posted
When I started both doxy and rifampin I was knocked to another planet for over a week. Mainly a worsening of neuro symptoms, disorientated, could not formulate sentences, depersonalization. etc. I haven't really herxed much since these two first experiences. My questions is it common to have strong initial herxes and then not herx much after the initial one? Just want to be sure the meds are still working. Anyone have similar experiences?Thanks...
Posts: 22 | From winnipeg, manitoba | Registered: Jul 2010
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
I'm on doxy alone and m finding problems word search, depersonalization. I live in it almost 2 years, but rifampin is a nasty drug. Some people tolerate it well, but it hits Bart. I did rifampin 5 days, couldn't take it. If u can tolerate it, it's supposed to be good. Good luck.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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posted
how long were you infected before taking these?
a true herheimer can occur that way, to get sick initially for about a week, tho some who have been ill longer take longer to respond or feel badly longer, but after the "herxheimer" i think it's best to have a period where you are still treating but not sick from the treatment.
m
Posts: 8337 | From the other shore | Registered: Jul 2002
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posted
For me, the herx from rifampin was brutal. It took a couple of weeks to feel betterfrom the initial herx, and then I continued to have a daily but mild herx the rest of the time I was on the drug. I took it about 5 months, I think. Usually, the initial herx from a medication is much worse than the ones that follow. But there is no standard with Lyme. Everyone reacts differently, and one person may react one way one day, and different the next. Rifampin can be very difficult to handle though.
Your symptoms could be from either Lyme or Bart neuro symptoms or from toxins in your brain, or both. If they are from toxins, taking a binder like cholestyramine (spelling?) might help. My LLMD put me on it when I was having major brainfog, anxiety, depersonalization, etc. It has helped, some. Mostly though, treating Bart with rifampin has helped me the most. Some people cannot tolerate Cholestramine, but I have no problems with it. It might be worth asking your doctor.
Ultimately, we get sicker before get better. It is a long process, full of ups and downs. We can hope we take two steps forward and one step back, but that is not always the case. In the big picture, the way to get rid of your symptoms is to kill the bugs creating them. However, if you communicate them with your LLMD, there are things you can take to help alleviate some of them. You need to be detoxing, in more than one method.
I hope I have helped a little. I do not know your story, but I know how you feel. The brain issues are the hardest for me. I am left feeling like a shell of myself.
Posts: 427 | From Pacific Northwest | Registered: Oct 2010
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