posted
After two months, I talked my neurologist into doing a Lyme blood test and it came back with a marginal result. He ordered a different type of blood test today which is a little more accurate for my region. I have been very healthy my 42 years so far but have a feeling it is Lyme related.
My symptoms started November 1st with a mild headache and three weeks later, I started having slight tingling in my hands and feet and palpatations. Today, the tingling and some numbness is with my head, back, arms, and legs. I have trouble concentrating, feel tired, and have trouble sleeping. I also feel shaky inside if that makes sense and have sporadic neck pain.
I asked the Neurologist in November to please start running additional tests but he wanted to treat it as headache symptoms and prescribe Topamax and Neurontin. He said the tingling was a side effect of the headache.
I went to see another Neuro in December as a second opinion and he prescribed Indocin. When I asked him about the tingling, he did not have an explanation.
My PCP, who I thought was a pretty stand up guy to this point, would not see me and said to stick to the specialists.
I also saw an orthopedic specialist for a possible pinched nerve and a cervical MRI looked fine. It is not MS because an MRI of the brain in November looked normal.
Here is what is frustrating. I asked the neurologist today if we can get a head start on an antibiotic treatment until the additional blood work comes back next week. He said no and I explained to him my symptoms are getting worse each week. He said to make a appointment with a disease specialist and they will start the process later next week. Is this normal that a neuro will not prescribe antibiotics?
I was the one who pushed for the Lyme test and am frustrated because of the delays. I trusted these doctors who procrastinated with a "try this pill attitude."
I just started looking at these forums today and there is a wealth of information and applaud the people who live with this daily. I am just worried how I can work and support my family going forward.
Thanks
Posts: 16 | From PA | Registered: Jan 2010
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Hi, Welcome!
Sorry you are getting the run around....but typical.
If it were me, knowing what I know now, I would post for a LLMD in PA on the Seeking a Doctor board, and get an appt with one ASAP.
Better to get a real eval by an expert who actually knows how to recognize and diagnose lyme.
Lyme is a clinical diagnosis based on history and symptoms, not a lab test.
If you do have lyme, the sooner you get treated PROPERLY the better.
If you have lyme, you also need evaluated for coinfections like babesia, bartonella, ehrlichia, etc.
Glad you found lymenet. There are alot of helpful people here.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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