Topic: How many had negative for co-infections from Igenex?
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Checked for babesia and bartonella. Never thought of babesia, but always had bartonella from tests and symptoms. Anyone?
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
I was tested through IGeneX for Anaplasma and Ehrlichia, and both were negative.
I was also tested for all coinfections through Fry Labs (I did every test they offered at the time except their Lyme test - I had already tested positive for Lyme through IGeneX and didn't feel the need to retest at Fry), but nothing was positive. The Blood smear was clean (no abnormalities, except there were very few white blood cells - I tend to be low on those, so that was no surprise).
Clinically, I know I have Bartonella based on symptoms (esp. foot pain). I personally think I have Anaplasma, but the LLMD's I've seen didn't mention it. Don't know about Babesia, I don't have the more "classic" Babs symptoms, but do have some of the less common ones - but these could be from Lyme/Bart. too. Hard to know for sure.
I herx on Cipro (Bart). I herx on Ceftin (Lyme). I herx on Flagyl (Lyme for sure, could also be Babs). I herx really hard on Doxy (Lyme, possibly also Anaplasma).
And I herxed too hard (hospitalized, unable to swallow even my own saliva, & still not back to normal on swallowing ability 3 years later) on Buhner's core protocol - especially from the Japanese Knotweed. This suggests Lyme for sure, but not sure what other bugs were stirred up by the Knotweed/Andrographis/Cat's Claw.
Haven't been on anything anti-Babesia except Flagyl, but I'm still at a really low dose (started at 1/4 tablet (250mg tablets), now at 1 tablet and working my way up to 2/day for now...maybe more in the future). Oh, when I was on Plaquenil (for Lupus), I did not herx at all, but it also didn't help much symptomwise, and I took it for a whole year.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
I tested negative for everything through igenex...two months into abx i did a western again and had a few more bands and IND but still negative..I also tested negative for all through stonybrook and quest?
Coffee, I had very bad reaction from rifampin.wouldnt call it a herx..just an old abx that is known to cause issues...feel well
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I was negative on a Igenex Bart IgG/IgM and Fish. But weak positive on the IgG from Specialty Labs / Quest.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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posted
annier,for some time I was questioning whether it were a herx or drug toxicity. But I notice one very clear pattern. After starting every new combo of medications some symptoms were building slowly and some were getting worse very quickly. Once the symptoms peaked and I went through the hell for 3-4 days I would wake up next day like totally "healthy"person- many symptoms would resolve and I would wonder was I going crazy and imagining all these symptoms.
I also have had abx holidays lasting for 2-3 months. In early stages of treatment I would slip back very quickly during the abx holiday, and as soon I started new regime the pattern I described had repeated itself.
I also experienced very specific symptom on rifampin and levaquin - as soon I started taking them - different abx rounds- I felt like a big whole on top of my brain- sounds funny but true.
But I am of topic, I forget to mention I was negative on Babesia through Igenex but positive for Bab with Quest.
Also Fry lab - returned as hemobartonella/myco. Quest positive for Mycolpasam which just does not want to go away until today. Still coming back positive. Sucks
Posts: 191 | From va | Registered: Sep 2008
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