lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
well, i was a little scared to start this after reading on here about yeast and severe nausea etc...but so far so good.
i'm on day 4 i think. i don't really feel anything. i am being REALLY careful with probiotics, antifungals and diet.
i might want a little more sleep than normal...but not bad fatigue.
i also got back on ginko, fish oil and coq10 that had run out and i am able to tolerate a lot more exercize. could barely walk the dog 20 min a week ago and now i am on elliptcal 20 min and then go for a 30 min walk and even have time to chop ice(still trying to find the grass up here)
sooooo, good news for a change.
except-i hope its doing something.
but years ago with artemesia i just got better-sweats and eye pain would just go away with no herx. so i hope it will work.
my recent sweats have been really gross-mostly on head and face and leaving my hair all greasy.
i really want them to stop.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Well good for you lpkayak!
I sure do hope that the trend continues. I have to admit that I am happy for you but jealous too cause I wanna do the elliptical and walk the dogs
Sounds like you are doing all of the right things. Thanks for sharing your good news!
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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btmb03
Unregistered
posted
Best of luck with your treatment, sounds like you're off to a good start, do keep us all informed..wishing you continued success with this combo!!
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bettyg
Unregistered
posted
kayak, good for you; best wishes!
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i think i mihgt have started a mild herx today-pain behind eyes...i remember this from a long time ago
everything else going well...exercise, sauna, back on detox foot pads,
got my fingers crossed
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
I am supposed to start treatment for Babesia Duncani but just got tinnitus from Zithromax before even getting to the malaria drugs.
I have heard that Clind/Quinine can cause hearing issues. Were you told to do anything special to help prevent this? Is that why you are on gingko?
I am very inspired by your improvement - I would love to be able to exercise more!
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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posted
oh good, i hope things get a bit better for you each day!
mo
-------------------- life shrinks and expands in proportion to one's courage -- anais nin Posts: 8337 | From the other shore | Registered: Jul 2002
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posted
Hubby just got better on the quinine/clindamycin protocol. Never really herxed either. In my opinion you need to stay on this protocol for a minimum of 4 months.
Hubby also started exercising again the first time he did this protocol. But unfortunately he started losing ground after the first 2 months. We stuck it out for 4 months the first time. It might be a good idea to consider adding in artemesinin or something else if you start backsliding while still on this protocol.
It did not get rid of hubby's babesia or the mystery bug, but it definitely made things more manageable. Just be sure you stay alert to your symptoms. We didn't really know at the time that hubby's seizure-like episodes were probably from babs or the mystery bug. So we never treated his babesia aggressively enough for years.
I do think the Alinia finally got rid of the babesia, but the mystery bug is still an issue for hubby.
Keep us updated on your progress. It is always good to read good news.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I keep wondering why this Babesia protocol is 10 days when others here are fighting Babs for 5+ months and Dr. B says the ssme? Am I missing something?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
seek: in the past i did artemesia on my own for two months twice-probably 5 yrs apart
it really helped my symptoms without any herx...i just got better...like "normal" meds
but 2 llmds think my current sweats are babs...even tho i had it under control before
my firsst tx was 3 weeks mepron and zith-it didn't work but i couldn't take itany longer...my hypoglycemia made my sugar go to 40 for 3 weeks...i didn't realize i could have died-i just knew i could barely get up for bathroom and to take meds
so i am trying this protocol now
my sweats are disgusting...motsly head and face and leave my hair yucky greasy...even a few hours after i wash it-i never had that before
so docs think its babs an i am doing what i am told
all llmds have there own little differences in protocols
if ONE thing worked we wouldn't be here. we'd all get better.
its a new disease-it is extrememly complicated.
try to make a chart of all the co infections-all the strains...and everyones genes and historys and allergies...it's crazy!!!
and ALL these things are beginning to show up in the newest research as being really relevant...
i think it is best to get to an llmd with the most experience you can (20 yrs is great) and let him do his thing for a few years
then if you aren't getting as better as you think you should-try another really experienced llmd
some do speicaliz in ms or autism or neuro stuff...so if your sx are like that you can choose them...but i've been at this a long time and i really don't think there is anything more impt than experience-years of it.
remember-lots of ppl can't get to a good llmd. you are lucky that you can. many can't afford abx or meds or herbs.
and also remember-anxiety, rage, ocd , depression---all this stuff is symptoms!!!
it's good to think and question-curiousity is a sign of intelligence. but there is not going to be a quick fix here. you've got a good doc. i'd decide to trust him for awhile. not question everything. trust him-let him do his job and maybe that will reduce some stress on your part. stress is not good for healing.
he has made a lot of ppl on this board much better. he will tell you if he thinks he can't help you too. he is very honest.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
My husband just started IV clindamycin and qualaquine last week. So far he's tolerating it fairly well. I believe he'll be on this combination for a while and we'll be adding in Primaquine at some point.
Posts: 984 | From San Diego | Registered: Nov 2006
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