posted
...after having Lyme for I think 2 years now? Waiting for payday so I can go to the doc again (co-pays are such fun) for follow up then going to call the LLMD closest to me that accepts insurance. So tired of this....
Posts: 98 | From Maytown PA | Registered: Apr 2011
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I was ill for 2 years before starting treatment. I have been treating for 3 years now and am getting close to remission.
I am not alone, many have gotten well, but most have moved on and are not on lymenet anymore, although a few still remain.
So yes it is very possible to get well after having LD for years. Some had it for 10 or even 20 years and are now well.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I had undiagnosed lyme for at least 10 years before beginning treatment.
I got rid of lyme 6 years ago. That's when I completed my treatment and I am still symptom free, enjoying my life.
I also have friends that had lyme for at least 20 years (misdiagnosed as fibromyalgia) who got rid of their lyme. So, it definitely can be taken care of at any stage.
The main thing is to go to a doctor who follows the Burrascano lyme treatment protocol. THat's how I and all my friends got rid of it.
Most people who got rid of it no longer come on LymeNet. There are just a handful of us who continue here.
Study the Burrascano Guidelines to know if you are getting good treatment or not. They are here:
Many doctors treat lyme disease, but few know enough to get rid of it for a person. I went through 2 other lyme docs before I found one who knew enough to cure me.
FEW doctors know enough to cure a person. That is my conclusion after studying this and helping people with this disease for about 9 years.
The chances of a doc who takes insurance being able to cure you are very slim. Sorry about that. This is one complex disease, and the docs who can cure it spend hours with you at your first appointment and even at subsequent appointments. So, they can't accept standard insurance reimbursement. If they did, they would lose money.
Ideally, you want a doc who treats lyme full-time. This way, he has developed the necessary expertise.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
TF & Lymetoo -- thanks for all that you do for us!!!!!!!!!!!!! We NEED people like you here to help us through it all.
-------------------- LAXlover Posts: 371 | From Northern Baltimore Area | Registered: Apr 2010
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Yes, thank you for giving us hope.
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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posted
Anyone have any good ideas on finding doctors who are lyme literate and use these protocols. Daughter lives in CT and has been fighting the CNS component for several years, including depression etc. Not making progress on oral antibiotics. Fargorad
Posts: 2 | From Fargo, ND | Registered: Apr 2011
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posted
Fargorad, please look in the doctor search area here. The people on this site are wonderful and very informative on this. I have found a few docs close to me and hope to see one soon. I wish you much luck!
Posts: 98 | From Maytown PA | Registered: Apr 2011
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