blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
Here we go again. I'm so tired of this. Nothing kills this bugger. I'm back on chloroquine and primaquine and my dark urine has already cleared right up, my body temp is getting more normal and I'm just feeling overall better.
But, my CNS is so screwed up now that most meds give me wicked insomnia. I've only slept 5 hours out of the past 48. So, not sure I can keep on the meds.
We really need better babesia meds. Maybe now that they are finding babs in the blood supply someone will start research on better drugs.
Posts: 1104 | From N.California | Registered: Jan 2008
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I have wondered the same thing recently -- keeping finger's crossed that perhaps the entire blood supply topic may in fact force the hand of our CDC, Govt, and a few assorted others to once and for all wake up. If not that, at least a pebble that causes some kind of a ripple that may lead to bigger and better things possibly down the road.
As we all know, though, there's just no telling if the babesia/blood supply reality will in fact ever be addressed the way we all feel it should be for everyone's safety.
Seems so often that these are the same types of things that inevitably get either swept under the rug and you never hear another thing about them or it goes dark for a bit and then there is a big panic out of the blue again down the road in ___ years.
Keeping my finger's crossed that this time it will be different and that with some further investigation by the so called powers that be comes some forward movement at last for the rest of us here and elsewhere.
Also keeping my finger's crossed that you do get some more sleep soon, as I know how God awful it is what you described. Night time becomes very lonely as well as oppressive very fast when it gets to that point, at least for me.
Good luck to you. Hope your LLMD can help you figure out what other avenues are out there for you.
Posts: 192 | From New England | Registered: May 2011
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