Summer3
Frequent Contributor (1K+ posts)
Member # 35286
posted
Does anyone get tachycardia while they are sleeping? Last night I wore my personal HR monitor which is usually used for running ( a chest strap/watch) to sleep.
I had 15.25 minutes where my HR was above zone 3 which for me is 170bpm or higher. The max it got to (while sleeping) was 206. I'm in my 20's so that's not life threatening but still. My average HR while asleep was 65.
Anyone want to venture a guess as to what that is? It didn't wake me up. I just returned my heart monitor (30 day). It wasn't the kind that stayed attached. I had another one in the fall that did stay attached at night but I don't think it ever caught this or could transmit night events because I'm not in an area with cell reception.
I guess I will ask my EP about it. He thinks in general nothing is too bad with my heart because no structural heart damage. Will he take a running watch/strap seriously though? I have pictures of it.
posted
I had a lot of tachy in my sleep when I first got POTS and I ended up doing a sleep study. They found that I was getting adrenaline surges everytime I came into light sleep. A low dose beta blocker and low dose klonopin helped.
Posts: 581 | From CT | Registered: May 2008
| IP: Logged |
Summer3
Frequent Contributor (1K+ posts)
Member # 35286
posted
I can't take a beta blocker unfortunately. Even the EP doesn't want me on them. I lost circulation in my feet. It was bad.........I had a picture of it that he couldn't believe I waited that out.
I can try Flecainide if I want for irregular heartbeats. That's a risky med though with V-FIB and cardiac arrest as a side effect. I'm also on midodrine which I don't take at night so it doesn't have the HR lowering effect while I'm sleeping.
posted
I had a lot of trouble with beta blockers at first. My blood pressure runs low and they kept giving me big doses like 25 mg telling me it didn't come any less.
Through a friend I found out about atenolol suspension. It is a liquid and it doses at 2 mg of beta blocker for every ml of liquid.
So I have found that 4-5 mg just takes the edge off the tachy. I take it three times a day about every five hours.
I wonder if this would be an option for you?
Posts: 581 | From CT | Registered: May 2008
| IP: Logged |
posted
I use to have tachycardia and anxiety. It all ended when I started supplementing with Lugol's iodine.
Posts: 803 | From USA | Registered: Oct 2013
| IP: Logged |
Summer3
Frequent Contributor (1K+ posts)
Member # 35286
posted
I haven't tried atenolol. Did you have severe depression on that? That was my main problem with Toprol and I will NEVER take that again even though it helped with my fainting when combined with midodrine. I literally was wishing I'd never get up again on that.
It also gave me horribly painful blue feet which turned out to be a lack of circulation so even the EP wanted me off it.
I wonder if it's dangerous to have a fast heart rate? The EP doesn't seem concerned and says it's probably POTS when combined with the visible blood pooling/purple mottled skin on my legs.
posted
I had a lot of trouble with toprol. Because the atenolol is such a low dose I don't seem to have any side effects.
I think a too high heart rate is not good. I've heard that it can eventually lead to problems with the muscle.
Posts: 581 | From CT | Registered: May 2008
| IP: Logged |
posted
I get it in my sleep when my blood pressure drops -- often into the 70s over 30s -- but will wake up with my heart racing and the blood pressure cuff records both of these, the low blood pressure and accompanying tachycardia. So in my case it's connected to either other cardiac issues and/or POTS/OI.
Posts: 929 | From Massachusetts | Registered: Oct 2007
| IP: Logged |
Summer3
Frequent Contributor (1K+ posts)
Member # 35286
posted
I bet that's what's happening to me too. My BP is probably really low while I'm sleeping.
I'm worried about my EP appointment in a few days. I don't have any good treatment options for my fainting issue. I tried to get it under control with exercise in combination with high dose midodrine and couldn't.
I feel like such a failure. I can never get any improvement in any symptom from medications or herbs.
To convert glutamate (brain "accelerator" and a brain FUEL) to *GABA*(brain "brake")requires an enzyme called GAD which requires B6 - active form is called PLP/P5P and Now has a really good PLP form of it (includes additional nutrients to help B6).
SOME persons have antibodies to GAD (GAD65/GAD67)which may have an underlying genetic connection.
These persons look to need/function on high levels of glutamate...you could call them glutamate "junkies". They also look to thrive on high adrenaline too. This is NOT A NEGATIVE COMMENT since they are considered "Type A" and are VERY SMART, VERY TALENTED, VERY DIVEN and often, very funny.
High levels of acetylcholine is also linked to high intelligence - Einstein.
Coffee and doughnuts (caffeine is a glutamate trigger...beer triggers GABA...not suggesting, just showing you the "whys")
posted
Have they considered trying octeotride?
Posts: 581 | From CT | Registered: May 2008
| IP: Logged |
tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Parasites caused it for me. It went away with parasite treatment.
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
| IP: Logged |
Summer3
Frequent Contributor (1K+ posts)
Member # 35286
posted
I spoke to the EP. He basically said that my HR monitor watch was probably picking up artifact or malfunctioning with the 206 HR at night (I disagree). Even if it wasn't he says that because I have no structural heart damage, that the tachy and the multifocal PVC's up to triplets are not a danger to me.
He gave me the choice of Bystolic, back on Toprol (which gave me suicidal depression), Flecainide or an SSRI. I declined all of them since they are not curing anything and are only for my convenience.
He increased the midodrine to 4x per day. I asked him if it could spike my BP too high when combined with exercise since I've been running daily. He didn't know so I will do a stress test in a few months. It's a little nerve-wracking to be on a medication that very few people take but it's keeping my fainting bp drops at 5x per day instead of 10x.
posted
why wait? do the stress test now?/ is there a reason he didnt try a calcium channel blocker like diltiazem??? if it were me i would get an RBC Magnesium, RBC Potassium, done also.. I would increase my mag glycinate also.. but that is for me
Posts: 871 | From orange county, ca. | Registered: Jan 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic