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» LymeNet Flash » Questions and Discussion » Medical Questions » babesia duncani

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Author Topic: babesia duncani
panicphreak82
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Has anyone had success here using plaquenil for babesai duncani?
Posts: 76 | From Denver | Registered: Feb 2012  |  IP: Logged | Report this post to a Moderator
Summer3
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I herxed very severely on it which was a surprise as I considered it to be a weak drug that I was taking for Lyme cysts. I took it for about 8 months. I still have B. Duncani.

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desertwind
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No - did not help at all.
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
panicphreak82
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Hmm. interesting.

Have your babs duncani titers fallen, Summer?

Thanks for the input, desert.

Posts: 76 | From Denver | Registered: Feb 2012  |  IP: Logged | Report this post to a Moderator
Summer3
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I just found out I had it after two rounds of Mepron, tons of artemisinin, cryptolepis, mora, cumanda, quina, etc. So I don't think so. I've only tested for it once and still tested positive.

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panicphreak82
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I am on plaquenil, malarone, mepron, bactrim, biaxin, alinia, artemisin, enula, crypto, byron white a-p.

RIDIC!

Posts: 76 | From Denver | Registered: Feb 2012  |  IP: Logged | Report this post to a Moderator
desertwind
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I've been on all of them. Babs free for about a year after being sick for a decade. I take maintenance malarone, art and a-babs.

Might want to try Coartem an A-Babs?

Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
seekhelp
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If you can't rid it on all that, I can throw the towel in and call it game over. That's insane!! You must have one heck of a liver too.

quote:
Originally posted by panicphreak82:
I am on plaquenil, malarone, mepron, bactrim, biaxin, alinia, artemisin, enula, crypto, byron white a-p.

RIDIC!


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Summer3
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Yeah I was thinking that myself. That's a fairly risky protocol! I'm surprised a LLMD would agree to that. I hope you are able to get your liver enzymes checked because mine reacted very badly to Mepron (and I have no known liver issues).

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gmb
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I have also done two round of Mepron including double dose for 9 month with many combinations with Zith, Bactrim, Alinia, Buhners CSA blend; Salt/C, and pulsing TindaMax at various times; and also two rounds of Coartem.

I would get to about 80% and plateau, then backslide when changing protocol.

Last fall I went on Mino, Plaquenil and Rifampin to see if Bart was holding back babs treatment and hit something and had worse herx in a real long time.

Now I'm doing best ever at about 90% on good days, with greatly reduced head pressure and brain fog, but still some lingering babs sx.

Today I changed mino to doxy and will add in Serrapeptase. In another month I'll do another two rounds of Coartem, then back to Doxy/Plaq/Rif combo.

Maybe the plaq helped or maybe it was the Rif.

its hit or miss finding the right combo.

gmb

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Stainsofpain
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I'm not feeling better at all - treated for 6 months now - coartem, malarone, bactrim, rifampin, tindamax, minocycline, nystatin, numerous supplements - and help or suggestions... the pain is awful and energy is low... neck pain is bad too. Doc wants to put me on a PICC line next month
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lostlyme
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Look into drug interactions , some of meds can interact and reduce its effectiveness when taking together.

And some of those meds when taking together have some bad side effects.

Same applese for vitamins and supplements when taking meds.

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mlg
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Try anti-worming, anti-parasitic rx's and herbs. Also infrared sauna and colonics.

Supportivek, PEMF, juicing, probiotics, etc.

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geronimog
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I'm very new to treating Lyme and co with ABX. Please be patient with me.

I've noticed some folks take blood thinners when treating babesia: serrapeptase, lumbrokinase, etc. What's the rationale behind this, is it a biofilm thing? I've never read of babs producing a biofilm.

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seibertneurolyme
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Many babesia patients have headaches. Cerebral babesia is kind of unproven in humans, but I definitely think it does exist.

The lumbrokinase etc is more for hypercoagulation - that can happen with any infection, but is very very common with babesia.

Babesia also has adhesive factors - it sticks to the capillary walls in much the same way that plaque does - that is why it is super important to thin the blood while treating babesia. Supposedly ECGC - green tea extract - need very high doses - keeps the babesia infected cells from adhering.

Bea Seibert

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geronimog
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Thanks Bea, I'll definitely incorporate that into my regimen.
Posts: 64 | From Montreal | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
Tincup
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Gero- Here is some babesia info that might be of interest.

https://sites.google.com/site/marylandlyme/tick-borne-diseases/babesia

Here is info specifically on heparin (blood thinner) and babesia.

https://sites.google.com/site/marylandlyme/tick-borne-diseases/babesia/heparin-therapy-babesia

https://sites.google.com/site/marylandlyme/tick-borne-diseases/babesia/heparin-inhibits-babesia-growth

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Catgirl
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Geronimog, some patients have proto (FL1953) and simply don't know it. Babs symptoms are common with proto and are actually proto, not babs. The treatment can be similar with a few things, but proto is so much more work.

Bart symptoms are also common for proto patients. So long story short, the enzymes are necessary for people with proto.

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geronimog
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Thanks Tincup, that's great info! I'm definitely going to be using a blood thinner.
Posts: 64 | From Montreal | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
   

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