posted
Spent 12 hours in the emergency room at one of the best hospitals in the country due to another heart/stroke like attack.
My sx were delirium/extreme burning from left shoulder to upper back to elbo4w/heart racing/pressure/left side tingling/loss of vision in left eye for 30 seconds/fever/syncope
I usually tell er docs about lyme but this time I didn't and so of course they were extremely diligent and thorough.
Here's what they found.
Chest/abdomen us and CT - nothing (least that's what they told me) Pelvic exam - uti but said minor
Meds dilaudid 4 grams (didn't even help the pain or my mood like this med should. This just confirmed my suspicion of my body not metabolizing meds) why why why?!
Toradol (of course)
3 bags iv fluid due to dehydration
Almost gave me bentyl which im highly allergic too. Thank God I ask about every med they feed me because they never EVER tell you what their giving.
They hide it. And when you ask they always think you're asking to see if it's a narcotic. I mean I guess they have reason...everyone I saw there seemed to be whining and begging for morphine.
Anyway
Here's what i noticed... while being hooked up to a moniter for 1 1/2 hours my 02 levels dropped sporadically throughout that time from 98 to 75.
It would be at 98 for a few minutes then drop pretty rapidly down to the 70s and stay there for about a minute or 2. Why? And no it wasnt due to malfunction or me moving around.
Arrythmias of course. 3. This didn't catch there attention. I was hooked up by a tech, it wasn't ordered so they didn't have to care I guess.
Don't care so much about arrythmias bUT aren't the 02 levels worrisome
Monocytes - low (for first time) Last they tested at 8% w the ranges between (4 and 8%)
U/s showed
Blood (could have been due to my pd which ended 3 days ago) Ketones (15 mg) Protein (30 mg) Cloudy Ph 5 Billirubin - small Wbc - flagged high Rbc U squamous episode - many Mucus - moderate Leukocytes esterase (trace)
They prescribed me 10 percocet which I won't bother filling, and nitrofurin. Ugh what is this med gonna do to me? Don't even know if I should bother
What is going on. Please any words will help. I'm so beyond tired, fatigued, weak, depressed, stressed, left w stroke sx, unwilling to live and contemplating suicide daily, ect ect ect.
-------------------- Back At It Posts: 203 | From NJ | Registered: Feb 2015
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- "3 bags iv fluid due to dehydration"
Why were you dehydrated? Dehydration could explain a lot of this but the reason needs to be identified. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- "suspicion of my body not metabolizing meds) why why why?!"
Liver - and kidneys. When they are stressed, we just cannot metabolize meds well. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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me
Frequent Contributor (1K+ posts)
Member # 45475
posted
Geez. I'm so sorry you are going through so much. Sending you hugs and positive thoughts. Keep fighting, please. You are in my prayers.
Posts: 1431 | From USA | Registered: Mar 2015
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me
Frequent Contributor (1K+ posts)
Member # 45475
posted
Is there a friend or family member who can be with you right now?
Posts: 1431 | From USA | Registered: Mar 2015
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- If you have magnesium at home, that may help to some degree. And, be sure to keep liver & kidney support steady. Not strong "detox" action but gentle and consistent support.
I hope you can rest well and then be able to sort this out bit by bit. It's got to make sense.
BARTONELLA SEEMS THE ELEPHANT IN THE ROOM
You posted on 12 Feb. about classic bartonella streaks on your legs. That's a good place to begin.
Do you have a LLMD? Even if not, just hold on.
I've had several ER experiences - and so have many others with lyme - where there was much physical pain and puzzling symptoms only to be pushed away.
Remember the ER is not there for diagnosing or even treating long standing issues. They are there to put people together for the moment.
IMO, they miss the mark a lot with internal stuff but they also are great in other things.
Magnesium has been my very be ER-avoidance action. I've learned so much to keep me far, far away.
I suggest follow up with your LLMD. They should know what has happened and can best guide you. If you don't have an LLMD, then some kind of plan still needs to be formulated - it may seem daunting yet it's just one foot in front of the other -- after some rest and excellent nutrition. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Keebler - not eating or drinking much due to a few reasons. 1) I lost the will to. My brain/body just doesn't care about anything lately, including eating. I'm just too mentally tired to even make a sandwich. Even more tired to bother chewing and swallowing. Sounds extreme but it is how I feel :/
2) sometimes have flank pain and upper back pain after eating. 3) now I've lost my appetite...and 11 lbs in 3 weeks. Thanks for responding (: I know its mainly the liver and kidneys that metabolize, but it's been this way for months and I just can't seem to heal them.
Me - thanks for the encouraging words. No my family all think I'm crazy, and are frustrated. They make things much much worse by saying hurtful things. .esp when I have these 'attacks'. Even though they've all been sick with lyme, they should understand, but sadly no. Guess I don't blame them. Their just tired of my EXTREME sx, like me.
-------------------- Back At It Posts: 203 | From NJ | Registered: Feb 2015
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posted
Keebler - I am very aware of ers and how they work. I dont go thinking they'll diagnose me or save me. I go there thinking they'll ease the symptoms so I don't od again. I cannot, for the life of me take the stroke/heart attacks. I don't care if there really not or undiagnosed but that's what they feel like. I just know it's mini stroke/heart attacks I'm experiencing. And It's truly unbearable.
After being sick the first time w lyme (when the sx were half as torturous of what they are now) I visited the er numerous times which is when I swore them off for good. When I had a very bad bout of pnuemonia during my non lyme years after tx, i was ordered by my primary to go to the er for treatment. I refused. I went home, rested, and ate well instead and was better in a week.
You and lymetoo mention Mag in every post i read, so i guess it helps some. It does nothing for me tho. The only vitamins I find effective are acidophilus tumeric, coq10, and alpha lipoic acid
Thanks again for responding and all your suggestions! I always appreciate them (:
-------------------- Back At It Posts: 203 | From NJ | Registered: Feb 2015
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
Thinking about you HK...and sorry.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I'm sorry to hear that eating and hydration are so hard for you. Food and water seems so key that I hope you might have friends / family who could help -- tell them to please set aside their judgments about diagnoses - and at least help you with the basics for life.
In some small but vital way, this might help at least part of that:
There are many types of magnesium. Maybe what you tried is not the right kind of your body, situation. Just something to consider. And to take a look at later on, why magnesium is suggested in many of my replies:
Magnesium – the Ultimate Heart Medicine -
Posts: 48021 | From Tree House | Registered: Jul 2007
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bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Hk...hugs. ..ok the nitro is a broad spectum abx likely for uti..how much did they give you? ...the ua definitely is a troublesome diagnostic...someone is using dessopression to help retain fluids..i have been using sea salt..
i know what you are feeling its like your body is betraying you and it seems like some sci fi pic you dont want to star in anymore. Every logicial thing says freak out something is wrong ,flight or fight... im sure nothing will reassure you
I am pretty inconsolable too.you are not alone many here understand your pain...just a few months ago lymeboy was worried as his heart was in some kinda shape ..he now has 3 months of mhbot...can you get a rife? Can you knock off a few symptoms with herbs?...
The er is for heart attacts and brocken limbs.. if they cant medicate or cut it out they dont know what to do...the blood protien and mucous in urine is telling you that your kidneys are likely infected.did they tell you what the organism was in coulture?
So brussels may be on to something with zinc and maybe nitro will clear infection .but .thinking silver ,Andrographis, d-mannose ,smilax and apple cider vinegar. .my cousin is on third round of cipro and still it is resistant.
I am praying that you find the same grace to face tomarrow that we all know ,that you once were and shall be more than this broken shell before you..it is not real just our interpretation of reality..love over fear . It cannot last forever .A dear one said either way you /i / we will be healed.
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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posted
It is broad spectrum? Ok. I thought it was solely used for utis. All I know is my mom became pretty sick for a couple weeks after taking it awhile back. Believe it was some sort of herx. Haven't picked it up yet. One of these days. Maybe.
You are right about the 'right' words, for there is no comfort or reassurance. Not now when there's no hope or relief. My thoughts are what they are now due to the sx I have and I can't change them.
The more defeated I feel and the more scared I am of the things that i feel are killing me, the more I feel I wanna kill myse5lf. And there's no stopping those feelings. It's exhausting. Waiting for death is taxing. I just want to wait for life to begin again like I always have when sick. But I cannot.
Typing about how I feel is depressing...to me, and others so I'm sorry, but letting it out is good I guess. Idk It's all just exhausting. Maybe one day I won't feel this way, but that day muSt come soon. Because death is winning, even though I'm still alive. I know this because I no longer fear it. Sure I used to think about it when real sick, but it was controlled by fear.
Now I'm not scared tho . I'm numb. And in pain. And the pain changes, and then it changes you and everything about you. It changed me to a state where I am no longer myself. At all. I feel like a different person which has shocked my system to a whole nother level.
To me living fully, or just simply living means happiness and feeling....feeling every experience. I can't feel anything but unbearable pain and sadness. For months.
I'm sure a lot can relate, but everyone experiences pain differently so it's not exactly relatable. Sorry rambling. Just alone tired and scared.
Yesss about ers. The docs get so unbelievable excited when there's a cardiac arrest, or needed surgery. I just witnessed it yesterday. It's quite funny and strange, but it makes sense. I'm sure it's depressing for these docs to not be able to help someone feel better. To save a life. They did endure 10 plus years of schooling with the idea they'd be 'fixing' people.
They did not tell me. He said it was barEly recognizable which is probably because I had taken zithromax for a couple days.
Okay I will try those herbs. Thanks to both you and brussels! I actually took a shot of acv a few days ago and was sicker than ever the following day with my depression spiking from a 10 to an 11.
I cannot thank you enough for your message bUT thank you, thank you thank you. I am praying for YOU and everyone else on here also!
-------------------- Back At It Posts: 203 | From NJ | Registered: Feb 2015
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posted
Keebler thank you again! (: Maybe a better brand and taking it consistently will help some.
-------------------- Back At It Posts: 203 | From NJ | Registered: Feb 2015
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
HK...
For what it is worth, I had these types of flares (especially on my left side) when I was very ill..pain/burning down the arm; felt like my body was being crushed in a trash compactor, etc.
In retrospect, my theory is that it is caused by vascular spasms which temporary restrict/cause irregularity in circulation/blood/oxygen flow...
It felt like a "whole body migraine".
If everything else is ruled out, this may be what is happening...
What ever the case, you must never let this destroy your will...never, never give up or give in. Wellness is possible...
Posts: 1880 | From Earth | Registered: Jul 2013
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posted
HK .. Please keep up the fight for your children!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
I would just LOAD myself with things like Megahydrate and / MSM. Powerful antioxidants and binders.
Then slowly treat my liver first, let the liquids flow there. the liver is the main organ that keeps poisons that kills cells and tissues inert.
With the liver malfunctioning, most toxins just stay in and kill /oxidize all organs.
Probably simply start juicing with fresh veggies that you are not allergic, adding some reflex massage on the feet for the liver.
In your condition, i would stay away from all chemical drugs as much as possible, as they make your liver stressed.
Ask yourself, what do you really need? In times of desperation, I got my answers by pure intuition. My inner voice said always to stay away from drugs, and that killing therapies only lead me not far.
The Megahydrate could give you a fast relief, as it is the most potent antioxidant on the planet.
Posts: 6199 | From Brussels | Registered: Oct 2007
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