dbpei
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Member # 33574
posted
Does anyone here have these symptoms? Sometimes I feel so alone with this.
I have a gentle pressure or 'squeezing' feeling in my skull on both sides of my head beside my eyes that radiates toward the back of my head. I also get this on my forehead. It is not painful, but just a sort of mild pressure.
This feeling is also accompanied by a 'tingly' feeling - almost as though I have seltzer or champagne settled in the lining of my brain.
This tingly feeling travels to my jaw - especially in one area where I had a dental implant 5 years ago. The implant area sometimes feels as though it is draining something ever so slowly. (I know this sounds totally out there)
There are also times that it feels like bugs are crawling under my skin - in my skull and face.
The buzzing, whooshing and ringing in my ears often changes with the 'tingly' or 'squeezing' sensations. I know that there is definitely some inflammation of the 8th cranial nerve that is behind much of this.
If I had to explain this to anybody who doesn't have lyme disease, they would probably think I am out of my mind.
I wish I knew what these symptoms were caused by. Mold, candida, heavy metals, bartonella, lyme, parasites, biofilms, dental cavitations, mycoplasma, allergic reaction to my dental implant...?
If anyone identifies with these symptoms or has any good reading suggestions to help me better understand what might be causing these sensations, I would love to hear from you.
Posts: 2386 | From New England | Registered: Aug 2011
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GretaM
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posted
Dbpei-i don't have the specific symptoms you mentioned.
But I wanted to reply to give you some support and to tell you I know you're not crazy-it's the darn bugs, not you.
The toxins these bacteria produce are really something else.
Everyday is a new experience...
Hang in there
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Thanks for the support, Greta. It just seems like such a long time that I have been experiencing these symptoms and nothing seems to be making them go away.
I am afraid that I should have tried the IV Picc line when I had the opportunity. Now my insurance would not cover even 1 month.
I have been on Samento and Banderol, Buhner and Byron White herbs (not all at same time) along with many homeopathics but making little progress. I am slowly working up to effective parasite tx with MMS enemas. Not sure if that will make a difference.
But I feel better than I did while on all those ABX. I just wish I knew if I was on the right path or not. My symptoms seem to be so different from everyone else' here. It makes me wonder if it is something besides lyme or TBI that I am battling.
I never even got a positive WB with Igenex. But did test positive on bands 41 and 18 with 39 ind.
Posts: 2386 | From New England | Registered: Aug 2011
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Ellen101
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Member # 35432
posted
If you are questioning the implant and if there is any correlation between it and the onset of your symptoms maybe it would be worth removing.
Posts: 1748 | From United States | Registered: Dec 2011
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posted
Hi dbpei I go today to be tested for lyme I have been ruled out for everything else. It is either this or MS. However I wanted you to know I feel the same thing you do in the head and jaw.
I thought I was going crazy and was nuts I get tricking feeling with tingling and numbness that runs down into my face from the top of my head.
My lips quiver and it feels so weird I get pain in the base of my neck also, That feels like something is squeezing and then my eyes hurts but not just my eyes its the eye socket pain
I have so many other things too, my whole central nervous system has went haywire. I am in pain 24/7
I just wanted you o know you a not alone. And it is a very scary thing and strange feeling,
Posts: 52 | From Ohio | Registered: Oct 2013
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dbpei
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Member # 33574
posted
Ellen, my oral surgeon told me he would not remove the implant if it were him. He said everything looks healthy where it is attached according to the pan x-rays. I sometimes wonder if I might be having an allergic reaction to my dental implant, though...
I am likely going to see a 3rd biological dentist that my LLND recommended and see what his take is on this. She mentioned ozone and neural therapy may be of help and strongly believes there is a dental connection to all of my symptoms.
The 2 biological dentists I saw already wanted me to get rid of all of my mercury fillings before doing any ozone treatment. The mercury removal is not easy and did set me back when I had some work done a few months back.
Hurting, thanks for chiming in. It does help to find somebody else who has the same symptoms. Have you had any sinus or dental issues before this? Have you experienced any hearing loss or tinnitus?
I had a lot of dental work in the few years preceeding my initial symptoms of lyme. I suddenly lost hearing Jan. 2011 and following that, I developed all of these troubling symptoms. If I ever solve this mystery, I will be broadcasting it like crazy!
Posts: 2386 | From New England | Registered: Aug 2011
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posted
dbpei, my ears are very full like I am underwater at times.. But I have not lost hearing.
I am suppose to go to the densit because of my TMJ but I have not went because I have seen 7 different doctor in 2 months so as of right now I am done with them LOL. just taking a short break.
I have though lost eyesight. My vision has changed 2x in 4 months that I had to et new glass. my left eye is really bad.
However it is weird because it changes I went for a eye check and it improved a little. but my eyesight will probably be the one to go not my hearing.
The other thing is my memory is shot. I use to be smart and real quick on my feet when it cam to solving things.
Now I cannot even spell a simple word or remember what I just read.
I don't know what I am going to do if this comes back negative. My PCP is at lost he don't know what o do any more.
Posts: 52 | From Ohio | Registered: Oct 2013
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
I am sorry you have to go through all of this hurting... It sounds like your vision is going to be your biggest challenge through all of this, just like my hearing has been for me. I know if you do a search on vision problems on lymenet, you will find many threads.
It is a good sign that you had some improvement. I hope that continues. I can relate to the memory issues as well. Word finding and concentrating are both challenges for me at times. Hopefully, once we are both on the right track - some of these things will reverse...
I hope you get some answers and can get on a good path of healing. Please feel free to PM me any time and keep us posted on how you are doing!
Posts: 2386 | From New England | Registered: Aug 2011
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posted
Hey dbpei I too have that weird seltzer water feeling in my head and it drives me nuts.
Did you ever figure out what that cause was and how to treat it?
-------------------- T. Brown
CDC Lyme Positive Co infections? Who knows... Bands 18+ 30+39+41+45+58+66+ IGG 23+39+41+IGM Posts: 351 | From Boston MA | Registered: Oct 2013
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Tbrown, I do not know yet what this is from. It will probably take some time for these symptoms to go away, as I have had them for a long time.
I see a new biological dentist in early Nov. And I see my LLND in late Nov. If I have any news, I will share. Good to know I am not alone with these symptoms!!
Posts: 2386 | From New England | Registered: Aug 2011
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posted
My guess is its Babesia. The head pressure and crawling sensations are said to be symptoms. But who knows...so many symptoms so many infections. Then there is the environmental stuff (mold).
I can tell you that I've had these symptoms too. The seltzer feeling is on my legs though, not my head.
Posts: 845 | From Northeast | Registered: May 2011
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Jamers
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Member # 28016
posted
I started Cumanda and Samento yesterday at 5 drops bc 1 drop didn't do anything. I got a terrible pressure headache, extreme whole head, neck, shoulders. These are symptoms I've had before, then started the seltzer water feeling tingling in the same area. I don't know what it was hitting but I "think" based on my symptoms it was inflammation and toxins from herxing. Head pressure and neck swelling has always been my herxing symptoms from Babs, Bart and LYme meds.
I started the herbs bc I have been off antibiotics for awhile and started to get really bad sinus problems. I know it can be allergies but I heard that Bartonella can also cause severe sinus problems.
After 4 years of this crap, I still don't know what causes what. But I am looking at mold illness bc of my recent reaction to fall weather and sinus problems but in the meantime and doing the herbs. I hope we can figure this out, this is getting ridiculous.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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Jamers
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posted
Another thought, this happens practically anytime I take something that makes me herx. I took modified citrus pectin and felt the same way. Seriously, considering being tested for the detox genes and taking cholestrymine. Have you ever taken this?
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Yes, Jamers. I take CSM and have been for 6 months or so. I only take one dose per day and I get the one made by Hopkinton Pharmacy that is compounded. I think it is helping a bit, but at this rate, you have to be patient.
Posts: 2386 | From New England | Registered: Aug 2011
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CD57
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Member # 11749
posted
dbpei, I have a lot of those symptoms, so no you are not alone. I don't really consider myself the classic Lyme patient with joint problems, fatigue, rash, etc, at all. Whatever I have is a fast multiplier and very immunosuppressive....nothing seems to kill it.
Posts: 3528 | From US | Registered: Apr 2007
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CD57
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posted
dbpei, I have a lot of those symptoms, so no you are not alone. I don't really consider myself the classic Lyme patient with joint problems, fatigue, rash, etc, at all. Whatever I have is a fast multiplier and very immunosuppressive....nothing seems to kill it.
Posts: 3528 | From US | Registered: Apr 2007
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
CD57, how long have you been treating? Have you done mostly ABX? Or herbs? I sometimes wonder if I should have done the IV Picc line and that is why I am still plagued with these symptoms.
It could also be bart or something else causing all of this. I sure wish we all had the answers.
Posts: 2386 | From New England | Registered: Aug 2011
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
The pressure sounds like babs, the tingling sounds like lyme, and the crawling sounds like parasites. It also sounds like lyme and/or parasites are hanging out in your jaw.
I had buzzing and whooshing in my ear, as well as ear pain. Even searing pain sometimes under my ear lobe. Parasite treatment has eliminated all but the buzzing. It is better though, but I have much more to do. Parasites LOVE the jaw, mouth and eyes, you name it.
It does sound like the MMS is helping, so I would keep doing it. The more parasites you kill off, the better you are going to feel. The dental issues are of concern. I would slowly get your amalgams removed by a biological dentist. The off gassing you get from them contributes to the way you feel.
Once they are out your body will start to release mercury stored up in your body. I felt better after each time I had amalgams removed. Killing off parasites and getting rid of metals isn't easy, but it is necessary, IMO. Then you can see how your implant is doing.
EAV testing might be something worth pursuing. It should give you a better idea of what is going on with your jaw/implant.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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dbpei
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Member # 33574
posted
Thanks Catgirl. I've had EAV testing by my LLND (trained by Dr. K) and it showed that I had bart, lyme and babesia as well as intestinal parasites. Also a fungus of some kind (mold?) and heavy metal toxicity.
I have seen 3 different biological dentists and have had 2 amalgams replaced so far. I had current testing done to make sure I got them removed in the right order.
The amalgam removal seemed to really set me back, even though I had it done by a dentist trained to remove mercury safely. I had hoped that this would make me feel better, but instead, I seem to have gotten worse. (maybe it is from all the emotional and physical stress of moving)
One of the dentists felt I should be sedated and have them all removed at once. Not sure if I could handle that.
I have had to slow down on the MMS because of contractors in the house, but pretty soon, I will be able to resume. I hope that makes a difference for me.
I am back to taking chlorella and cilantro and I think the combo is making me feel better. I also take cholestyramine. Many herbs and supplements too.
I will cherish the day I dont have to put all this stuff into my body!
Posts: 2386 | From New England | Registered: Aug 2011
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Catgirl
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posted
It sounds like you are doing everything you can. Follow your gut. The MMS is working, and so are the chlorella and clilantro. Stress from moving is major and sets people back. It brings out the lyme. You probably need more support for your body though (antioxidants, detox).
I wouldn't get all of your amalgams out at once. Sometimes it takes a couple of years to get them all out. You have to do them when you feel better. I did them in blocks. I knew that I would have to wait a while until I was able to to remove more, so I did 2-4 out at a time. We are all different though, and have to do whatever we feel will work.
It is tough to hit parasites and heavy metals at the same time. You could try stopping the MMS after your contractors are gone, then see if you feel good enough to start working on your amalgams. Contractors stress me out. Even just knowing they are coming the next day stresses me out. Or you could just do MMS until you feel good enough to get your amalgams out. Either way, hang in there!
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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dbpei
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Member # 33574
posted
Thanks catgirl! I got mixed up. It was one of the biological dentists who did the EAV testing and it was my LLND who did ART testing. Results were pretty consistent, but the dentist did not look at co-infections with the EAV testing.
Having work done on our house really set me back physically and emotionally. We are finally finished with all the work and there will be no more contractors here! No more paint fumes. My 2 kitties are happy and so am I! Now to sell our house!
Posts: 2386 | From New England | Registered: Aug 2011
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Judie
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posted
Gosh, one of the worst things I did was get my amalgams removed.
I wish someone had warned me of the negatives before I did it.
I was allergic to the replacement material. I'm still battling with this issue 6 years after the fact (I had one filling replaced 7 times while the dentists were trying to figure out what was wrong!).
I would do thorough testing to make sure you have a build up in your body of mercury before removing them (I wish I had done this first).
Also, get testing to make sure you're not allergic to the replacement material.
I had no pain in my teeth prior to the removal. Afterwards, I've been in constant pain and pressure with itchiness INSIDE my teeth.
Another thing to keep in mind is that every time you drill a tooth, there's a chance it will crack.
This happened to my friend when she had her amalgam replacesd. It turned into a horrible infection and she had to have the tooth removed.
If you have weak bones or teeth, consider this if you want to replace your amalgams.
By they way, I got no relief from removing my amalgams.
Posts: 2839 | From California | Registered: Jul 2012
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Judie
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posted
"The implant area sometimes feels as though it is draining something ever so slowly. (I know this sounds totally out there)"
By the way, this is what the dentist told me was one of the issues with the replacement fillings.
I had an allergy to many of the common ingredients used in current dental work.
She said this it slowly drips down and irritates the tooth pulp.
As soon as I replaced one of the fillings with stuff I'm not allergic to, the irritation decreased tremendously.
As for the brain pressure, I've been feeling the tingling, squeezing sensation constantly since I got reinfected with Lyme 2 months ago.
I had good dermatologist do patch testing using the allergeaze dental screening and metals testing.
It shows that I have a sensitivity to silver, nickel and aluminum. There are some traces of these metals in my implant but most of it is titanium, which I seemed to be okay with.
I still wonder about that implant. So many of my symptoms seem to originate in that area. I don't know how complicated it would be to remove it - as it is screwed into my jaw.
I spent a lot for it. Not sure I would want to go through getting another implant of a different type to replace it either.
Another thing I worry about is whether I might have dental cavitations that are causing all of these strange symptoms. I am seeing another dentist who my LLND recommended in a couple of weeks, who is able to test for and treat cavitations.
It will be interesting to get his take on all of this. He is also a naturopathic doctor. He seems to be an expert on ozone treatment.
How do you know you were re-infected with Lyme 2 months ago? Just curious...
Posts: 2386 | From New England | Registered: Aug 2011
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Judie
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posted
Hi Dbpei,
Gosh, that does sound like it would be an ordeal to replace. I hope the new dentist can help.
As for me, I was in a place that was filled with deer and got a big ol' bulls-eye rash shortly afterwards.
I just got my test results back and it looks like I'm dealing with Lyme and Rocky Mountain Spotted Fever (which I just learned can be chronic too).
The bad head pressure is unlike the dental pain from the other ordeal. This top, side, head tingling thing is new and horrid.
My friend gets the "crawling" sensations too. She's been diagnosed with Lyme, babesia and bartonella and actually had a word/symptom description for this sensation. I can't remember it though.
I see her swatting at things that she feels are on her but aren't and she explained what was going on. It's one of the infections, but I can't remember which one.
Posts: 2839 | From California | Registered: Jul 2012
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posted
I have all of those symptoms except for the draining around the implant.
I am treating heavily for Bart because of them. Have you treated Bart specifically? When I herx, or even detox like infrared sauna, they are heightened.
The seltzer, tingling, pressure, is also in my feet and shins. They burn like crazy at night when I'm cycling through the Bart.
Also, my eye sight deteriorated rapidly in 6 months because of the Bart. I went from a +1.25 prescription to a +4.25 in six months. That's when my LLMD, who had lyme, put me on the Bart treatment.
How is your vision? And is there any jabbing, pinching in your lower legs? Do you have foot or leg cramps?
Keep fighting the good fight, Susan
Posts: 83 | From Sarasota, Fla | Registered: Apr 2013
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dbpei
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Member # 33574
posted
Wow, Susan. Your vision really did get worse. I hope it will improve. I have always had poor vision in my left eye and that seems to be the side that is being hit the worst.
My vision is already bad on that side, so it is hard to know if it is worsening. I sometimes feel tingling and odd sensations in my left eye.
I am taking 20 drops ABART 2 x day now. I have taken crypto in the past as well as rifampin and doxy. Rifabutin and minocycline as well. But never for more than 4 months each time.
I have some terrible shin pain at times. I often feel it in bed at night. Then other times, I am pain free.
I had a hematoma to my thigh a couple of months ago that left my whole leg hurting and bruised. The veins are still discolored and there are some very tender areas in that leg.
But I don't usually get any burning sensations in my legs or feet. I do get foot and toe cramps. It is like my toes get stuck out of alignment and it really hurts until I can get them back in place!
Does this sound like bart to you?
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