lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Just came from non Lyme near who was told thinks out of the box. Went for salt problem. When asked where salt problem comes from, told it just happens sometimes. When asking about lesions showed him MRI, said anyone can get them. When showed him spect from Columbia, he said depression can cause hypoperfusion. Doesn't believe I have Lyme and said all is a coincidence. I'm numb from depersonalization. Wish the old me was there to do some fighting. Thank god only a 20 dollar co-pay. Back to square 1 with the salt issue. (too low). Am so tired of living a controversy.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
| IP: Logged |
Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
lyme in Putnum, I am sorry you had such a bad appointment.
Have you had your adrenal function checked? Low cortisol can cause sodium deficiency in some. This happened to me. I was actually craving salt all the time when I usually do not want salty foods. My sodium level was low, and my adrenal tests were off. I have been taking supplements for it, and I no longer have the problem.
Posts: 4681 | Registered: Oct 2000
| IP: Logged |
Your SPECT from Columbia would have said depression if that is what the results showed -- I have seen photos and the SPECT pattern with depression and lyme or tickborne diseases looks very different even to a non M.D.
Yes, anyone can have brain lesions but symptoms plus lesions usually requires further investigation.
As to the salt issue -- have you been evaluated for POTS or orthostatic hypotension?
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
| IP: Logged |
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
My kidney doc checked all adrenals and I have him stumped. He's checked all and he's really thorough.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
| IP: Logged |
Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
Have you ever had saliva testing done to check your cortisol levels?
Posts: 4681 | Registered: Oct 2000
| IP: Logged |
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Did it. This neurologist said for legal matters they have to cover all basis and put Lyme in the reports.....
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/