posted
Hello, at the beginning I would like to start with severe words about my condition after being diagnosed and I'm aiming to people who had experience with Rife Machine.
I've been diagnosed with Lyme Disease at end of 2017 with Western Blotte test. After diagnose I went on 1 month treatment by Doxycycline but it didn't help.
With some individual research I got to know about Rife Machine from people who turned out to being ones who was able to recover thanks to her.
I went to private clinic in my country (Poland) and since december 2017 I've been on treatment up until now. Thanks to this I got rid of many symptoms (I had Neuro-Lyme with pain in the limbs and stiffness) and was slowly gotting free from disease.
Even my doctor said I barely had any traces of Borrelia a while ago when I had check-ups. But something weird happened 3 weeks ago. Some of the neurological symptoms came back being even worse than been before.
I started to have burning sensation in legs and hands. In addition to it, I started to feel weakening of muscles with weird sweating in hands and ticking at left side of face.
Especially with muscles under eyes. All preceded weird pain in lungs and flu-like symptoms (cough and phlegm in throat) but my general practitioner nothing heard in my chest after visit. It happened a while ago with pain in chest which gone after some time.
It happened realy qucikly and started to being burdensome. I don't know if it is lyme anymore and I'm considering looking for neurologist 'cause it stars to worry me.
Is there option that it may be some of "recovery mode" that cause that kind of inflammatory in nervous system? Did someone had something similiar?
And of course, I had some co-infections which I was treating. Mycoplasma, Bartonella and Babesia. And I'm not sure but doctor said something about Anaplasma, I guess.
Sorry for language barrier. I tried to put it as neat as much I could.
Regards for every who struggle with it. Wish you well-being.
****edited for those unable to read large blocks of print***
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Did you treat with rife the mycoplasma, bartonella etc, the whole laundry list of co-infections that come with this illness?
Any doctor that would tell a patient that they only have very little of the Lyme left in them is what is called an illiterate doctor.
Rife is not a short term treatment. But one needs some type of naturopath, functional doctor, alternative type to continue trying to figure out what type of bacteria(s), viruses, mold/fungus/candida is continuing to keep you ill.
I hope you find that healer to help you figure out this very complicated illness.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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Keebler
Honored Contributor (25K+ posts)
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- I agree with Pam in all her points. All of them.
Over time, Rife has helped many, along with support habits, of course. Start with Rosner's book but also check out his more current postings at his site and on YouTube.
How to find an ILADS educated LL professional in complementary fields (naturopathic, acupuncture, etc.)
Also includes article and book links by all kinds of LL authors - and information about herbal and nutritional supplements. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
>Did you treat with rife the mycoplasma, bartonella etc, the whole laundry list of co-infections that come with this illness?
Actually, I did. They told me that we went through frequencies that aimed to all co-infections. It turned out while treatment that bartonella was one which was causing my muscles to feel "stiff". And this symptoms are gone a long ago. But now it's totally different. It's more than I'm starting to feel like my all body starts to shut. It's weird because a month ago I felt amazing and was hoping for recovery.
Thanks for links! I've already read "When Antibiotics Fail: Lyme Disease and Rife Machines" to help me truly understand structure and work of machine. While treatment I was taking some herbs from Buhner Protocol like Japanese Knotweed Root, Smilax, Chrolella (detox from neurotoxins). Now I use Cordyceps, Side Acuta, Isatis, Houttuynia, Chinese Skullcap and Cistus mixed with Dipsacus Fullonum having suspicion that it could be maybe mycoplasme. Obviously, I keep my nutritions under control taking Vit C, B12, Magnesium and Potassium. Appointment at neurologist is month away now so I hope symptoms will restrain for now.
Regards
Posts: 7 | From Poland | Registered: Feb 2019
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
I would look into chronic herpes infections.
all these can become chronic, difficult to find in blood and ALL affect the nerves.
We are all exposed to many types of herpes viruses, and I don't believe there's a single person that's more than 40 that is herpes free.
Posts: 6199 | From Brussels | Registered: Oct 2007
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My visit in neurologist been week ago and they targeted me to Magnetic Resonance test. It turned that I have single hyperintense changes in t2 and flair about 2mm size in subcortical white matter of left frontal lobe. I remind I had neuro lyme. This changes could been made due to lyme? Because of nerves my symptoms developed since then. Nearest appointment to doctor I have the day after tomorrow and I'm worried as hell.
Posts: 7 | From Poland | Registered: Feb 2019
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- First, from your subject heading "after recovery syndrome" - so often there has not been a real "recovery" at all if there are still symptoms. Too often, inadequate treatment and ignorant doctors (even if in the nicest way possible, they just do not know enough about lyme) . . .
well, they just tell the patient that the (inadequate) treatment or lack of identifying other tick-borne infections or other chronic stealth infections that also might be along for the ride,
well, the patient is left thinking they SHOULD be recovered when it's never really been achieved (yet).
Still, the first thing I learned about "neuroborreliosis" (neuro-lyme" is that it can mimic M.S. and if doctors don't know that very wrong diagnoses can take place.
"While matter lesions" are very common with lyme, very, very common. And, most often with proper comprehensive treatment and good support methods, shrinking of such troublesome "white matter" spots or lesions can happen.
I hope you can find a doctor who truly is knowledgeable about lyme BEFORE attempting any treatment that might be targeting your symtpoms.
You say: " . . . since december 2017 I've been on treatment up until now . . ."
It can often take several years of treatment to see remission.
Rife can be very helpful for many, but rife treatments cannot be rushes. You can only treat with rife for lyme every 10 days or 12 days . . . so your kidneys and liver have time between treatments to help "move out the debris" that is "killed off" during the rife treatments
of no more than about 20 minutes per session - for lyme.
Other infections can be addressed in those days off from lyme frequencies, though.
I know all this is concerning - the symptoms and all that go with them - yet try to turn the way you see this into a call to action rather than to fear. The symptoms you have make a lot of sense, actually. And there is hope for succes.
AVOID STEROIDS. Any Rx suggested, research it before you even consider it.
ILADS - for good detail about lyme and treatment detail, too.
They can help you find a doctor even in Poland, too, hopefully. Still, be sure to include proper support and timing with rife treatments. The rife links above have support detail.
Good luck. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- From a Google search for: borrelia "white matter" - just two of many search results.
The term "lesion" can also be added for extended searching.
Lyme and Tick-Borne Diseases Research Center Diagnosis
Excerpts:
{Half-way down] . . .
Brain Imaging Magnetic Resonance Imaging
. . . Up to 40% of adults with Lyme disease may also have small white matter hyperintensities, but it should be noted that the number of hyperintensities increase with age
— even among patients who do not have Lyme disease. In addition, certain factors such as ischemic disease or a history of smoking may result in an increased number of hyperintense areas.
The white matter hyperintensities are sometimes called UBOs or "unidentified bright objects". In some patients, antibiotic treatment results in a diminution or disappearance of these hyperintensities.
Certain MRI sequences, such as FLAIR, are best able to detect hyperintensities.
These MRI images in Lyme disease may appear similar to the demyelinated areas seen in the "white matter" of the brain MRI of patients with multiple sclerosis. . . .
A Case of Chronic Progressive Lyme Encephalitis as a Manifestation of Late Lyme Neuroborreliosis - 2014
. . . "white matter changes" . . . .
[Poster's note: both entries above mention lumbar puncture ("spinal tap"] to test for lyme. However, this is not a reliable test. If it shows positive, great but it not showing in the cerebral spinal fluid is NOT something that can ever dismiss a lyme diagnosis.
demyelination of the myelin protective sheath around nerves is also very common with lyme
Encephalitis, or other conditions such as encephalomyelitis
that involve swelling or inflammation of the brain &/or spinal cord also are common with lyme, especially with untreated or under treated. Treatment can help.
Again, find someone who is familiar with ILADS' conference and guideline details.] -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Various kinds of steroids are often prescribed for those who "fit" MS symptoms so - again, never a good idea with lyme unless on a good lyme treatment path first with a doctor who is truly knowledgeable about lyme.and then, steroids only in a life-threatening situation.
If you do not have such a good lyme literate MD (LLMD), then it is up to you to present this information to whichever doctor you do have. Be strong about finding other ways to address inflammation.
Topic: what do STEROIDS actually do to those with lyme? Risks, long term damage discussed. Links.
And why BIOLOGICS that also dampen immune function can also be just as damaging if infections are not being properly identified & thorough addressed. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Also detail about other tick-borne infections, other stealth infections (such as Cpn) that can cause "MS" as well as environmental causes & complexities. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I had good luck rifing for HHV-6 which resolved my neuropathy.
I have been rifing for a while and I know quite a few others in my area who do, many of them fully recovered. The key to achieving success with rife is to treat often, at least every other day, more often is better.
I personally found Rosner's book to contain many irrational and unscientific assumptions. Trying to fit all your killing into a few sessions a month is often a recipe for failure, not to mention a terrible burden on the body. It can work if you have a very strong immune system but I don't know of anyone personally who has had success with Rosner's approach. It makes about as much sense to me as taking a months worth of antibiotics in 2 doses.
Posts: 184 | From CT | Registered: Aug 2006
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Brussels
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posted
It's funny you reacted with HHV-6, Badtick.
It looks more and more frequent to see that many of our neural symptoms do NOT NECESSARILY come from lyme and co-infections, but from other things such as viruses!
When my lyme symptoms fully disappeared, I felt really fine.
Slowly, with the years, symptoms appeared such as bits of pain in the joints, and more food allergies.
Some fatigue here and there too.
It didn't look like lyme (that for me spread like fire), but it did look like some slow growing chronic infection...
I do think that after lyme, not all trouble-makers are gone.
I would try all frequencies for herpes viruses, from HHV1 till HHV6, and more if you find.
Hepatitis frequencies are also caused by pathogens, so I would also run these frequencies.
------------------------------- As for the question of the thread, I wonder... So many people do Rife here, and if you rely on Rife only, it looks like an eternal treatment...
I wonder if many go on living their lives without Rife, or they have to always be tied to their devices...
I would go the OTHER WAY around: reinforce your body, immune system, eat clean, exercise, take supplements in rotation, sleep well, clean mold / electrosmog when possible, do some meditation SO THAT you don't fall ill again with lyme or other nasty stuff such as cancer.
I'd rather think that building a solid foundation of the body, eating full nutritious foods, non-allergenic, non-inflammatory and doing all the stuff I mention above is cleverer than just trying to find a myriad of frequencies to kill pathogens.
As the world is so toxic, and people are using more and more drugs (antibiotics), the critters are evolving, changing, and new resistant strains will not stop appearing.
Trying to find new frequencies of unknown pathogens + all their pleomorphic forms (meaning L-forms / cystic forms etc) and rife these regularly seem to be an impossible job.
I'm producing my own liposomal products home (I mean, I buy supplements and turn them into liposomal), so that I support my body better than if I only take normal supplements.
Plus liposomes coat the supplements, so that my stomach feels nothing. I can take high amounts of curcumin, high amounts of vitamin C without having terrible stomach problems.
You can even turn foods into liposomes, which is also an option to improve nutrition.
I'm pretty sure that doing lots of garlic + ginger in liposomal form would work MUCH better than trying to rife thousands of frequencies...
Just my opinion...
Posts: 6199 | From Brussels | Registered: Oct 2007
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posted
I had sort of a relapse around Christmas, after doing cold laser therapy all summer. But I was able to feel better quickly by taking mimosa pudica and some of Buhner's herbs that I had stopped taking because I thought I didn't need them.
-------------------- chronic Lyme/Bartonella
Inside every sick person is a well person waiting to be freed Posts: 232 | From new england | Registered: Nov 2017
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Brussels
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Member # 13480
posted
Good you took the herbs back and feel better now, 248.
For me it was similar: every time I stopped herbs and treatments, it took me maximum 4 months, then I relapsed (or got bitten again, and anyway relapsed).
Remaining in remission was the hardest part, specially psychologically. It felt like lyme would be with me forever, unfortunately.
Dr K usually says that after lyme goes away, it takes 2 full years for the immune system to recover. And I suppose, this is with treatment, diet, exercise etc
So it may be common to relapse. I guess it's never a bad idea to keep some herbs in rotation, even after going symptom free. At least for a full year...
I was lucky to have found photon + nosode therapy, so I didn't need to continue on herbs. It was like training my body to recognize Borrelia inside me, I suppose? Not even tick bites activated lyme immediately, like in the past.
I still got a couple of relapses, but as I treated from day 1, lyme did not progress, but disappeared fast.
The most important thing is to attack it day 1, when you notice symptoms are coming back. They are still weak. Once you leave them take hold of your whole body, it gets much harder. Much more.
Good luck, all of you who are trying to keep in remission. The first years are the hardest. After, it gets muuuch easier.
Posts: 6199 | From Brussels | Registered: Oct 2007
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It's been hard period but somehow I still managing.
My changes in mind structure is from blood vessels origin so it seems there is nothing wrong with it. But still it's weird with my symptoms.
I got rid of this burning sensation after some frequiences to mycoplasma. So maybe it's main problem in my recovery. I heard it's hard to treat the infection due to his ability to mimic host system immune to make inflammation of some organs.
I can say that my nervous symptoms is under control but others are coming with double power. I had pain under left rib which came back. While having this weird feeling being without breath. Once time I couldn't bear it anymore and went to hospital for x-ray of chest. My blood test came back totally perfect. Ray image also seemed clear of any pathological elements.
And here I'm now. Having dry cough, chest pain under left rib, hoarseness lasting months, head pain which remind of attempt to pulling out metallic orb by magnus (yes, something like that. and it last since MRI), feeling like being out breath, panic and feeling tired as hell (i decided to quit from job for some time because of that)
Posts: 7 | From Poland | Registered: Feb 2019
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Brussels
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posted
Are you sure you don't have babesia or streptococcus?
Posts: 6199 | From Brussels | Registered: Oct 2007
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posted
about streptococcus I can't be sure because I didn't never make test for them. but assuming that option, it can giving this kind of symptoms?
about babesia - I presumed that possibility and told about her to my doctor but he told my tests never showed any signs of her. that's when I get know about mycoplasma. he is one of infectors which still stay in my organs, i believe. that's why I mostly blame her for my condition.
Posts: 7 | From Poland | Registered: Feb 2019
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D Bergy
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Member # 9984
posted
Sounds like the babesia is back. Many of your symptoms point to it. You do have to treat it well beyond the point where your symptoms are gone. It reduces the amount of red blood cells which certainly will slow you up.
There are two common mycoplasma infections. Mycoplasma pneumonia which can cause exaustion. Mycoplasma fermentans is harder to identify and the frequencies for one do not seem to work on the other. I don’t have lyme but I have had both forms of mycoplasma. It was involved in my Crohn’s disease. I had to treat for at least half an hour to kill any amount of it.
There is a lyme form varient and I don’t know what form it is, but 840.6 Hz kills it. I don’t know of another frequency that hits this form although there are too many to know for sure.
2016, 840.6 are the best lyme frequencies for my wife’s strain. That may be different for you, but they do seem to work for more than one strain.
Good luck.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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Even if so, I'm using other buhner herbs for universal treatment where is also space for herbs for babesia - like Sida Acuta and Cryptolepis. But symptoms instead disappering they're coming back with others.
It's really weird situation - and I will tell you why. I had this burning sensation on face but I've been through "frequiences" for mycoplasma and they dissapered after just 30 minutes. After that some of them came back and they was lasting untill up to another sesion of bioresonance.
After January this burning sensation was gone but chest pain arrived. It was lasting up to starting taking Buhner herbs and after just one day of taking this protocol they dissapered as well. Odd as hell, don't you think?
It was fine for some time but they came back. When I started taking NAC some of neurological symptoms was gone for a while but came back worse than were.
It seems like it's not curing at all but just healing for some time.
And I'm having enough of it because I'm not even sure it's due to mycoplasma. To be honest it looks like something is still "buried" into my brain cause it even sometimes feels like something want to get out of it. It literally feels like that. Since that also I'm having amful sweating in hands which I had read are sign of autoimunoligy, so that's why I decided for MRI.
I wanted also to ask that there's possiblity one of herpes viruses could lead to neurological symptoms? I recalled about it week ago that I once had frequiences for them and a little while after that I started to having this issue. So I'm starting to searching linkage with this thing.
Poeple sugesting me that bioresonance doesn't work on it but I'm truly reacting to mycoplasma frequiences. Especially at 160hz and this above 900 ones. My head start to having pain and my limbs to stiffing. I don't believe in placebo since my neuralgia been due to bartonella and everyony was telling me that I have only depression.
And yeah, someone mentioned on polish forums that Bartonella like to declare this kind of symptoms but I believe that she was exterminated on beggining of treating. I hope so, at least.
PS: and once thing yet. sorry for this wall of text my neurological found some kind of cyst in my sinus which is really big. he suggested my head pain could be due to his pressing on nervous system. I had today laryngologist appointment and he said we will be researching what this could be. but for now I could ask if somebody had similiar case.
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