phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Well, I have tried about every antibiotic and my body will not tolerate them. No, it isn't a herx its like I am allergic to all of them.
I tried them and stopped during the holidays because I was so miserable with gerd and a lot of other symptoms.
So, got the gerd settled and started back again , low dose and bingo so sick from gerd and other reactions.
I am at a loss,as for now I had rather have chronic lyme than be so sick from abx.
I am allergic to PCN, Kelfex, Ceftin, Biaxin, Zithromax and was trying Clindamycin and then start Doxy.. never got to the doxy.
Feeling hopless,
Posts: 1058 | From VA | Registered: Oct 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Did you try the DGL suggested for GERD?
Has going gluten-free helped? Getting enough probiotics and antifungal support ?
Please refer back to the "How to find LL ND" thread that has been posted for you a few times.
The articles and books there have many other options.
You might want to copy and paste these links to your personal research desktop file for easy reference as this will take many hours (days, weeks) of study.
Topic: How to find an ILADS-educated lyme literate (LL) professionals in these areas:
Naturopathic doctor (ND); Acupuncturist (L. Ac.), a doctor of Oriental Medicine (O.M.D.), or a doctor of Ayurvedic Medicine (D.Ay.), certified herbalists or nutritionists, . . .
. . . Holistic MDs, and also Doctors of Osteopath (DO) and Doctors of Chiropractic (DC), etc.
�� Includes many professional links, articles and books on complementary / integrative methods - & RIFE links -- all by LL authors.
Also included are basic links explaining the principles of herbal medicine.
BODY WORK considerations (geared to lyme patients) are discussed; with links.
L-Glutamine is often suggested to help heal damaged stomach tissue. Absolutely, it can be VERY helpful.
However, for those with lyme who have adrenal exhaustion, nerve irritation, anxiety or seizures, be careful with L-Glutamine. Start with TINY amounts - and consider it as part of a plan, not the only tool.
Advantages and cautions (and what can help balance out effects) are discussed in this thread: ---------------------
Deglycyrrhizinated Licorice, also known as de-glycyrrhizinated licorice, or commonly referred to by the acronym DGL, is typically used as an herbal supplement in the treatment of gastric and duodenal ulcers. It is made from licorice from which the glycyrrhizin has been removed.
The usual dosage is 760 mg, chewed, 20 minutes before a meal. Studies of DGL in humans and animals against placebos showed that DGL significantly reduced the size of gastric ulcers and hastened healing, with 44% of the subjects obtaining complete healing, as opposed to 6% of the control group.
DGL has also been found to be an effective treatment for duodenal ulcers. In another study a group of 40 patients who had duodenal ulcers for 4�12 years were treated with 3 grams of DGL a day for 8 weeks, or 4.5 grams a day for 12 weeks, with all subjects showing vast improvement, with the higher dosage being the most significant.
An additional study shows that DGL's therapeutic effect is equal to the effect of cimetidine (Tagamet). . . .
. . . There are no known drug interactions with drugs used to treat ulcers. In Europe, South Africa, and Canada, DGL is marketed in a medicinal preparation called Caved-S. In the U.S., DGL is marketed as a herbal supplement.
DGL has also been reported to help treat aphthous ulcers (canker sores).[1]
WHAT IT DOES: Licorice root is sweet in taste and cooling in action. It detoxifies poisons from the blood and liver, and reduces general inflammation and pain.
It moistens and heals the lungs and digestive tract.
Excerpt:
. . . Almost 50 years ago, a scientist by the name of Revers reported that licorice paste reduced abdominal symptoms and caused radiographic evidence of ulcer healing.
However, about 20% of patients developed edema, headache and other symptoms due to overdose, leading to a loss of enthusiasm (Schambelan, 1994).
This led to the development of DGL (deglycyrrhizinated licorice), a form of licorice that does not contain the agents responsible for the side effects such as electrolyte changes.
The de-acidified DGL tablet or capsule form used in Europe and America is therefore devoid of any major side effects, and is effective for healing the intestinal membranes. . . .
- Full chapter at link above.
-=============
Just is just one of several similar products out there. DGL has saved the life of my stomach and can stop reflux within a minute.
If CANDIDA is causing the pain or reflux, in addition to PROBIOTICS (but taken hours apart), I have found OLE (Olive Leaf Extract) to be fabulous to help heal the gut from fungal issues. You can read more about OLE and Monolaurin, etc. here: ---------
[ 01-17-2011, 06:05 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
My daughter cannot take abx either. She does a different protocol instead. There are other things to do when you cannot tolerate the antibiodics.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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posted
Phyl, there are plenty of other protocols you can try if antibiotics are out of the question for you.
Either way, I think it is important to have a supportive lyme-literate doctor supporting you. Some LLMDs will be able to support you in this way, even if you can't be on antibiotics. LLNDs as well.
I would encourage you to educate yourself about the other options.
The two books I found the most helpful and easy to understand for non-antibiotics perspectives were:
Brian Rosner's 2 books (One is rife specific, the other is based on a bunch of alternative treatments-- I started with the latter book).
Stephen Buhner's herbal book.
Posts: 232 | From Oregon | Registered: May 2010
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gwb
Frequent Contributor (1K+ posts)
Member # 7273
posted
I couldn't tolerate abx either. Went on a protocol that Dr. J in KS does. Got much better on it. PM me if you want more information.
tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
In our experience, Nutramedix herbs worked better than abx...
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
quote:Originally posted by gwb: I couldn't tolerate abx either. Went on a protocol that Dr. J in KS does. Got much better on it. PM me if you want more information.
Gary
Gary, You mailbox is full. I'd like to know about this protocol you did that helped you.
Thanks
Posts: 1142 | From South | Registered: Dec 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Hambone,
you can find that protocol in with all the others at the ND thread. Gary's thread is also linked there. See the articles and books section - the links you want are right after the BIochemistry of Lyme article: -------------
Topic: How to find an ILADS-educated lyme literate (LL) professionals in these areas:
Naturopathic doctor (ND); Acupuncturist (L. Ac.), a doctor of Oriental Medicine (O.M.D.), or a doctor of Ayurvedic Medicine (D.Ay.), certified herbalists or nutritionists, . . .
�� Includes many professional links, articles and books on complementary / integrative methods - & RIFE links -- all by LL authors. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
Yes, Gary, could you please share info on your non-abx treatment?
Thanks:) Tammy
Posts: 2238 | From East Coast | Registered: Jul 2010
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
You probably just need to try tiny dosage as you have so many bacteria. I had to start with 5 mg of doxy over months, then was able to get treatment. Many here had to start with tiny slices of abx to get started, it is not so unusual.
Posts: 1834 | From US | Registered: Oct 2008
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gwb
Frequent Contributor (1K+ posts)
Member # 7273
posted
Sorry about my inbox being full. I'll clean it out tomorrow. Too tired to do it at the moment.
Here's a thread I started in Jan 2010 regarding the protocol I was on (still am) and my experience with it:
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I could not tolerate abx for years. I thought I was allergic but after my Lyme diagnosis testing showed I was not allergic.
I went on Dr. S of Mold Warriors biotoxin protocol and was able to tolerate abx.
I was told that heavy metals are released when the pathogens die so one needs a heavy metal binder on board when taking abx. Reflux is one of the worst symptoms for me with heavy metals.
Another possibility is that you have porphyria.
You can search the archives for more info on all of these things.
Good luck, Terry I'm not a doctor
Posts: 6286 | From Oregon | Registered: Jan 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- TerryK is absolutely correct about lyme releasing heavy metals as it is killed off. And that is just one reason why a LLMD or LL ND is so vital. They KNOW this about heavy metals. And they'd know to cover treatment appropriately.
For anyone with clearance problems or trouble tolerating abx - as Terry suggests, porphyria needs to be considered. Start with the "Secondary Porphyria" post. --------------
Includes links from GiGi, Dr. K, and others about KPU / HPU (mauve factor) . . .
& links from TerryK regarding METHYLATION issues -
Posts: 48021 | From Tree House | Registered: Jul 2007
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gwb
Frequent Contributor (1K+ posts)
Member # 7273
posted
OK, I finally got my inbox and outbox cleared out, not completely, but enough to start getting pm's again. If anyone wants to pm me it should be fine now. If you want to email me in case it gets full again you can reach me at [email protected].
Also, the link I provided in my post above has a lot of information regarding the protocol I was on. If you still have questions feel free to write and I'll be glad to answer back.
One other thing, I believe one of the best things that I have done to help myself get better is taking detox baths three times a week. The detox bath recipe is posted on springshowers detox thread I'm pretty sure. My wife, daisyrlb, may have posted it there. Check it out.
posted
It is unlikely to be truly allergic to antibiotics in this many different classes. Allergic reactions can be measured. Lyme patients who say this are usually having a reaction to first time treatment when the germ load is higher. The solution is low doses, as someone already mentioned.
Or you have some rare genetic defect. This can be determined by testing.
Posts: 8430 | From Not available | Registered: Oct 2000
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