posted
I need to back up a little and assess what happened when I was on Flagyl at the start of November.
I know it's a very common Lyme symptom to have fatigue and joint pain; specifically neck pain. And, now that I've had time to reflect, I realize what I thought was just pain from exertion and laying down awkward could be more related to Lyme.
I don't typically have problems with joint pain. That resolved itself with Minocycline and Azithromycin treatment, and I haven't stopped taking either of those drugs since my treatment started at the beginning of 2010.
On Flagyl, I had neck cramping and pain, and extreme fatigue. It was extremely difficult to deal with, so I only last 10 days. I pinpointed that the fatigue was definitely the Flagyl, but not the pain.
Now, if I don't have the pain on a daily basis, but the Flagyl brought it out, that would suggest I was attacking biofilm and Lyme -- right?
Do I want to revisit this drug, or recognize that if the symptoms are not present I should leave it alone?
My thought says if I want to clear this thing for real, I need to take Flagyl and go through the tough herxing. I don't know, so I need to hear from those who have taken Flagyl and they're responses.
Thanks.
Posts: 829 | From MD | Registered: Dec 2009
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posted
"My thought says if I want to clear this thing for real, I need to take Flagyl and go through the tough herxing."
You are right!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
Yes I would agree.. and also remember Flagyl can be hitting the Protozoan bug seen from a couple labs and for me IV flagyl did a great deal but herxing had to be endured .. The good thing is that herxing did clear up and bring clearing of symptoms of fatigue and some pain and other symptoms too of neck and head etc
I would follow your gut on this and how you reacted is telling you something specific.
Try to put in a large detox regimin and your herx will be less and and more tolerable and still getting all the benefit. If you look up Detox Support Thread .. you will find a long thread on many detox treatment ideas from many many people. A great place to remind yourself on how much you can and should do during treatment.
Good Luck...
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
I was on 1,500 flagyl for many weeks and had no problems, even my energy level got better and better. I think the flagyl also hits small parasites or makes their life harder.
Did not herx on flagyl+doxy.
Posts: 1834 | From US | Registered: Oct 2008
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littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
I herx like crazy on Flagyl, I pulse, Thurs and Fri. Thurs I'm alright, Friday it starts to get a little worse...Sat and Sun I'm pretty much worthless, and Monday it starts to clear. Then I have a good few days then back to the flagyl nightmare every week.
I know it's a herx, I know it's fighting the Lyme. My LLMD actually wants to up my flagyl and right now I'm just not ready for the worse herxing!!!
posted
I just stopped Flagyl pulse 3 days a week. This will be week 4 of stopping and previously took it for 3 months. The first 2-3 weeks I definitely herxed. After that I felt good. I then started with the brain fogg feeling again and felt it was from Flagyl neurotoxicity so I stopped. It all disappeared until this week when I've been congested with a cold and symptoms are lifting as the congestion improves so I know that's what the feeling is from. So, if you're not herxing anymore from the Flagyl, I'd say give it a shot and stop. If you are still having the herxing pattern, stick with it.
Posts: 239 | From NC | Registered: Aug 2010
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posted
Thanks everyone for sharing. I can completely relate to how you all feel on this stuff. After hearing your stories, it's probably best to get back on Flagyl at some point. Just wondering if I might tolerate Tindamax better.
Posts: 829 | From MD | Registered: Dec 2009
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posted
I can tell you that my symptoms are much worse on Tindamax, but they are better (not perfect but much much better) off the meds. And I have been treating lyme + cos for over 13 months straight now.
I tried to do IV rocephin + biaxin + tindamax for 60 days straight. I only lasted 54 days. Despite my efforts to detox, I just kept feeling worse and worse, like my body was being poisoned in addition to all the lyme + coinfection symptoms.
Right now, I am just on one abx and feeling much better. I had to take a step back because I need to keep my job, health insurance, etc and when I am on too many meds, I can't function. I previoulsy took a leave of absence from work, and have exhausted my time off.
The same thing happened when I was on IV rocephin+ rifampin + plaquenil- I lasted 60 days on that, then needed to back off.
I know the "rules" of being symptom free before stopping abx, but I am learning that I need to back off from time to time to really see where I am at and give my body a bit of a break.
I don't know if this is a good thing or a bad thing in the long run, but it is what I have had to do for me.
Best of luck, MB
Posts: 233 | From Hudson Valley | Registered: Jun 2010
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