LymeNet Flash: Did your child take Malarone?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Did your child take Malarone?

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Topic: Did your child take Malarone?

tick battler
Frequent Contributor (1K+ posts)
Member # 21113

posted

I would love to hear if your child took Malarone and if it helped. If so, what was your child's age?

Did your child also try Mepron? If so, which worked better?

Thanks,

tickbattler

Posts: 1763 | From Malvern, PA | Registered: Jul 2009 | IP: Logged |

sixgoofykids
Moderator
Member # 11141

posted

I'm not a child, but for me, Mepron worked infinitely better than Malarone did.

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sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007 | IP: Logged |

2roads
Frequent Contributor (1K+ posts)
Member # 4409

posted

Tickbattler,

Yes, my son is on Malarone.

He is 7 this month.

He has been on it 6 weeks.

It is a hefty dose.

Is it helping...I think so.

His night sweats are better. His cough is gone. He still has a heated head but I think it has improved.

I think it works better in Babs Dunc.

I am not sure my son has that which is why I think Mepron should be our next choice as his script runs out in 3 weeks.

He tested pos antibody for microti at 2 years of age and Doc J never treated.

Mepron is better for Microti. Doc J says are dose is high enough where Microti is getting dealt with.

I think maybe not. Mep could be higher and liver,kidneys could use a break from high Malarone.

Make Malarone too high you fry these structures with little Microti yield.

I'm on the fence right now.

Hope this helps

Posts: 2214 | From West Chester, PA | Registered: Aug 2003 | IP: Logged |

Geneal
Frequent Contributor (5K+ posts)
Member # 10375

posted

My daughter took one malarone a day.

She was 6 and weighed slightly under 50lbs.

It definitely helped.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006 | IP: Logged |

tick battler
Frequent Contributor (1K+ posts)
Member # 21113

posted

Thanks all! Can you share if your strain was microti or duncani?

tickbatttler

Posts: 1763 | From Malvern, PA | Registered: Jul 2009 | IP: Logged |

Lymepool
LymeNet Contributor
Member # 15827

posted

My kid (age 13/14) is treating for duncani. Had really good improvement on mepron but hit a plateau after 5 months. LLMD switched to malarone and improvement restarted.

In our case there are coinfections for bartonella and rickettsia. So the initial mepron may have taken care of most of the babesia and malarone was continued almost as a "just-in-case" treatment.

Rifampin was started when the bartonella test came back positive around the 5-month mark.

Mepron has to be given with another antibiotic to prevent the babs from becoming resistant. Zithromax is the standard drug for this. My doctor used tetracycline, then doxy because my kid allergic to zith. Amount of mepron may need to be increased because the tetracycline like drugs block some of the mepron activity.

Of course, supplements like probiotics, are useful. (My kid hasn't had any stomach issues yet!) Certain vitamins and minerals may need to be supplemented as well. Babs apparently depletes the B vitamins in particular.

Total treatment time has been 11 months. Child has gone from a house-bound couch potato to a 90% of normal active teenager.

Best wishes for your kids return to health!

Lymepool

Posts: 170 | From New Jersey | Registered: Jun 2008 | IP: Logged |

Shosty
Unregistered

posted

We did not want to give these heavy duty meds to our kids. Our LLMD does not prescribe them.

IP: Logged |

2roads
Frequent Contributor (1K+ posts)
Member # 4409

posted

Tickbattler,

My son had a positive antibody to microti.

Don't know if he has Duncani.

Shosty, how did you make your children well? Did they have Babs and Bart?

Choosing these drugs is not my idea of a great day, but if you found success with other things maybe there are other options.

Please share-

2roads

Posts: 2214 | From West Chester, PA | Registered: Aug 2003 | IP: Logged |

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