posted
I think this is all so overwhelming and how does navigate through this stuff with a fogged head that never goes away.
My head feels like someone has pumped air in it, ears crunchy too sorta burns and crawls inside. It never breaks and it has stayed constant since i had this seizure following some IV treatments I did 2 years ago. Head wasn't exactly clear before that but not this bad.
I went from being a nurse in a hospital for 10 years to working part time to do treatment to staying home and getting to the store etc. and now even the smallest tasks seems like climbing a mountain. like food or getting to the store.
I have only gone downhill with treatment...its scary. And I have become so fearful of trying new things because I am so sensitive and things go wrong and put my body in a state of fear and relentless anxiety.
Its hard to know how to pull myself up and start somewhere. But where? parasites, metals, lyme babesia, food sensitivities etc, histamine. It's so hard to navigate when you cant think at all.
How do you guys figure it out when you cant think?
Posts: 137 | From ATX | Registered: Nov 2011
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posted
Mast Cell Activation Disorder is another possibility.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Muscle test intuition , microscopy,? Labs ... ...sulfa drug did me in i think it chase toxo into brain more ...bvt has helped the fog ...what iv tx did you do ...maybe consider rife bvt or both...gotta treat
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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posted
Minocycline cleared my brain and stopped the crushing fatigue. When I relapsed, Cat's Claw cleared my brain fog and I now take the Buhner herbs plus supplements. I know
what you're going through. If you can't do anything else for yourself, and you can take herbs, you might want to try just taking one capsule per day till you're strong enough to take more.
Posts: 653 | From Northern Virginia | Registered: Oct 2014
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posted
I know how you feel Keikko. I feel the same way. It's all so overwhelming. I basically just take shots in the dark, sorta based on things that have helped in the past, and if I'm lucky I get a "hit". Then my brain will clear just enough to think about the next treatment to try.
My doctor does provide some guidance, but it's all so complex that there's no way I could cover all the possibilities with him. He does give me a good base to work off of though.
I'm working on making a tool (online) to help Lyme patients organize all this mess. I'm really sick though, so it will be a long time before its complete.
Posts: 748 | From Texas | Registered: Feb 2015
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Thanks BlueLyme, I have been interested in both of those therapies so I'll check them out further too. I've become so reactive its like inflammation in head so I'm worried BVT might swell up head worse? I'm not sure. The IV was IV artesunate mixed with procaine to get deeper into the tissues. And they had me do IV ozone same day...I was at a clinic
Thanks Tulips. Good idea. I have been on Andrographis consistently for many months and liposomal artemisinin pulse. Maybe I need to switch it up cuz head never clears, seems like inflammation in head gets worse. I have some Cats Claw too.
Thanks SickSam. Thats great you get a hit now and then but it is such a challenge when you cant think. I'm sorry to hear you are dealing with this too. It's no fun and a bit scary. Hang in there. It feels like inflammation to me because ears are crunchy too.
I have a protocol that has several things on it but nothing really seems to switch much and I have been doing detox, binders, coffee enemas etc. I try not to worry and hope it will break but this one is taking years. That tool sounds great SickSam!
I appreciate the replies and maybe ill try to add something in. I stopped everything past two days and that didnt change anything either.
Posts: 137 | From ATX | Registered: Nov 2011
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posted
Just curious - have you checked your thyroid hormone levels out? I found out I was hypothyroid and when I went on Armour thyroid, I felt I got my functional brain back again. That's me - we're all different.
Also, I think taking turmeric is pretty safe to do - it's a cooking spice and you can't OD on it - it's a wonderful anti-inflammatory and good for us even if we didn't have Lyme.
Posts: 13116 | From San Francisco | Registered: May 2006
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