posted
I don't know if Lyme can cause it, but I've had monoclonal gammopathy since 1999, and I got Lyme around 2002-4??
I do suspect that Lyme can cause lots of ailments and pain, as I still have lots of joint pain, tinnitus, etc., even though I've been off abx for years now.
When I was dx'd with monoclonal gammopathy, I was told I was premyeloma, and I now get tested for that every six months.
But, I really don't know if it is caused by having Lyme.
My best,
lifeline
Posts: 983 | From FL | Registered: Dec 2002
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
newly diagnosed after bone marrow biopsy with MGUS and lambda light chains
My hematologist said there is a strong correlation with MGUS / Myeloma and Lyme.
The chronic infection/inflammation can cause this abnormality in the plasma cells
google lyme and myeloma for many implications.
Who would think that lyme can turn into cancer. More ways lyme disease continues to take away and destroy from my life!
Posts: 157 | From Colorado | Registered: Aug 2010
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
What r sx foy mono..gamm...
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
YES! The OSP of the spirochete can cause monoclonal abx formation, Most drs still go by the old definition of monoclonal abx being formed only in cases do gamma globulinopathirs, multiple myeloma, cancer, etc. I got into an argument with a LLMD over my sister., he was insisting she see an onco, etc because of the immune studies showing monoclonal abx, this happens when lyme is further along and has affected you more systemically than just fatigue and joint irritation, We persisted and nine months after being in abx my sisters monoclonal abx went away and Gammas returned to normal. The LLMD was really tickled at the results, said it was proof, etc. that antibiotic treatment can reverse this condition, which usually is treated as something really pathological.
Posts: 532 | From Texas | Registered: Oct 2004
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posted
Please tell me more about your sister experience.
I am very ill. Had chronic lyme at least 30 yrs.
Not diagnosed until reinfected in 2010 and almost died from the co infections.
Was on IV antibiotics back then about a year and went into remission with several minor flares subsequent.
Have had a relapse this April and have been bedridden since then and was given a port immediately. On 3 IV meds not really helping at this point.
Newly diagnosed by hematologist with MGUS & light chain disease.
Seeing immunologist next week. I'm hopeful it won't progress to active myeloma. But I am very ill. To give you an idea my CD57 counts can run as low into the single digits.
I think everyone with chronic lyme needs to get the MGUS test (SPEP with IFE).
I know that lyme will eventually take my life but there still is hope for there recently infected.
Take this disease very seriously! Be proactive and don't let the doctors just decide your fate. Fight tooth and nail to the very end!!
Posts: 157 | From Colorado | Registered: Aug 2010
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I'm sorry to hear about your relapse, have you been checked for MTHFR? We did a whole bunch of other stuff besides antibiotics, ie frequency machines similar to rife, homeopathics, lasers, footbaths, etc, do you have any other resources?
Posts: 532 | From Texas | Registered: Oct 2004
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posted
Yes I did mthfr testing. I have double/homozygous a1298c mutation. On flotx for that. I also do oral antibiotics, take many supplements, see several naturalists. I take herbal detox as well as detox baths & enemas. Tried massage, chiro, acup. Nothing.
Ordered a rife machine last week and waiting for it to arrive although I did do several treatments already at the nd office on a wellness pro and never helped or felt anything.
I'm still trying though. I do everything from traditional western medicine to eastern Chinese medicine.
I haven't yet tried dr k reccomended bee venom therapy yet. I posted already for help in finding a provider.
Is there something else I'm missing?? I've been following dr b treatment guidelines.
Salt/C protocol didn't work for me and put me in er. Tried raw diet gluten free. Nothing. They all just aggravated my ulcers, kidney stones, gallbladder.
Doing the dmps challenge now and feel like I'm dying.
I'm searching and trying new treatments. But nothing is working anymore like it did when I first was severely sick in 2010.
I can't help but wonder if this new plasma disorder is preventing me from getting better.
Any ideas anyone?
Posts: 157 | From Colorado | Registered: Aug 2010
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