And, at the bottom there was a poster who wrote the following:
"There are many programs out there where you can GET PAID to help Lyme Research, the most active of which are below: http://www.idonateplasma.com
He listed four others, but they all seemed to go to the above link, so I deleted them and just kept the one for anyone that might be interested.
Their website does state they will pay $200.00 or more and lyme is listed as one of the diseases.
I did not do any research on the company or the people who run it.
Posts: 217 | From Earth | Registered: Feb 2010
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Interesting. Thanks for posting. I'm glad they are looking into it. We really need better testing.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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I know some people are really strapped for cash too. Not that this will take care of the problem, but may help a little bit and also helping in research would be great!
Enjoy your day!
Posts: 217 | From Earth | Registered: Feb 2010
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
I wonder if they want a CDC positive Lyme patient for donation.
Posts: 2232 | From USA | Registered: Aug 2009
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posted
I emailed them a couple of days ago and told them I was igenex, not cdc, +, they emailed me back asking for my test result info(bands). I'll post again when I hear more.
diana
Posts: 857 | From northern california | Registered: Dec 2009
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-------------------- ~Things may happen in my life time to change who I am but I refuse to let them reduce me...~ Posts: 968 | From private | Registered: Jan 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I would be far more comfortable with this had the Lyme Disease Association come out with the announcement. There are many concerns and it would require a lot of study before even giving them any information, not to mention blood.
If they design something with your blood, they OWN the product. They can OWN your genes, for crying out loud. Much more to learn about the just who and where all this is going.
Who, exactly, IS SeraCare ? Who is paying THEM?
Another consider is that, once they have your name and personal information, they could sell it to insurance companies - or to anyone. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I would be far more comfortable with this had the Lyme Disease Association come out with the announcement. There are many concerns and it would require a lot of study before even giving them any information, not to mention blood.
If they design something with your blood, they OWN the product. They can OWN your genes, for crying out loud. Much more to learn about who is controlling this - their GOALS - and where all this is going.
Who, exactly, IS SeraCare ? Who is paying THEM?
Another consider is that, once they have your name and personal information, they could sell it to insurance companies - or to anyone.
- so they are out to make money for their investors. They are out to sell stocks and they answer to the stock owners. They are on the NASDAQ. Somehow, that just feels wrong to me. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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-------------------- ~Things may happen in my life time to change who I am but I refuse to let them reduce me...~ Posts: 968 | From private | Registered: Jan 2005
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
We live in a capitalistic society. No one does anything for free. I think it's good to be cautious! You know the saying... "buyer beware". In this case, could be "seller beware"!
I don't mind the capitalistic part as long as they do something of benefit for people who are suffering with this illness. Having accurate tests would really help alot of people - even if they do get rich off of it.
Not sure about genetic products... It gets into the sci-fi realm. We could speculate alot of things but we still need better testing. If they can do it - more power to them.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
They are FDA regulated, HIPAA compliant, and use IRB-approved protocols.
However, that's why I put the last sentence about researching. If one is interested, one should research first, which would apply to most anything.
Posts: 217 | From Earth | Registered: Feb 2010
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posted
I hope it is legit, I don't even care about the money. Just wanted to do something to support the cause, and don't have the energy to much else.
diana
Posts: 857 | From northern california | Registered: Dec 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
They need to be more forthcoming before I would donate.
This could be IDSA looking for ways to keep us sick.
I hope not but we need this endorsed by some we can trust.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
I totally agree with Sparkle7. I emailed them.
-------------------- 5 yr. Vet. of the Lyme war. Helping and sharing are now my only objectives.I have nothing to sell & I no longer interfear with things I cannot control. But, I have learned many good things from my affliction & am a better person for it. Posts: 51 | From Northeastern PA | Registered: Jul 2010
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posted
I've seen many of these. For some reason they all seemed to want someone who was recently infected and not chronic patients. Also people with positive test results, which doesn't really make sense if their puropse is to make a better test since you would also need people who have lyme, but current tests say they do not. I have no idea what they plan on doing with the plasma though just guessing for testing improvement was one possibility.
Posts: 526 | From NJ | Registered: May 2007
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