lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
My son is on Mino currently and doing well. When he was younger he was plagued by ear infections and has had ear aches his whole life.
Today, my ILADS LLMD (I see two LLMd's one ILADS the other non-Ilads) said he refuses to prescibe Mino because it can cause deafness. He then said Doxy is safer and treats the exact same diseases, there is no reason to be on mino.
I freaked...my son having ear problems previously, I am wondering if the non-ilads LLMd he sees made a bad choice.
I have done some research and can't find anything connecting deafness to mino.
Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
Dear Lymebytes,
What a situation!!
I found a nasal wash that helps keep ear infections from happening. It's called XLEAR, and you can probably find it on-line or at a health food store.
It is a xyletol sloution. Bacteria can't stick to mucous membranes washed by xyletol, so this is a mechanical, not drug, solution. It also works well for stuffed sinuses and allergies that cause congestions or a runny nose.
Mechanically, bacteria get into the eustacean tubes in the throat in kids, and these then become inflammed and plugged up. The xyletol washes the bacteria away and keeps them from sticking. Works best when the ears are STARTING to bother the person and before it gets out of control. Same with colds, flu, allergies.
My family has been using this for several years now, and it really does help.
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
I've read (here, maybe?) that NAC is good to take with mino to prevent hearing damage. I take it -- but i also noticed my hearing is getting worse.
look for a thread with "ototoxic" or "ototoxin" in the subject line -- I'm pretty sure I read about it here, but i'm too braindead to figure out which thread right now.
Posts: 1173 | From USA | Registered: Nov 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Yes, mino can cause problems for the ears, most specifically for the vestibular system that controls balance systems. Mino also can shoot tinnitus to the moon, so to speak, and that is one indication of damage.
Your son may not have tinnitus, but since I mentioned it, I should add that infection, too, can blast off tinnitus. Most doctors working with ears advise at the first sign of tinnitus to stop the meds in hope of it subsiding. It's just one sign of many.
B-6 (and perhaps NAC) might be helpful to offset some of that, but just in one small study for the B-6 and autistic children taking mino (and I wonder why they aren't taking doxyc.).
NAC is being looked at to help prevent ototoxicity in general. PubMed has some abstracts on that.
Some people are bothered more than others and seem to get of lucky.
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You might like to refer to this research thread, especially the links with ototoxic info.
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