posted
Some lyme patients have done this, also other types of patients, but as far as I know there are no statistics on treatment success. What you will hear is individual patient stories. So, no track record and very expensive.
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
Hi - don't have time right now, but later, I can look and post the edition number - there's a CALDA Lyme Times magazine issue with an article featuring the first Lyme patient to go to India for this treatment. You can order any Lyme Times magazines from www.lymedisease.org.
I know a few who have gone from here. They were not doing well at all before they went, and it turned their health around. They went twice. I have heard that about 80-90% do well, 10% do not.
You know, this is happening in more places than India - other places in the world, and also in the US.
Posts: 13116 | From San Francisco | Registered: May 2006
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
There is a family with a short video and a website that are trying to raise money for the India visit and stemcell transplant. It is the 2 kids who have been sick for years and nothing helps. It was a sad movie clip to watch. I thought for sure it would be posted here. Here is the link:
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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posted
ktk - thx so much for posting this - I hadn't seen it before - it's a tearjerker - will make you cry -
I did a one-hour talkshow interview in June 2007 which included one of these sick kids and their mom - please watch it -
you will see them further explain what's going on - they both did a good job - google for San Francisco Lyme Disease Talkshow - all of us had recently found out, so our amazement level was similar -
then anyone who knows people with some funds who would like to contribute to save their lives by sending them to India, here's the address to help:
And, this thread all ties together - since Amy Scher, the first Lyme patient to go to India, as I mentioned above, is interviewed in the video ktk posted!
So, the Lyme Times issue that has the article on Amy's trip to India is the Winter 2008 one, #54. Back issues can be ordered from www.lymedisease.orgPosts: 13116 | From San Francisco | Registered: May 2006
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scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907
posted
I remember reading about this man... wonder how he's doing now.
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