally I add: CoQ10 Taurine
Late Afternoon/Evening:
Cumanda (now 25 drops, daily) Coconut Oil
Late Evening:
Bactrim DS Olive Leaf Extract (50-60 drops) BioPure Garlic Fish Oil Vitamin D
Night (before bed): Pulsed Artemisinin (3-days a week)
Random throughout day:
Mangosteen Juice TraceMinerals Electrolyte C-Pak
Do you guys think I can add in Enula with all of this?
[ 05-20-2010, 06:23 PM: Message edited by: Wolfed Out ]
Posts: 829 | From MD | Registered: Dec 2009
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
I think adding Enula will be fine, but I am not a doctor.
In those instructions that say how to use Nutramedix stuff, it says you should alternate between Cumanda and Enula....12 1/2 days on one, 36 hours off, 12 1/2 days on the other, etc.
I am not sure if it's because they shouldn't be taken together, or if it's just to pulse them so they don't loose effect, etc.
Those instructions are somewhere on Lymenet, in a link. A search should bring all that up, but if you can't find it, I'll look.
I am on Enula and thinking of trying Cumanda. I'm thinking I'll probably pulse them like above....because I'm not herxing on Enula now (did in beginning), so might as well shake things up by pulsing.
Posts: 4590 | From Midwest | Registered: Jun 2008
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Just a thought - if you think you have them why not try this product...http://www.transformyourhealth.com/capra/caprasite.htm
I took Humaworm on three separate occasions a couple of years ago and it seemed to help a little, but not much. Then I was given the CapraSite products to take for 2 weeks on, 2 weeks off and 2 weeks on again. My stomach hasn't felt this good in 20 years. My mom did the same thing and her stomach is SO MUCH better.
Our homeopathic practitioner tested it on her electrodermal testing machine and it showed as hitting all parasites. I believe it did, based on symptoms.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
Tick Battler that looks like a great product. It has those mushroom versions in it and that my make the difference...
I may try it someday.. Thanks for the info.
I am having trouble keeping up on the lists of things I want to look into at a later time and I keep the websites and just forget later I have them.. its frustrating..
Why do you think it helped more than Humaworm?
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
I didn't really look at the ingredients when I took it so I don't know why it helped more, but I can just tell the difference in symptoms.
My stomach is not bloated and uncomfortable very often like it used to be. It is pretty much normal! Humaworm did help some, but caprasite was a more noticeable change and it only took one month. I took Humaworm 3 times over a year.
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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I saw that link somewhere too, I'm going to give it a shot today or tomorrow.
Weird, I'm not usually nervous about starting anything EVER. But, I am about this one. Maybe I'm sensing something this time.
Posts: 829 | From MD | Registered: Dec 2009
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Unfortunate that they took that position. That would have been enough for me to start looking for another practitioner. Dr. K has said that worms are likely the most overlooked problem in these illnesses.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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posted
I keep being told also I don't have parasites. Have had numerous stool tests, all negative. I'd still bet 99% chance I do.
Have wanted to do some cleanses, but other things keep coming up. I just can't do too many things at one time.
Posts: 847 | From upstateNY | Registered: Dec 2007
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Remember to Smile
Unregistered
posted
quote:Originally posted by tick battler: My stomach is not bloated and uncomfortable very often like it used to be. It is pretty much normal! Humaworm did help some, but caprasite was a more noticeable change and it only took one month.
Hey! Got my attention! Fierce and successful Tick Battler, please tell this newbie peasant what manner of sword deflated your stomach. Specifically, what was the source of the caprasite, what was your dosing, side effects, how long to notice improvement, etc.
I believe I'm having horrid stomach pain/nausea/belching, etc due to BLO. May also have an adenoma. Appt with local, non-Lymie gastroenterologist this afternoon.
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Most doctors don't have a clue when it comes to parasites...
I don't think you need the tests, initially. It's pretty easy to take some green, black walnut hulls, wormwood, & cloves. This is a common herbal combo for parasites. It's sold in most vitamin stores. (I find the caps are stronger than the tincture.)
If it makes you sick & you pass some bizarre looking stuff - you know you have parasites. It may take a few days to 2 weeks of taking the herbal combo.
Don't take this if you are traveling or have to do something important. Killing the parasites can make you pretty ill if you have them.
Parasites come in many forms. They are not just in your intestines... They can be in your lungs, blood, liver, brain, etc. Treating parasites is an on-going thing.
I wish I knew this sooner! I never would have thought that I had them.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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massman
Unregistered
posted
How about telling that doc "you don't have any brain...don't worry."
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posted
It's a good idea to have a lab run the tests anyway because all parasites do not respond to the same meds. My stool test was negative, too, but the lab did an ELISA antigen test, and that was positive for e histolytica/e dispar. I would imagine they can do antigen tests for many others since detecting them in stool is hit and miss. Not ALL parasites go systemic. Some stay in the intestines. The ones that are BAD are those that do go systemic. e histolytica can go systemic, but it doesn't always do that.
Posts: 277 | From Pennsylvania | Registered: Apr 2010
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I was SO SICK and my gastro only had one test run: for giardia lamblia. When that came back negative (one stool test), he decided I had "IBS."
There are dozens of parasites, but most doctors won't test for them.
You could always order the tests yourself through Direct Labs (LabCorp).
Posts: 277 | From Pennsylvania | Registered: Apr 2010
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blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
Tests are lousy. I tested negative for stool parasites when I was tested for c diff. I did a round of ivermectin and a round of biltricide.
After much noticable improvement, some visible to the naked eye, I'm more convinced than ever that parasties play a big role in chronic illness, especially IBS and colitis related disorders. Not only ticks carry parasites, we get them from our food supply. Everyone should be treated for parasites. And we should get our food supply cleaned up too.
I keep trying to tell my friends that have IBS and colitis they need parasite treamtnt and no one will listen to me.
I turned a corner after the anti-parasitics.
Posts: 1104 | From N.California | Registered: Jan 2008
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
Burgdorfer found Adult Filarial Worms in the ticks he dissected. EVERYTHING pictured here was what came out of me after I started treating for parasites.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Thanks for all the support guys, I appreciate ALL of your input.
I did a two-week round of Humaworm, and I had a rough couple of days with it, but I didn't notice much else.
I would try Tick Battler's suggestion next, but I'm actually going in hard with Ivermectin. So, I'm holding off on Enula and Caprisite to see what happens here.
I'll report my results in the Ivermectin Parasites thread.
Posts: 829 | From MD | Registered: Dec 2009
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posted
That has to be prescribed by a doc, right? My LD really doesn't want to hear about parasites. They did stool tests, but we all know that doesn't mean anything.
Posts: 847 | From upstateNY | Registered: Dec 2007
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Artemesia is also anti-parasite.
I'm beginning to think that artemesia may be the best herb in the universe... LOL
My doc gave me the wrong dosage on the ivermectin script... I've been holding off since I started with the artemesia. I don't want to overdo it.
Parasites are everywhere. Best to do a parasite cleanse like every 6 months or so. Some places use sewage sludge to fertilize food crops. Hopefully, not so much but you never know.
There's always a chance to get bugs from meat or sushi. Also, pets... Even if you garden, you can get bugs from the soil.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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I requested 3mg/daily because that's what I read was being tried in the recent parasite thread.
Posts: 829 | From MD | Registered: Dec 2009
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
He gave me a script with 10mg... It doesn't come in 10mg - so, they flipped out at Walmart. It only comes in 3-6 or 9mg pills. 10 would be 9mg + 1/3 pill & that didn't compute to them...
It looked like the lady was going to have a serious meltdown. They didn't even have it there, anyway. They would have had to order it.
It's dosed based on body weight. It's usually a one shot thing. Someone on the other thread got a different dosage & way to take it. I was curious about why their doctor did that. I think it was blinkie... Usually, you take one dose & that's it. I think blinkie took 3mg every day for 2 weeks. My one dose should have been 9mg (or 10mg - if they had it) based on body weight.
It's cheaper in Canada. If/when I try to get another script - I'm going to get it from a Canadian pharmacy.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
Ivermectin is used in home-use ant baits. It does not readily cross the blood-brain barrier. It is for worm species and doesn't cover other types of parasites.
Research shows that it can take 5-10 stool samples to find the parasite(s). At the very least you should submit 3 on subsequent days.
Alternatively, some could be detected by stool antigen testing. Mine never showed in stool but the antigen test was positive.
If you don't know what type of parasite you're dealing with, you don't know what drug is specific to that parasite.
Most if not all of the parasite drugs are highly neurotoxic, so if you're going to damage your nervous system, I would think you'd want to be sure you need them.
I've said it before and I'll say it again ... sometimes the cure can be worse than the disease.
Posts: 277 | From Pennsylvania | Registered: Apr 2010
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
re: sometimes the cure can be worse than the disease...
Yes, I can agree with that! Maybe it's best to stick with the herbs? It may take longer but it may prevent some of the toxic side effects of drugs.
I'm focusing on artemesia these days. It does have anti-parasite activity.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
keltyl, I think I know who your LLMD may be, and he was totally disdainful when I was diagnosed with parasites by another dr. This dr
happens to be a world-renowned parasitologist, who has written text books. And he took the sample himself and looked at it under a microscope. Yeesh! And even he can give false negative results.
Dx'ing parasites is very tricky. And so is tx'ing them. I've worked with parasites for decades both personally and professionally.
Posts: 3770 | From around | Registered: Mar 2008
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posted
Ivermectin has one of the safest drug reports I've ever read. Just stating my feelings.
I was rather shocked to feel relieved from reading the side effect report.
Those quit smoking prescription drugs can cause a LOT more problems than low-dose ivermectin.
Posts: 829 | From MD | Registered: Dec 2009
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posted
Here's classes of parasites, and each class responds specifically to different meds -- not all meds work for all types, so a general parasite cleanse might not affect a specific type.
Something to consider (I haven't researched it, and it's only my theory) is that if one tests positive for ONLY Band 41 (flagella), perhaps one does not have Lyme but a different infection, a parasite in the flagella class. Intestinal parasites that go systemic could potentially infect the CNS and cause all the symptoms of Lyme. Not all parasites can go systemic, most are confined to the bowel, but some, like e histolytica, can ...
Protozoa Amebae (Intestinal)
Entamoeba histolytica
Entamoeba dispar*
Entamoeba hartmanni
Entamoeba coli
Entamoeba polecki
Endolimax nana
Iodamoeba bu�tschlii
Blastocystis hominis
Flagellates (Intestinal)
Giardia lamblia�
Chilomastix mesnili
Dientamoeba fragilis
Trichomonas hominis
Enteromonas hominis
Retortamonas intestinalis
Ciliates (Intestinal)
Balantidium coli
Coccidia, Microsporidia (Intestinal)
Coccidia
Cryptosporidium parvum
Cyclospora cayetanensis
Isospora belli
Sarcocystis hominis
Sarcocystis suihominis
Microsporidia
Enterocytozoon bieneusi
Encephalitozoon intestinalis
Sporozoa, Flagellates (Blood, Tissue)
Sporozoa (Malaria and Babesiosis)
Plasmodium vivax
Plasmodium ovale
Plasmodium malariae
Plasmodium falciparum
Babesia species
Flagellates (Leishmaniae, Trypanosomes)
Leishmania tropica complex
Leishmania mexicana complex
Leishmania braziliensis complex
Leishmania donovani complex
Leishmania peruviana
Trypanosoma brucei gambiense
Trypanosoma brucei rhodesiense
Trypanosoma cruzi
Trypanosoma rangeli
Amebae, Flagellates (Other Body Sites)
Amebae
Naegleria fowleri
Acanthamoeba species
Entamoeba gingivalis
Balamuthia mandrillaris (Leptomyxid ameba)
Flagellates
Trichomonas vaginalis
Trichomonas tenax
Coccidia, Sporozoa, Microsporidia (Other Body Sites)
Coccidia
Toxoplasma gondii
Sarcocystis ``lindemanni''
Sporozoa
Pneumocystis carinii�
Microsporidia
Nosema connori
Vittaforma corneae
Pleistophora
Trachipleistophora hominis
Brachiola
Encephalitozoon hellum
Encephalitozoon cuniculi
Encephalitozoon intestinalis
Encephalitozoon bieneusi
``Microsporidium''
Enterocytozoon bieneusi
Nematodes (Roundworms) Intestinal
Ascaris lumbricoides
Enterobius vermicularis
Ancylostoma duodenale
Necator americanus
Strongyloides stercoralis
Trichostrongylus species
Trichuris trichiura
Capillaria philippinensis
Tissue
Trichinella spiralis
Visceral larva migrans (Toxocara canis or Toxocara cati)
Ocular larva migrans (Toxocara canis or Toxocara cati)
Cutaneous larva migrans (Ancylostoma braziliense or Ancylostoma caninum)
Dracunculus medinensis
Angiostrongylus cantonensis
Angiostrongylus costaricensis
Gnathostoma spinigerum
Anisakis species (larvae from saltwater fish)
Phocanema species (larvae from saltwater fish)
Contracaecum species (larvae from saltwater fish)
Eustrongylides species
Capillaria hepatica
Thelazia species
Gnathostoma species
Blood and Tissues (Filarial Worms)
Wuchereria bancrofti
Brugia malayi
Brugia timori
Loa loa
Onchocerca volvulus
Mansonella ozzardi
Mansonella streptocerca
Mansonella perstans
Dirofilaria immitis (usually lung lesion; in dogs, heartworm)
Dirofilaria species (may be found in subcutaneous nodules)
Cestodes (Tapeworms) Intestinal
Diphyllobothrium latum
Dipylidium caninum
Hymenolepis nana
Hymenolepis diminuta
Taenia solium
Taenia saginata
Tissue (Larval Forms)
Taenia solium
Echinococcus granulosus
Echinococcus multilocularis
Taenia multiceps (formerly Multiceps multiceps)
Taenia serialis
Spirometra mansonoides
Spirometra mansoni
Diphyllobothrium species
Trematodes (Flukes) Intestinal
Fasciolopsis buski
Echinostoma ilocanum
Heterophyes heterophyes
Metagonimus yokogawai
Liver/Lung
Clonorchis (Opisthorchis) sinensis
Opisthorchis viverrini
Fasciola hepatica
Paragonimus westermani
Paragonimus mexicanus
Paragonimus species
Blood
Schistosoma mansoni
Schistosoma haematobium
Schistosoma japonicum
Schistosoma intercalatum
Schistosoma mekongi
Pentastomids (Tongue Worms)
Tissue (Larval Forms)
Armillifer species
Linguatula serrata
Sebekia species
Nasopharyngeal (Adult Worms)
Armillifer species
Linguatula serrata
Acanthocephalans (Thorny-Headed Worms) Intestine
Macrocanthorynchus hirudinaceus
Moniliformis moniliformis
* Entamoeba histolytica is being used to designate pathogenic zymodemes, while Entamoeba dispar is now being used to designate nonpathogenic zymodemes. However, unless trophozoites containing ingested red blood cells (E. histolytica) are seen, the two organisms cannot be differentiated on the basis of morphology. The laboratory report should indicate: Entamoeba histolytica/Entamoeba dispar.
� Although some individuals have changed the species designation for the genus Giardia to Giardia intestinalis or Giardia duodenalis, there is no general agreement. Therefore, for this listing, we will retain the name Giardia lamblia.
� Pneumocystis carinii has now been reclassified with the fungi.
Posts: 277 | From Pennsylvania | Registered: Apr 2010
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posted
Maybe never mind. I found this in one of GiGi's links:
The most common symptoms of a parasite infection include constipation, diarrhea, gas and bloating, irritable bowel syndrome, joint and muscle aches, anemia, allergies, skin conditions, tumors, nervousness, sleep disorders, teeth grinding, chronic fatigue, and immune dysfunction.
Posts: 702 | From North Eastern USA | Registered: Dec 2009
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-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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lightparfait
Frequent Contributor (1K+ posts)
Member # 22022
posted
Dr. K. recommends ALINA as his drug of choice for parasites. This is from my notes from his most recent seminar. I have never taken it.
I think that if your stool test shows parasites...go with the drugs. Parasites in the stool show you are over-run with them.
I also think that if you have symptoms of parasites or are not sure,(negative stool test) go with the Humaworm...it is easy to take and no side effects if taken for only one month. Negative test only means the parasites are not provoked) Humaworm will provoke them and you will see them and feel them come out...if you try the humaworm. Everyone has parasites.
With the drug..Alina or any drug...know that it is very effective at killing, and it also kills more than the bad parasites...and you will need to add back the good bacteria with probiotics after your treatment.(drugs kill the good probiotics). There could also be herx reactions in some people...so be prepared...be ready to have some binders on board.
a good binder would be "apple pectin powder". This grabs and binds the toxins and debris and encases your stools...
Dr. K finds that it takes about 3 months for your body to rebalance after any killing protocol. Ther is always a balance of viruses, bacteria, parasites, fungus/molds, and heavy metals residing together in areas of our bodies. Keeping the load down, and balancing it all after one issue is attacked is needed. Give yourself time before continually adding protocols while your body in in balance mode.
Dr. K is not against antibiotics...just does not believe they are always necessary in the many occasions they are used. Although Major parasite issues when we are over run with them is usually calling for an antibiotic remedy in his opinion.
Dr. K's analogy to hard drug treatments like antibiotics for anything:
If your house is on fire...and at risk of burning down totally...call the fire department...and hose the whole house down so you will not lose the house and all its contents. (meaning save your life and survive)You can always repair it...but you need to save it and as many contents as you can!
If only the pot on the stove is on fire, don't immediately call in the fire department and hose the complete house down and ruin its contents....use common sense and first turn off the fire, and quench the small flame with your fire extinguisher directed at the flame, not the complete contents of your home. This way only one element may need repair...not the whole house. If the quick , directed fire quenching does not do the trick...re-evaluate...then call in the big guys.
He uses this analogy as a basic generality to tell us when it is common sense to first try antibiotics versus more pin pointed less invasive remedies. Americans seem to be trained to first use antibiotics...drugs for everything. We are not taught how to use the minimal, more directed approach.
You want to survive and live...so in life and death or those with major symptom complaints, you need to quench the fire to survive and have your life back. But know there are downsides.
Please note that Dr. K. uses an array of different anti-parasiticals, totally depending on the patient condition and energetic testing well before he will move to Alinia. It is a very expensive pharmaceutical and some people are on it for the long term, again depending on severity. This should be understood. There are many other anti-parasiticals that you can choose and prepare the way for the tougher ones.
Almost any protocol online found by google "Klinghardt Derksen protocols (usually many pages long) will give you details on how they approach Lyme & Co. problems. The protocols are broken down into individual sections and easy to read. Here is one of them, 87 pages long. Discussion of parasites starts about page 59.
And remember, nothing is cast in stone. Everybody brings a different problem to the table. And a lot that was not known 3-4-5 years ago is better understood now. On the other hand, a lot of what Dr.K. published in the mid-90's still holds true today -- not a thing has changed. Mercury is still the most toxic metal we have dug up and must deal with. Parasites are part of the overall problem and most of us have to deal with them in a more serious way than just a token treatment.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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