Anyone go there or have any thoughts?
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Just taking a quick look, I'm very sad to see what they say about Autism. They are very wrong for the cases where lyme has caused autism spectrum. It's like that's not even considered.
Yes, lyme can cause damage to the limbic system, etc. but if borrelia is not specifically addressed, all the support or adjunct measures in the world won't work.
This seems to be beyond extremely misleading in its simplicity:
. . . Despite the numerous named syndromes in this category, these disorders are all related to an abnormal function of two primary areas of the brain:
(1) The processor (Reticular Activating System)
(2) The emotional center (Limbic System)
These two areas in essence control the speed of all cognitive and reflex functions and are responsible for behavior, mood and activity level. . . .
------------------
It may be that some of their methods are a helpful adjunct. But, many see they symptoms improve with the right kind of treatment for lyme and coinfections - along with support.
If there is an ILADS-educated doctor on their staff, one who is extremely lyme literate, that would help improve chances.
However, after seeing their "fibromyalgia" page, it seems they don't consider any of the chronic stealth infections that can be a cause, nor liver toxicity, etc.
Again, some of their methods may be good for some but - for anyone with any chronic stealth infection - I would not trust them to be the primary medical voice.
One's LLMD should have more insight into if their methods may be of help in healing. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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sparkle7
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posted
Thanks for your objectivity, Keebler! I haven't looked over their protocols enough to see this. I was mainly interested because they treat methylation as a cause for Fibromyalgia. I've been studying this...
I do think Lyme (congenital or acquired) is important in regards to potential causes for autism... I think there's alot of focus on mercury & toxins, though.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Indeed, the heavy metals and toxin part of this seems absent at this site. Liver health, too.
I could find no mention of these other areas that are so important.
However, you say they: "treat methylation as a cause for Fibromyalgia"
-- my eyes did not see that so glad yours did.
Well, it seems like they may be able to work with one piece of the puzzle - maybe just not the whole puzzle. And if methylation stuff improves, that's got to be a big help.
Now, it may also be that - once a patient gets in for interview / assessment - well, maybe then you'd find --- I just don't have the words for my thought here -- maybe they'd know more about stealth infection, environmental and liver stuff than they would put on the website.
You might ask for a free "informational interview" before you pay as a client. They may then be able to tell you more about the scope of practice.
Not sure who would "do" an informational interview but I think it's every patient's right to have more detail before signing on and paying big bucks.
As you are close to them, it'd be good to go see for yourself. Go early. Sit in various waiting areas. Strike up light conversations with patients who are waiting.
I've learned a lot that way.
I recall a conversation in my neurotologist's office where several others waiting just sang the doctor's praises. Their vertigo had been virtually cured.
That was for about the 3rd appt. I had there. So, I said to the doctor: "Can't you do for me what worked so well for those folks in the waiting room?" He said he wished he could but the kind of vertigo I had was not at all the same.
Still, I learned some good stuff about the doctor's skill & other interesting detail from "talking well with others" as I call it.
He was Dr. Epley of the famed "Epley maneuver" for BPPV (Benign positional vertigo) - and he's the one who suggested I be tested for lyme. He's since retired, never treated lyme (just not his area) but the only MD in my state who has had the courage to even seriously consider it as a factor. -
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sparkle7
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posted
feelfit posted a link to this interview through Scott F's site -
Thanks Keebler!
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Thanks so much for the warning of a loud ad at first - key detail for me. I'll take a look later. Thanks. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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