posted
Am I correct that Omnicef (Cefdir) is strictly for Lyme, or is it possible that it can hit any co infections also? (I think my LLMD may have abandoned me due to some controversy with Anti Lyme warriers)
thanks,
Beagle
Posts: 348 | From MA | Registered: Dec 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I believe it is only for lyme. What are Anti Lyme Warriers?
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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posted
Do you mean your doctor is going to stop being an LLMD or that he is just dropping YOU as a patient?
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
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posted
By Anti Lyme Warriers, I mean the Infectious Disease Doctors from Partners in Newton, MA that marched to the State House last summer to try and stop new legislation that would allow doctors to treat Lyme and co's long term what ever way they see fit without risking disciplinary measures from the Board. The legislation passed last year, but my PCP works with those guys and when I finally gave in and saw the ID Doc (anti lyme warrier) he immediately stated "If you have anything from Igenex Lab, don' even give it to me I don't want to see it." (I didn't even have anything from Igenex, never tested there.)
I have complication with knee replacement done in September. Anti Lyme doc wants me off all antibiotics for 3 - 4 weeks to tap knee for infection. But when I tried to go off after 9 days I was so sick I could not even lift my head, so fear going off again. Then Lyme Literate Doc seemed to cave in to the big guys and simply said go off the antibiotics. No mention of future appointments - I think it was a matter of fear that if knee was infected Lyme Doc did not want to be responsible for prescribing antibiotics which mask possible TKR infection. That's all I meant about being abandoned by Lyme Doc.
But now I'm on my own for a month or two - that's when it will be feasable for me to go off meds and risk being bedridden sick again - I live alone.
Hence, my original question about Omnicef. My Lyme Immune Id test (new, from Neuro Science) just came back as "current infection with Borreiia b. waning. Must consider other pathogens" That tells me Bartonella, Babs, etc. because I am still sick. but get even sicker off antibiotics. I have Omnicef and Zithro here. Don't want to self treat, but have no choice for right now.
Was kind of hoping Omnicef could touch the co infections a bit, though I'm probably grasping at straws....hoping.
Beagle
Posts: 348 | From MA | Registered: Dec 2010
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penguingirl
Frequent Contributor (1K+ posts)
Member # 28688
posted
Can you try taking some herbals for potential co-infections in the meantime?
Sorry to hear you are in your situation!
-------------------- Posts: 1204 | From USA | Registered: Oct 2010
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posted
I'm currently taking 900mg of omnicef a day, but I don't think that it hits any of the co-infections. Wish I could be more helpful.
Good Luck!
-------------------- 10/10 EIA 1.4+, 41 (IGG), 23 (IGM) Bitten over 20 years ago. Currently not treating, looking for a Dr who will work with my insurance lol.
More muscular, cognitive, nerve issues than joints. Facial droop and blurred vision. Posts: 323 | From Michigan | Registered: Apr 2011
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Why not try a-Bart? Www.forresthealth.com. Password for shopping cart is "health"
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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wonder if we see the same llmd? I was only on omnicef for five months. I saw a neurologist for brain lesion upon my llmd's referral. When she tested me through stonybrook she said I had not bands on western blot and stop all abx before I destroy my organs.
At my next LLMD visit I had a miracle cure! He read her results (even though I had bands on igenex) and said she is probably right. I am no better...infact worse than when I started in dec. I think they are afraid of the conflict.
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I believe Beagle see's Dr. H in MA. (my LLMD)
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
pm sent re buhner
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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