posted
Hello, I've started my bicillin injections for almost a month now, 2x a week. How did you (or someone you know) do with them? Replies and PMs are greatly welcomed and appreciated.
I get it, it's frustrating every lyme patient is different in regards to treatment protocols/time of recovery. One magic pill doesn't fix it. I just want some more input in how people did and how long they were on them/or started to see improvement, herxing etc.
I do look up past posts in the search link about it. Thanks everyone!
Posts: 597 | From Massachusetts | Registered: Mar 2019
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posted
I am so sorry that you didn't get even one response here. Years ago, there would of been at least 10 people responding. Hope you are doing well and don't give up.
Posts: 468 | From boston, ma | Registered: Feb 2018
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posted
Hey Linda, I know. You're not the only one who has said this to me. I'm not gonna take it personally and I'm not surprised, I think with the Covid-19 crisis ppl's energy's are on other things at the moment, I get it.
I come on here frequently and check forum topics out that are about bicillin.
I have allergies big time kicking my *** like it's been for alot of ppl and the herxing too...it's not fun. Been on the shots 4 weeks now.
Posts: 597 | From Massachusetts | Registered: Mar 2019
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posted
There isn't as much support as there was years ago when I first came on. There was a consistent large group working together on many levels and they stayed together. I cant reach the same person to see about their ongoing progress with a dr or treatment. They may respond a few times and that's it.
Posts: 509 | From southern new jersey | Registered: May 2003
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posted
I'm thinking they recovered possibly, moved on with their lives and didnt need this site anymore? I called my LLMD yesterday for a Rx refill. She wants to see me next month for a f/u. With the Covid-19, most likely will be tele conference.
Posts: 597 | From Massachusetts | Registered: Mar 2019
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
While Lymenet seems like a ghost town lately, there is NO other place for first-hand Lyme patients experiences on LYME and Company treatments. The 'search' function is a treasure trove that cannot be dismissed or denied. Many members may not post but they come here to search for answers.
posted
If my LLMD gave me the ok to do them everyday hell I would. I actually get excited the days I get them ( I mean who gets excited about having a 1.5 inch needle in them? ME!)
Posts: 597 | From Massachusetts | Registered: Mar 2019
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posted
I am surprised that Dr. H wants to see you in a month or do a phone call. You are just asking for a refill. Interesting. good luck.
Posts: 468 | From boston, ma | Registered: Feb 2018
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posted
No Linda it's for a follow up, nothing out of the ordinary. By then I will have been on the shots for over 2 months. I'm looking forward to it.
Posts: 597 | From Massachusetts | Registered: Mar 2019
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posted
Thank you Linda! If I don't talk to you have a good Easter.
Posts: 597 | From Massachusetts | Registered: Mar 2019
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LabRat
Frequent Contributor (1K+ posts)
Member # 78
posted
Hello you all from sunny Texas. I'm bored and five mins. away from king crab, I just glanced in to see which slackers were still whining and sniveling. I decided I was finally cured, just old, 82 now. Bicillin (la) and Flagel, spell check is not happy today, anyway these two drugs gave me my life back from not being able to find a po box I'd had for a number of years to flying commercially. My dose was double or more what you would give anyone else, hence my handle of labrat. I was able to get the big shot because my md wife decided to treat it like syphilis It has been awhile and I,m rusty, if I ever knew anything! Good luck to you labrat.
Posts: 1887 | From Corpus Christi, Texas | Registered: Oct 2000
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posted
That's terrific to hear labrat! Thank you for your reply. Looking through many other posts about Bicillin (LA) it seems there have been more positive than not responses of others using Bicillin for their treatment protocol and fully recovering. Mine is 1,200,000 units per 2ml, twice a week. I'm glad you had a no BS doctor of a wife that helped you and didn't mess around. One request...can you please bring that warmth and sunshine to us up in New England? Haha Posts: 597 | From Massachusetts | Registered: Mar 2019
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LabRat
Frequent Contributor (1K+ posts)
Member # 78
posted
Absolutely not! You guys deserve some form of punishment for being so close to the lobsters. I remember my single shot once a week was 2,400,000 of "long acting" Bicillin. I feel for you, sorry and good luck!
Posts: 1887 | From Corpus Christi, Texas | Registered: Oct 2000
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
I take Tindamax (Tinidazole) pulsed on Saturday and Sunday only 3 x daily for the cyst form of Lyme.
LabRat
Frequent Contributor (1K+ posts)
Member # 78
posted
I had some improvement with Tinidazole, don't remember the dose but the most improvement was massive shots of Bicillin LA and flagyl. Good luck all
Posts: 1887 | From Corpus Christi, Texas | Registered: Oct 2000
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Been on the shots 4 weeks now.
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