Topic: Breath Smells Like Band-Aids; Dysautonomia / Gastric Dumping Flare
canbravelyme
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Member # 9785
posted
Hi guys,
Hope most of you have had a better last two weeks than I have!
My ANS has gone bezerk. I'm getting stuck in cyclic gastric dumping :/
Since starting of florinef and beta blockers, my quality of life improved by 30%, however, I've noticed a greater intolerance to foods...including ice cream, which had been one way for me to keep weight on :/
I started treatment with Omnicef and Nystatin about ten days ago, which is when the problems started -- actually, after adding the Nystatin. Liquid was all that was available, and I think there is something in that liquid that aggravated me :/ (LLMD told me to stop everything, then try again with the Nystatin [pills, this time] in a week.
A couple of nights ago, I had dumping episodes (vomiting/diarrhea) three times in one night; it would have continued if I hadn't had some milk. After this, I noticed that my breath smelled like Band-Aids, but it went away and I was glad not to worry about it.
I just had another bad bought of dumping, and though less so, my breath smells of Band-Aids again. I looked it up on Google, and insulin, apparently, smells like Band-Aids -- if this is the case, it's not really a shocker bc part of an episode of dumping syndrome is an overproduction of insulin, causing one to become hypoglycemic.
Thoughts on what is going on? Does anyone have any practical advice to cool down my ANS?
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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Razzle
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posted
Fats and fiber will slow gastric emptying.
Do you take Omega 3 EFA's (fish oil)?
Also, Chromium is critical for blood sugar management (helps both hypo- & hyper- glycemia).
And eating a protein-containing snack every 2 hours between meals can help stabilize blood sugar for those with hypoglycemia.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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canbravelyme
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posted
Thanks, Razzle! I will work on all of these.
I just found someone else online who had blood sugar issues they had to get under control after taking Nystatin:
"Although rare, the corticosteroid in this medicine may cause higher blood and urine sugar levels, especially if you have severe diabetes and are using large amounts of this medicine. Check with your doctor before changing your diet or the dosage of your diabetes medicine."
Could it be the damn Nystatin??
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Razzle
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posted
Nystatin by itself is an antifungal...don't think it has steroid properties unless combined with a steroid medication...
Maybe call your pharmacy and ask if your Nystatin contains steroids?
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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canbravelyme
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posted
Good idea! I have a great pharmacist and will call tomorrow
xo
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glm1111
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If you didn't have the problem until you started the Omnicef and nystatin, then it would make sense to stop taking it and see if things calm down.
Gael
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canbravelyme
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posted
Called pharmacy -- that quote about steroids was from a topical cream containing Nystatin and steroids -- so it's probably not the Nystatin that is causing things to go nuts.
Pharmacist mentioned Florinef is a steroid, so maybe it's causing blood sugar problems?
What the h* is causing this band-aid smell? Has anyone else had this experience? Maybe as a result of a massive candida die-off?
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Razzle
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posted
Could be die-off... Maybe try molybdenum...it helps the body process the aldehydes given off during Candida die-off...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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canbravelyme
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Thx, Razzle (and Gael )
You think I should take some probiotics? If candida is the culprit, should I go slow, or take lots?
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glm1111
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posted
Maybe try some anti candida/antiparasitic herbs and kefir/yogurt/probiotics. I would lean more towards natural remedys.
Hope things calm down for you. I always step into any new remedy with a slow approach and ramp up. I sometimes apply coconut oil on my back under my shoulder blades so I don't have to swallow it.
The skin is the largest organ and will seep into the small intestine and kill the candida. This has worked well for me. It will not stain your clothes.
Gael
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canbravelyme
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posted
Gael -- thank you
The coconut oil is a good idea -- will it get to my small intestine through my back, or should I apply it on my stomach area?
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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Razzle
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posted
I agree with Gael
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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glm1111
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Your welcome cane
I find it gets there through my back, but you can apply it all around. I would just start with applying it to your back first because you can herx from it, but can be very effective. it also kills parasites.
Believe it or not I used to put yogurt or kefir with added probiotics in a small dish in the fridge and apply it to my back as well alternating with the coconut oil. Got rid of very bad candida this way. I still do the coconut oil
Gael
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canbravelyme
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Thanks for mentioning about putting the kefir / yogourt on my back -- I've given up on being able to ingest yogourt...
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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glm1111
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posted
The kefir usually binds me up if I ingest it. I eat lots of ice cream also to keep my weight up. I find if I mix a little in with the ice cream in a glass and add milk to make it thin(freezer for a few minutes)it is much easier to get down and tastes yummie.
I also found something called Orgain at Whole Foods and add that for more protein and carbs and has lots of added nutrients.
P.S. This disease sucks
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Judie
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posted
"My ANS has gone bezerk. I'm getting stuck in cyclic gastric dumping "
I don't know what ANS is, but I've just been in a loop of terrible, frequent diarrhea right after I added cefdinir (omnicef).
canbravelyme
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posted
ANS = Autonomic Nervous System -- I just replied to your thread
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Jamers
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posted
I had this last week with my "womanly cycle" I also get excessive sweating at this time. I also sweat alot if I take diflucan. That said, I have been trying to find the culprit to my sweet smelling sweats, I believe its candida. I also notice my stools smells "sweet" if I eat too much sugar. Could possibly be yeast???
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surprise
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Jamers, yes, yeast. My dd's famous bio-med Dr. used to say:
If it smells sweet or like beer, yeast. If you think it needs a hazmat team to come in, bacteria.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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canbravelyme
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Does band-aids qualify as hazmat or beer?
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surprise
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posted
LOL, not sure. Band aids... hmmm...
Sorry you've been so ill :-(
I am also pretty thin, get hypoglycemic feelings, and adding tablespoons of coconut oil to a hot drink 3x a day has helped,
but I am not giving advice, I'm concerned about your vomiting and such. Can you keep Gatorade down? Hang in there-
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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surprise
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posted
Also, sometimes I get nausea after dinner, and I'll make myself a cup of hot ginger tea (I use 2 bags.)
I don't care for the taste, but it always works, and quickly.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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canbravelyme
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A few days off the meds and on LOTS of probiotics and yogourt, and I'm feeling better than I've been for a while...die-off? DIE is an apt word for what I went through if that's what that was!
The battle continues...Judie -- how are you doing?
Best,
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Marnie
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Cells becoming insulin resistant is common with lyme.
There are meds and supps that can address that issue. Dosage and timing MATTER.
BTW ginger is a PDE4 *inhibitor* = reduces inflammation.
Do you see they both impact 5HT-3? Just at different "locations".
Theoretically, that may make ginger a really good helper...Lowest dose is 125mg from a company called Nature's Answer.
PLP/P5P (50mg active form of B6 by Now is best IMO) + ginger is great to stop migraines and "migraine seizures" according to a neurologist I spoke with.
Ginger is available in capsule form...*gelatin capsule* protects the "powder" from being destroyed by the stomach acids, so it can go where it is most needed.
Yes, we do indeed absorb things thru our skin (as well as rid toxins). You can put VCO in a small glass custard cup and warm it slightly (to melt it) using your hair dryer...low speed. And then apply the slightly warm oil to your skin.
As an alternative (something sort of like what I have):
It was withdrawn from the U.S. market - I read due to lack of demand.
H2 blocker (like Zantac) + bismuth citrate - which is NOT Pepto bismol.
Acid reflux drugs are tied to low B12 levels (2013 finding)... (B12 levles can be restored via sublingual forms). Since B12 is needed in the "remethylation" pathway (along with B9 = folic acid and zinc), a deficiency of B12 can -> too much homocysteine and worse case -> stroke.
With a lot of inflammation reducing B6 levels and interfering with the transsulfuration pathway to lower homocysteine (-> taurine which LOWERS cholesterol) + GSH = glutathione + sulfate, must be very careful.
High level of homocysteine is NOT good.
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GretaM
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Are you feeling any better canbravelyme?
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Judie
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"The battle continues...Judie -- how are you doing?"
Thanks for asking.
Ugh, it's worse. I'm on my 3rd week of the runs. I was up all night last night with this and it looks like tonight will be a repeat.
My doc had me start taking cholestyramine powder today to try to firm things up. Probiotics aren't enough.
I'm also doing some tests.
Hoping and praying this will end soon. Sharp stabbing pains in the stomach.
Quickly lost 15 pounds, then gained some back in inflammation.
How are you doing?
Posts: 2839 | From California | Registered: Jul 2012
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I'm here, because my poop has smelled like cresol (bandaids) off and on for over two years. I came across your post.
My mother passed away from diabetes and so I'm well aware of what the insulin additive cresol smells like.
However, you cannot attribute the smell to insulin, because insulin itself is odorless without the added preservative cresol—a disinfectant used in insulin and bandaids and found in some variants of Scotch. I am NOT diabetic and I DO NOT TAKE INSULIN.
Two contributing factors to my poop and your breath smelling like cresol may be attributed to bacteria strains.
Did you change your diet? Are you eating a lot of vegetables (Pediococcus damnosus)? If you were in the hospital you could be infected with the Pseudomonas bacterium which causes the Hot Tub Rash and has been described as smelling like grapes or gauze (cresol).
Finally, P-cresol is a byproduct of bacteria breaking down food in your gut. I'm not sure if P-cresol smells like the cresol added to bandaids.
Another thing it might point to are kidney issues if your kidneys are not filtering enough waste, however, I've had no symptoms of kidney problems. Itchy skin, vomiting, blood in urine.
I guess my breath smells a little like bandaids too. Not a bad smell and quite frankly it cancels out the bad smells. So that is good.
I noticed this when I started drinking a smoothy high in ginger, Kale, blueberries, orange juice, and a little garlic to prevent diabetes.
Once again insulin DOES NOT SMELL like cresol on its own. So that cancels out hypoglycemia. It went away for awhile and I noticed it again so I ended up here.
(breaking up the post for easier reading for many here)
posted
Davy - you brought up an old post! I just broke up the text - please do that because there's a lot of people here who can't read big block text.
I will actually let CanBraveLyme know you brought up her thread and see if she wants to come discuss!
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