Topic: Question for those with (or had) frozen joints
17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
I've posted here before about a very sick little girl who has LD and Rheum. Arthritis.
Her mother would like to know...
If a joint (knee) is swollen and does not bend but is hard with no fluid in it, would surgery to scrape it out and put a pin in it help at all?
Have others had this done and have they gained mobility?
Or might it be risky and why?
And what would DNA and PCR testing be looking for and how might that benefit from a LD point of view?
Any insight here or shared experience would be greatly appreciated!!!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
| IP: Logged |
Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
Suggestion - maybe ozone injections would help. I would try this option first (first, do no harm...). It's safe, non-toxic, amazing etc.
Not sure where to find a practitioner though. I'm sure some good searching would lead you to a good doc.
Best to your friend, Tammy
Posts: 2238 | From East Coast | Registered: Jul 2010
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Did you know that there are 2 different camps when it comes to treating rheumatoid arthritis? One camp says it is not curable and so they just treat the symptoms while the disease progressively destroys your joints.
The other camp says that RA is an infectious disease and treats it with antibiotics until the patient is cured!!
We used to have a doctor in our area who had a radio program. He advocated the antibiotic approach. He had a woman patient of his whom he cured of RA in this way. He had her on his show. She said she had been bed-bound (with many frozen joints--fingers, hands, etc.) but that after taking antibiotics for I believe about 3 years, she is now totally cured.
Eventually, the doc married her and had her on the show all the time. She biked long distances with him all day, etc. with no problems. RA was a thing of her past.
The doc said the patient must take antibiotics for as long as it takes for the rhumatoid level to come down to normal. (This guy also treated lyme disease!)
There are a number of doctors who believe RA is an infection. I suggest this lady take her daughter to one of them. I doubt they would ever advocate this surgery you are describing since the knee is frozen due to an infection, but I don't really know.
Perhaps the Road Back Foundation would be a good place to start for her to do research, read the medical literature advocating this approach, and the evidence behind it, etc.
Maybe you already know all of this. It is so similar to the lyme controversy. But, many folks don't listen. They trust their mainstream doctor's advice and just slowly go down the tubes with this disease.
Once a joint is destroyed by the infection, it will never regenerate and come back to normal. That's why I hate to hear of a young person having this horrible illness. Please help her read up on how to cure her daughter and save all of her joints so that she can live a normal, long, happy life.
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
posted
Don't know if this would help at this point, but teasel root tincture can take down joint swelling. The bottle says Teasel dipsacus sylvestris.
Suggested amount: 1-3 drops under the tongue 2x/day. I'm trying it now and it works well for my knees and ankle swelling.
Posts: 13116 | From San Francisco | Registered: May 2006
| IP: Logged |
posted
Is the child being treated by a true LLMD? It may be advisable for her doctor to consult with Dr J in CT. No one knows more about Lyme arthritis than this Lyme Pediatrician. He's absolutely wonderful.
Posts: 4638 | From South Carolina | Registered: Mar 2001
| IP: Logged |
17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
Thanks so much, everyone, for your input. It is seriously appreciated!
cbb...yes, by the one you mention.
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
| IP: Logged |
posted
So glad to hear this child is in such good hands.
Personally, I definitely wouldn't do anything without consulting this doctor first...especially if surgery is involved. I'd be afraid there would be a chance of some complication.
I hope they see some improvement soon.
Posts: 4638 | From South Carolina | Registered: Mar 2001
| IP: Logged |
17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
Carol, thanks so much. Great recommendations and links are appreciated!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/