posted
Please help me have some hope if you have had or have symptoms of feeling off balance when you walk and/or speech problems can you please share with me. I have been treating for 9 months with late stage lyme Neuro, bartonella and babesia first diagnosed, most all other symptoms have gone but not the balance. Am I expecting too much too soon only being 9 months?
I am currently on Bactrim, Amoxicillin, Probedicine, Lipsomal Vit C and Gluitothione, Nystatin, Cucurrmin, Vit d3, n-acetyl
Please any hope will help
Posts: 36 | From NH | Registered: Nov 2018
| IP: Logged |
posted
I had those issues for years and they resolved fully only after I treated Babesia. You might consider incorporating this into your regime.
Posts: 184 | From CT | Registered: Aug 2006
| IP: Logged |
quote:Originally posted by Badtick: I had those issues for years and they resolved fully only after I treated Babesia. You might consider incorporating this into your regime.
Can you tell me if you took Atovaquone Mepron or Malarone?
Posts: 36 | From NH | Registered: Nov 2018
| IP: Logged |
posted
I could really use some support by hearing from others who have or had the symptoms involving balance/walking and/or speech difficulties. Any hope I can get will help.
Posts: 36 | From NH | Registered: Nov 2018
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
Topic: TINNITUS: Ringing Between The Ears; VESTIBULAR / BALANCE . . . Hearing Issues, including - HYPERACUSIS . . . Ototoxic Drugs, etc.
Explanations - and some things that can help. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Agree, Babesia helped this the most for me. I had a constant rocking boat sensation for months.
Doxy helped it for me, which has antimalarial properties.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
| IP: Logged |
LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I did and got so well I could ride a bike!
not sure how it got better- I've tried so many thing and it did take a while.
wishing you great success! the one thing I have learned is never give up- just keep searching and trying things.
love & prayers!
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
| IP: Logged |
hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
Balance therapy helped me a lot.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8879 | From Illinois | Registered: Aug 2004
| IP: Logged |
posted
No idea at all whether this would help you. I get my neck adjusted with a very good chiropractor. I get dizzy if my C1 vertebra is out of place. After being adjusted, I get undizzy fairly quickly. I just have Lyme, no other co's.
Posts: 13116 | From San Francisco | Registered: May 2006
| IP: Logged |
posted
Thats funny..I have an appointment Thursday to go to a Chiropractor I used to go to. I heard it really helps with your immune system when everything is moving properly.
Posts: 36 | From NH | Registered: Nov 2018
| IP: Logged |
posted
I dont know how long you have been treating but I have been at it long enough to be looking for other reasons for my remaining symptoms besides TBD.
Search for thiamine deficiency and balance issues.
For me pain and brain:
Thiamine deficiency linked to fibromylagia.
Thiamine deficiency linked to cognitive impairment.
If I had know how a thiamine deficiency would hurt me I would have been on it my whole treatment.
Posts: 832 | From Somewhere | Registered: Nov 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic