posted
In today's New York times there is a fascinating and very relevant article regarding "Lou Gehrig's" disease. Research suggests that Lou Gehrig did not, in fact, suffer from ALS, but instead suffered from "ALS like symptoms" due to multiple head traumas and concussions that he suffered over his lifetime.
There is a space for comments (if you are a registered user after the article).
I think it would be very important to add comments on the connection between ALS like symptoms and Lyme disease. Please post your comments, especially if you have these types of symptoms and are being treated for Lyme. This is an excellent opportunity to get worldwide exposure.
ALS can no longer be referred to as "Lou Gehrig's disease". There ARE multiple causes for these terrible symptoms....and different treatments.
Please add your comment and perhaps help someone out there who could be treated!
Posts: 172 | From ohio | Registered: Feb 2010
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hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
Unfortunately we will never know as his body was cremated.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8890 | From Illinois | Registered: Aug 2004
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
Interesting but probably not worth the speculation. There are plenty of living sick people to worry about
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Lou Gehrig played ball in the days before artificial turf... in the GRASS... in NY. They didn't groom grass like we do these days. Plenty of high grass to hang out in from childhood on.
He stayed at a summer home in none other than- Lyme, CT.
He was near the home of Wormser and the other toads... in Valhalla, NY .. near the Medical College where we went to protest the IDSA guidelines... and where the rate of lyme is incredible.
He was diagnosed with a mysterious set of symptoms they labeled ALS- or Lou Gehrigs disease....by none other than the HOLD THE MAYO Clinic!
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Yes, and the one person with an ALS diagnosis that I was able to persuade to go to a lyme doc tested positive through Igenex for lyme, babesiosis, and bartonella.
That was years ago, and he is still around.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Tin Cup- I didn't know that...fascinating. Well, I am happy that at least some doctors will be more aware that "ALS" as the medical community knows it, is more complex than what current medical practitioners believe. Perhaps in many cases it can be prevented...and in the cases which involve Lyme (all? some?) treated.
I saw my GP last month and talked to her about Lyme...she is not very educated on the subject but she did ask questions. At the end of our conversation (yes, she spent about 30 minutes with me asking about LYME ..isn't that great?) she mentioned one of her patients had been diagnosed with ALS..she asked if that person should get tested for Lyme. I told her absolutely ..yes..and told her about the pitfalls of many labs and tests.
This forum is so useful for just these types of interventions, even if it is one doctor at a time, one educated doctor can make a huge difference.
TF...you helped save a life...bless you!
Posts: 172 | From ohio | Registered: Feb 2010
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
That is interesting Tincup.
When I read this posting the first thing I felt was pitty to anyone who is also reading it and lost a loved one to Lou Gehrig's disease.
In reality, they really didn't know what killed their loved ones or about the possible cure that could've saved their lives.
Another scientific sham with a fancy ball players name.
It's up there with the Fibromyalgia commercials where they begin by saying they "believe" it to be caused by overactive nerves......OMG Hey, I just realized another commercial I hate.
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Years ago when an acquaintance of mine told me her husband had ALS I was so shocked and upset that I spent hours on the computer investigating. Lyme disease kept coming up so the next time I saw her I said, "do you know that lyme disease is often misdiagnosed as ALS. Has your husband been tested?" She said the doctors told her there is not lyme disease in Montana so it was dismissed as he had not been back to the east coast. They never even tried abx - nothing.
The man died about four years ago, shortly before I was bitten by the tick (in Montana) that gave me lyme disease. I can't tell her it is possible that he had lyme but I think it every time I see her.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
I had a loved one die of a form of ALS. Not long after she died, I started reading about the connection between it and lyme. It makes me so sad to think that such a wonderful person had to die so soon.
She had classic symptoms of lyme, IMHO. She suddenly got deathly sick with a high fever, couldn't walk, almost died at that point. Then she went on for about a year before other symptoms started creeping up.
She died within the year.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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posted
Yea, The Montana thing. I'm from there too, and my dad died from ALS, my aunt died from ALS... and now I have this.
I was lucky though and had a MT dr. that believed me and tested and treated me.
Wish this idea of lyme had been around for my dad.
-------------------- Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again! Posts: 941 | From AZ-MT | Registered: Oct 2004
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posted
JunkYard, check out the Dr from Under Our Skin. He was initially diagnosed with ALS, began self-treating with antibiotics and reversed his "ALS" symptoms. He also went on to treat the ball player in the film. Now he's a LLMD saving people like us.
Posts: 246 | From south florida | Registered: Mar 2010
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posted
thats fantastic i hope he continues to succeed. i remember that man from the movie, i just thought it was a misdiagnosis or something.
i could be misinformed. i got that impression from my LLMD who says hes had much success treating MS but not as much with ALS. then again he doesnt treat in the typical way. if some drs are having success that very good news!
-------------------- sick since 9-09 igg, 18,23,41 reactive igm, 41 reactive Posts: 436 | From Kansas City | Registered: Jan 2010
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posted
Not all of the "ALS"Lyme patients react the same way. Read Pam Weintraub's chapter about the CO doc. This has been discussed before on lymenet. The problem is that some people continue to decline and get worse faster with full doses of abx. It seems to be an inflammation problem in that the getting worse coincides with herxes. In my own opinion, it might also be complicated by the possibility that antibodies can form against neural tissue when neurons are invaded by spirochetes. This is a tough nut to crack. And it might not be figured out in time for some of us.
Posts: 8430 | From Not available | Registered: Oct 2000
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I think that has been proven --we need lots more treatment.
With what they described here last year-it is criminal what they are going to us and should be prosecuted.IMO. 35 years of were not sick is long enough.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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quote:Originally posted by hadlyme: Wish this idea of lyme had been around for my dad. [/QB]
Mine too. My dad passed away in '93 from "Parkinson's". I was diagnosed in Aug 2000. I'd had it since childhood... didn't know.
Mom passed away in '05. I think she had Lyme and babesia as well. We didn't treat her because she was so ill from strokes. I don't think she could have taken the treatment.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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quote:Originally posted by RESOLVED.: [QB] JunkYard, check out the Dr from Under Our Skin. He was initially diagnosed with ALS, began self-treating with antibiotics and reversed his "ALS" symptoms. He also went on to treat the ball player in the film. Now he's a LLMD saving people like us.
Sadly, I think he is now retired.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
I, too, have wondered about Lou Gehrig's disease and ALS.
It has always sounded too much like Lyme. A friend of a friend died from ALS -- or so everyone thought.
It's all so sad. Lately I have been wondering why the abx companies don't start advertising on TV that they have drugs to treat Lyme. Pain drug companies, etc., all advertise.
I think that would help.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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