posted
Lyrica, hair fell out for 2 years, only took it for 3 months. Starting to recover but my hair still isn't the same as it was.
Posts: 199 | From Niagara Falls | Registered: Dec 2009
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posted
My worst meds were the ones they give me for anxiety/depression--Xanax, Lexapro, Zoloft, Ativan, and Elavil. They all sent me into the worst panic attacks I've ever had, and Elavil almost killed me. Literally.
Posts: 303 | From Pennsylvania | Registered: Jul 2010
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posted
I'm with Starfall...I took one dose of lexapro...caused me to have a seizure and in the ER!
So far, I have been pretty lucky with all of the antibiotics though...knock on wood!
-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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posted
by far and away wellbutrin! when i was first getting sick from lyme my dr father insisted my symptoms were psychological and prescribed me wellbutrin which is an antidepressant. funny thing is i havent been depressed one day in my life.
it caused horrible panic attacks to the point where i was driving and dry heaving at the same time. after doing a bit of research i found out it was a stimulant. not exactly the best drug for someone with scary terrible neuro symptoms who doesnt knwo whats going on.
as far as abx go id have to say flagal. i think its toxic. rifampin not so hot either but i could handle smaller doses of it.
-------------------- sick since 9-09 igg, 18,23,41 reactive igm, 41 reactive Posts: 436 | From Kansas City | Registered: Jan 2010
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posted
Mepron! I was horribly nauseaus even with fatty food and I felt that my brain was exploding!
I was a pre-school teacher before Lyme so to make matters worse I felt like I was ingesting yellow fingerpaint everytime I took it!
L
Posts: 256 | From long island, new york | Registered: Feb 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Rifampin for sure
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Rifampin, this is my second try. I'm ramping up slow and it's killing bugs, I can tell!!
Posts: 2232 | From USA | Registered: Aug 2009
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Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
Tindimax alongside Alinia
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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posted
Invanz and tindamax- not sure which but was in hospital with dehydration and neurotoxicity.
Posts: 341 | From NY/FL | Registered: Apr 2010
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Ritalin!!
When I was on my Medical Mystery Tour, a sleep doc took the spaghetti approach with me. Throw it at the patient and see what sticks. I took one dose. It was the equivalent of about 5 pots of coffee. I thought I was having a heart attack.
In Lyme treatment, Factive ruptured my Achilles tendon. Thanks, Factive. Like I don't have enough problems.
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
All SSRI's(antidepressants) and Plaquenil.
I had a horrible reaction to Plaquenil. Severe, unbearable pain in the facial area, jaws, teeth, etc.
And the SSRI's made me feel so much more depressed and like I was physically ill also.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
The ones I could not tolerate at all were flagyl, plaquenil and augmentin. Maybe I was just sick with a virus but I have not had the nerve to try them again.
For actually being on a drug - Levaquin was tough - gave me tendonitis but helped the bart.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
Pretty typical responses here..
One thing to note is that Rifampin is generally harder to tolerate for those it will work best for.
It has been my best overall progress abx but also the hardest initially to tolerate. I started at 1/2 a 75 mg pill and worked my way up from there. This is the drug that keeps me close to remission and that I made the most progress on over the years
It has good intracellular capabilities and is excellent against the BLO/Mystery bug.
The floroquinolone abx class is brutal I admit, and should not be used for stints longer than 3 months. Levaquin helped get me a lot better only to relapse, and then to cause lingering severe knee ligament and tendon pain for years..
Best.
Derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
Levaquin...anaphylactic reaction which I call my "Levaquin freak-out", and a sore calf muscle/tendon? (after one dose) that persists to this day. The quinolones are poison for me.
Posts: 246 | From south florida | Registered: Mar 2010
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posted
I had a horrid reaction to Bactrim..it seemed similar to an allergic reaction, so I had to stop taking it. I almost ended up in the hospital with that one. I tried Rifampin breifly as well..that one was hard to tolerate for sure..I felt like a zombie with the worst brain fog ever. I have a feeling I'll end up on it again later in treatment..maybe at that point I'll be able to handle it a little better (I hope).
-------------------- "The simple things can get you through the hardest times." Posts: 628 | From Connecticut | Registered: Sep 2010
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posted
Qualaquin (quinine)! I was convinced that IV clindamycin and quinine would kick babesia, but it kicked me instead.
Posts: 964 | From san diego | Registered: Oct 2009
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
flagyl, it took me to the deepest dark pit. That was with slivers of it, pulsed. I tried it for a couple months? Long time ago, '02?
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
Yikes...I was hoping to go on Rifampin! For me, going ON doxy was pretty bad. Once I was on it I was ok until the side effects got the best of me...
Cymbalta! Holy hell. That drug was the WORST! I wouldn't give it to my worst enemy.
Posts: 206 | From In the shadow of a mountain | Registered: Feb 2011
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posted
Oh yes on the mino .. you have to begin lower than that. I didn't last very long on that one.
I can't even take flagyl anymore and Rifampin is a definite NO for eternity.
I still want to know where randibear is. I'm very worried about her.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
Tutu-I was surprised to not see her around anymore.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Dapsone was my worst, hands down!!! I will never touch that stuff again.
Posts: 5237 | From here | Registered: Nov 2007
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posted
Capristatin for candida - impossible herx for a week. I collapsed on it when I was at a Burger King to get ice for an icebag.
Only the doctor's office didn't know that, when a Burger King employee called the wholistic health doctor's office and said, "This is Burger King. We have patient of yours." And the doctor had just told me bread and sugar, etc didn't exist anymore for me...
I tried to explain it to them later, but they still still called me their Burger King patient!
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
Lyrica caused me to hallucinate--people's heads looked like lava lamps. I couldn't watch TV for about a year after that because I felt like I was going to have a seizure. I went back to good ole mirapex generic--pramipexole.
When the company was about to lose their patent rights on Mirapex, they looked through 20 years of records and found 6 people who said they got hooked on gambling because of Mirapex. They tried to get it banned, but thankfully didn't succeed.
Posts: 552 | From New Mexico, USA | Registered: May 2007
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