Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
After many years of antibiotics I no longer feel like I'm making any progress plus the body no longer wants them.
My symptoms continue to be primarily from the shoulders up. Maybe I'm grasping at straws? Just getting desperate.
Thanks for any information you may be able to provide.
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Up.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
I don't know if anything is new about it recently. I did have the angioplasty for CCSVI in September, just had the 6-month check-up test in March, and came back still no signs of CCSVI. So, for me, the success of the treatment has maintained for 6 months.
Posts: 1927 | From se usa | Registered: Mar 2010
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mojo
Frequent Contributor (1K+ posts)
Member # 9309
posted
My twin had it and immediately felt great. Some symptoms went away completely but some came back. There have been some lasting benefits like no more "shortness of breath" but other symptoms that disappeared and returned are: Ear ringing, fatigue (some) and just overall malaise.
We feel it is one of the "layers" that we need to address and we want to go to Chicago someday where they address more veins (not just the ones in the neck) to acheive a better result.
Posts: 1761 | From USA | Registered: May 2006
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
joalo, Thank you for bumping this up. Much appreciated
Michael, thank you for replying. I'm happy you haven't restenosed. Would you mind telling me what symptoms were relieved? I have seen different trains of thought on this such as the size of the balloon.
mojo Thank you too. That had to be such a great feeling for your twin to feel great yet disappointing when some symptoms came back.
I have read about other veins being involved also. Also I believe one needs to have the infections treated aggressively prior to the treatment to prevent it from restenosing as the "bug" cause angiogenesis. Bartonella being one that I've read about.
One video I watched stated that if you don't feel like you've been kicked in the neck afterwards you were probably undertreated?
I'd take a kick in the neck to get my life back. Any further info is greatly appreciated.
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
My biggest one that it helped was sensitivity to wireless signals. This was a terrible symptom for me. It also was that I could not exercise without getting a migraine headache for the rest of the day, and now that is gone as well.
It helped a lot with fatigue too, although fatigue is worse again now since I retreated parasites a number of weeks ago during a full moon.
Posts: 1927 | From se usa | Registered: Mar 2010
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
Michael, Thank you. I'm glad you got rid of some really bothersome symptoms for you. Hopefully the fatigue will clear again.
That's a big one for me also. Nuvigil does help me quite a bit with that but it's a double edged sword.
When I am active, my head symptoms worsen. i.e. confusion, inability to concentrate, blurred vision, strange sensations in my brain etc..
I've also recently developed swelling of feet and ankles.
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I just saw this website on the topic (through Calif Lyme Disease Assn.):
Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
I've always been uneasy about going down this path. I think we need to treat parasites and the biofilm they produce, then circulation should improve the head. Just my thoughts. I'm hoping this works for me (hoping and praying).
Posts: 2238 | From East Coast | Registered: Jul 2010
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