posted
Has anyone here been diagnosed with POTS or any form of dysautonomia?
So for months I have experienced some weird things but thats the story of Lyme, right?!? Well, the other night I got up to fill my water bottle, use the bathroom, etc. I had been out of bed for about 5-10 min. when I was standing in front of my bathroom mirror. I felt terrible: nausea, lightheadedness, etc. And all the sudden I realized that my body was just rigid and that I was slowly going backwards.
All the sudden I realized that I was passing out. So I gathered all I had in me and over-corrected and fell on my counter top. I didn't lose consciousness but felt almost like my brain was paralized for a bit.
I stayed there for a bit, I don't really know how long, but long enough that I thought I would be fine. When I stood up everything just started to go crazy. Horrible nausea, headache, lightheadedness, etc. But all the sudden my inner ear felt like it went frozen, so so cold. Then my brain felt frozen. All the sudden I realized that I AM going to pass out, I have to get to my bed.
I know I know, duh, right?! So I started to walk to my bedroom but only got to the bathroom door (maybe 3 steps) when my arms went freezing cold, and I knew that I was never going to make it to my bed.
I started to lower myself to the floor but before I could, I fell and passed out. It seemed for only a slight second, however I really don't know. I just layed there for what seemed like maybe 3 minutes but was really about 30. I finally made it back to my bed, I didn't want my brother-in-law to come out in the morning and find me half dressed in the hallway!!
So I was thinking what could be going on? All during the night I had been slightly lightheaded, nauseated, and my nerves were so "jumpy". Every time I even swallowed, my nerves jumped.
I remembered seeing a video about Dysautonomia on youtube and thought I should look into it. These are the symptoms that I have: lightheadedness, sometimes called pre-syncope (pre-fainting) dizziness (but not vertigo, which is also called dizziness)[4] exercise intolerance extreme fatigue syncope (fainting) cold extremities chest pain and discomfort disorientation tinnitus dyspnea headache muscle weakness visual disturbances abdominal pain or discomfort bloating[5] constipation diarrhea nausea vomiting brain fog burnout decreased mental stamina depression difficulty finding the right word impaired concentration sleep disorders chills feelings of fear flushing overheating nervousness over-stimulation The only other symptom that they listed was excessive thirst, and I definitely don't have that.
What I don't understand though is that I thought all of these things were Lyme symptoms. So can this really be POTS or is it just Lyme?
I know the last 10 years, I can't stand still for long without feeling like I am going to pass out, and my feet get all red and blotchy and itchy. When I get up from a sitting or laying position, I get lightheaded, have visual issues, loose my balance, my heart just pounds, and sometimes I feel like I am just going to pass out.
Until now I never gave POTS much thought since I hadn't pass out.
So what do you guys think??
Posts: 265 | From Oregon | Registered: Aug 2009
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beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
You can have POTS without passing out. I had it badly, check tour heart rate when standing. Mine would jump to over 120.
Posts: 1276 | From maryland | Registered: Jan 2009
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posted
Ok, so I have been on Malarone for just over 2 weeks.
Well, I treated for stupid little stints a couple of months ago but whatever
Anyway, so do you think that the worsening of the POTS symptoms might be a herx reaction?
Posts: 265 | From Oregon | Registered: Aug 2009
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