posted
Has anyone had success here using plaquenil for babesai duncani?
Posts: 77 | From Denver | Registered: Feb 2012
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Summer3
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posted
I herxed very severely on it which was a surprise as I considered it to be a weak drug that I was taking for Lyme cysts. I took it for about 8 months. I still have B. Duncani.
Thanks for the input, desert.
Posts: 77 | From Denver | Registered: Feb 2012
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Summer3
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posted
I just found out I had it after two rounds of Mepron, tons of artemisinin, cryptolepis, mora, cumanda, quina, etc. So I don't think so. I've only tested for it once and still tested positive.
posted
I am on plaquenil, malarone, mepron, bactrim, biaxin, alinia, artemisin, enula, crypto, byron white a-p.
RIDIC!
Posts: 77 | From Denver | Registered: Feb 2012
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desertwind
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posted
I've been on all of them. Babs free for about a year after being sick for a decade. I take maintenance malarone, art and a-babs.
Might want to try Coartem an A-Babs?
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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seekhelp
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posted
If you can't rid it on all that, I can throw the towel in and call it game over. That's insane!! You must have one heck of a liver too.
quote:Originally posted by panicphreak82: I am on plaquenil, malarone, mepron, bactrim, biaxin, alinia, artemisin, enula, crypto, byron white a-p.
RIDIC!
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Summer3
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posted
Yeah I was thinking that myself. That's a fairly risky protocol! I'm surprised a LLMD would agree to that. I hope you are able to get your liver enzymes checked because mine reacted very badly to Mepron (and I have no known liver issues).
posted
I have also done two round of Mepron including double dose for 9 month with many combinations with Zith, Bactrim, Alinia, Buhners CSA blend; Salt/C, and pulsing TindaMax at various times; and also two rounds of Coartem.
I would get to about 80% and plateau, then backslide when changing protocol.
Last fall I went on Mino, Plaquenil and Rifampin to see if Bart was holding back babs treatment and hit something and had worse herx in a real long time.
Now I'm doing best ever at about 90% on good days, with greatly reduced head pressure and brain fog, but still some lingering babs sx.
Today I changed mino to doxy and will add in Serrapeptase. In another month I'll do another two rounds of Coartem, then back to Doxy/Plaq/Rif combo.
posted
I'm not feeling better at all - treated for 6 months now - coartem, malarone, bactrim, rifampin, tindamax, minocycline, nystatin, numerous supplements - and help or suggestions... the pain is awful and energy is low... neck pain is bad too. Doc wants to put me on a PICC line next month
Posts: 21 | From Maryland | Registered: Mar 2014
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posted
I'm very new to treating Lyme and co with ABX. Please be patient with me.
I've noticed some folks take blood thinners when treating babesia: serrapeptase, lumbrokinase, etc. What's the rationale behind this, is it a biofilm thing? I've never read of babs producing a biofilm.
Posts: 65 | From Montreal | Registered: Nov 2011
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posted
Many babesia patients have headaches. Cerebral babesia is kind of unproven in humans, but I definitely think it does exist.
The lumbrokinase etc is more for hypercoagulation - that can happen with any infection, but is very very common with babesia.
Babesia also has adhesive factors - it sticks to the capillary walls in much the same way that plaque does - that is why it is super important to thin the blood while treating babesia. Supposedly ECGC - green tea extract - need very high doses - keeps the babesia infected cells from adhering.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Geronimog, some patients have proto (FL1953) and simply don't know it. Babs symptoms are common with proto and are actually proto, not babs. The treatment can be similar with a few things, but proto is so much more work.
Bart symptoms are also common for proto patients. So long story short, the enzymes are necessary for people with proto.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
Thanks Tincup, that's great info! I'm definitely going to be using a blood thinner.
Posts: 65 | From Montreal | Registered: Nov 2011
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