posted
I met with my llmd again this morning to discuss what im going to follow up with after rocephin.. At first he said i look better so i should take a break from antibiotics.. but i dont feel better!
He wants me to only do zithromax for 4wks by itself.. then he "might" add something else.. i feel so fustrated with him..
i dont feel like he's treating me aggresively enough... he said he wants to do one thing at a time so i dont over herx.. which i understand but i wanted to atleast add something to try hit bart like bactrim or something
Will zithromax do me any good for someone that has neuro lyme?
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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posted
I just met with my LLMD and asked him a few questions. One of which indirectly answers your question. He has Burascano like guidlines he follows.
He said there are 3 stages and or locations for Lyme. Blood, Cellular and Cyst. It is important to have an abx that breaks down the cycles. For example:
I am on Ceftin which covers the blood. I am also on Zithromax, which helps with the cellular level. Last but not least I am on Grapefruit seed extract to help break the biofilm of the cyst form. This opens the colony up for destruction.
I would think without treating at least 2 stages you will not defeat it?
Fuel
-------------------- IgM- 31,34,39,83-93 IND IgM- 41+
IgG- 31,34,39,83-93 IND IgG- 41++ Posts: 610 | From Lymeville | Registered: Nov 2010
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
From memory there was a study done (maybe Stoney Brook) did some work where one group of patients were treated patients with amoxicilyn (3 weeks) and the other group with zithromax (1 week, 2 weeks placebo).
Both groups were early stage lyme, the zithromax group had 4 times the level of treatment failure.
I think it was Dr. B's guidelines which indicated while Zith is good in the test tube it is not as good in the cell (maybe due to ph levels).
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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posted
I was put on zithromax along with the omincef I am on. I have had 5 months ominicef and two months of zithro in the middle. All I have read about lyme and coinfections is that both are excellent abx for treating lyme.
I had to stop zithro after it began affecting my hearing and severe tinnitus. They were concerned of me losing hearing in the other ear but it was working while I was on it?
I was told to stay only on omnicef for the last month after a very bad herx from rifampin. I was also told that a severe herx is the worst thing for you body. It can leave you with permanent damage.
You are stronger than I am. I am far from begging for somethign to add to my current abx. I am feeling a bit better and too frightened of going through that reaction I had on rifampin. Maybe you are just taking a break in between. Many people take abx in cycles with a break in between. Depends on the LLMD and the patient.
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
How effective is zith for mycoplasma pneumonia?
Posts: 1954 | From Illinois | Registered: Aug 2007
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But I know taking Zithro by itself for the co-infections (it can treat babs, myco, and bart, probably others i'm not aware of) quickly leads to antibiotic resistance. So I'd be mindful about the coinfections before taking it very long by itself, if it were me.
That said, you're not supposed ot take Rifampin by itself, and I still had to for a whole month! Just like your LLMD, we were pushing the limits to avoid herxing too badly. You just need enough to create a small herx and see improvement; you two need to work TOGETHER so you don't overload your body. Severe herxing can kill.
little olive
-------------------- Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08 IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++ IgG deficiencies and MTHFR 677TT mutations Posts: 512 | From USA | Registered: Sep 2010
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posted
Nicole, I notice you are from PA and makes me wonder if this doc is one that I had seen. If he/she is in south central PA feel free to PM me to confirm if it the same person. If you aren't comfortable with that you can post here but only use the docs last initial.
-------------------- If you play at the beach, expect to get some sand in your shorts Posts: 223 | From central pa | Registered: May 2010
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posted
little_olive- i thought zithromax was only for co infections? i was on zithromax before already for a month before iv rocephin
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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posted
My LLMD just put me on zithro twice a week 600 mgs along with Suprax 400mg every day for four wks. Prior to this 08/2010 and 08/2009 was on Doxy 100mg for only three weeks. Aft each doxy treatment, even though it didn't get rid of the Lyme, I felt great but it took a good month after I was finished it. I see him again on 06/02 so we'll see how I feel but I think fm my personal experience, it takes some time afterwards before you start feeling better. I finished doxy beg Aug and started feeling good end of Sept.
posted
From what I know, Zithro reaches good levels in the brain, though not necessarily the spinal fluid. So it does treat neuro Lyme. Someone mentioned on another thread that at high enough levels (it can go into the grams, like Ceftin), it becomes bacteriocidal as well as bacteriostatic, so perhaps with high enough levels it might also penetrate the spinal fluid? I have no proof of this, but I know Amoxil won't reach the brain unless at high enough levels, so maybe it works like that.
Bump, for more answers!
Posts: 512 | From USA | Registered: Sep 2010
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I am no fan of zithro and especially zithro alone. In short I feel it is not effective alone. I think I would try to find a more aggressive dr.
Besides, Lyme treating protocol really calls for combination antibiotic therapy. In between the heavy hitters a cyst buster, like flagyl, should be used.
Not a doc. Just a Lyme vet of almost 21 years.
Posts: 107 | From maryland | Registered: Feb 2007
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posted
Zithro did Great for me!! No complaints added Mepron to zith a few month's after doing zithro alone and turned the corner .... Feeling GREAT!
Posts: 501 | From Hudson Ticky Valley, NY | Registered: Aug 2009
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posted
Been on zith alone for a month and feel pretty good. Best I have yet. taking it for Bart and Lyme coverage. previously took Doxy for 8 months with Flagyl pulse for 3 of those 8 months. Relapsed due to suspected Bart infection now taking zith for it.
Posts: 239 | From NC | Registered: Aug 2010
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