LymeNet Flash: Connecticut need LLMD

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Connecticut need LLMD

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Author

Topic: Connecticut need LLMD

Cegarnets
Junior Member
Member # 45241

posted

I live in CT by the NY border so I would be able to go to either state.

I have been diagnosed with new Lyme's infections 4 times and 1 infection they considered disseminated or stage 2 lyme's.

In the disseminated Lyme case, I had a 102.8 fever for over a week and finally they diagnosed it when I became covered in Bullseye rashes (they stopped counting at 20.

I did see an Infectious Disease doctor for that case and was on antibiotics for about 6 months, but have had ongoing issues ever since that infection.

These issues include: confusion, dizziness, difficulty readings and understanding what I read, memory issues, forgetting simple words, fatigue, and severe knee/hip stiffness/pain to name a few.

I tried to see the infectious disease doctor again but he said I no longer have an infection so he cannot help me.

Posts: 1 | From New Milford CT | Registered: Jan 2015 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for CT.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease and its complex treatment! Stay away from Infectious Disease doctors!

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/15615?#000005

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/ConnecticutLyme/info

https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lyme-aware.org/connecticut.html

www.lyme-aware.org/new-york.html
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/Connecticut/

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

The top LLMD, Dr. H, has written a new book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

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