posted
I still have lots of neuro symptoms - more than i ever had before - but my westernblots are not positive anymore. What do your tests show after years of lyme?
Posts: 214 | From Home | Registered: Apr 2011
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posted
WBs can show Lyme antibodies at this moment I think.
Posts: 214 | From Home | Registered: Apr 2011
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Positive in the igg past, shows exposure. I think if it's negative, it's cystic and wouldn't show, don't know, that's what I think if youve had it a long time.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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posted
No point in getting another test. Go by symptoms to tell if you still have Lyme. I'm well, but even if I were still sick I wouldn't spend money on another test.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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quote:Originally posted by sickmate: WBs can show Lyme antibodies at this moment I think.
What I posted is exactly what my LLMD told me. He says there's no point in another test once you've had a positive one. You can have antibodies for years.
I had chicken pox as a child .... I still have antibodies to it or I would be able to get it again. Antibodies stick around for a LONG time.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Okay okay. I just wanna know if your WBs are also negative after years of lyme and treatment.
Posts: 214 | From Home | Registered: Apr 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Most people don't get repeated tests so I'm not sure you will get the answer you desire.
It sure can be frustrating to not have crystal ball.
I'm not sure why your doctor is doing repeated WBs. As others say, there is no need for repeat tests. Lyme just does not work like most other infections that doctors are used to, hence the category: "stealth" infections.
I assume you are asking because you are still ill and puzzled about how to proceed.
If you are still ill, lyme could very well still be "the tip of the spear" as one LLMD describes it.
It can take 3-4 years of targeted treatment just to start to feel good again. For some, it can take much longer because lyme is rarely ever just lyme but, even "just" lyme, requires many different approaches.
Have all the forms of the spirochete been addressed with particular methods: Cyst form, etc.; and BIOFILM ? If not recovering as expected, there may be something missing from treatment or a different combination might be needed.
For some, a rife machine can help pick up the pace.
However, there is a different new test on the market that is far better than a WB. If your doctor is ILADS-member, or ILADS-educated, he should know about that one. But, again, lack of detection can't rule out anything.
If you've not had the full work-up, money might be better spent assessing the other tick-borne infections or, maybe, some of the other chronic stealth infections that often go with lyme - like Mycoplasmas, Cpn, HHV-6, Parvovirus, etc.
Other things that can confuse the picture: Gluten; Food or environmental triggers; MCS (multiple chemical sensitivities); etc.
Parasites - and issues with the liver not being able to properly metabolize toxins - are also considerations if success is elusive.
If excellent LIVER SUPPORT and ADRENAL SUPPORT have not yet been part of your program, those are usually an important cornerstone of support methods and can make a huge difference in success.
KPU might also need to be assessed. One LLMD estimates that 80% of lyme patients have KPU, a problem with ability to detox, etc.
I can't explain more now as I'm worn out. Any terms you wonder about can be searched here or through Google.
Good luck. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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