posted
Considering switching to Dr. V. in OR. Truly a stretch as they do not take insurance and is a 1.5hr bus ride to endure with my transportation phobias.
Any PM's regarding if this is worth it for me are greatly appreciated!
Already have had all my testing done- know I've got BB(f)//babs//bart//erlichia. Just need a LLND with a true protocol instead of me doing my own research and feeling stuck. Chinese medicine working well but also want another doc in the mix. Thanks!
(editing out doctor's city, per Terms and Conditions below)
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I am not sure of the LL ND of whom you inquire but do ask the groups below. [I've been unable to access any treatment for so very long so am unfamiliar with that initial].
Key questions, though:
Have they completed the ILADS physician training program? Also referred by some as preceptor training program.
Do they keep up with each ILADS conference in terms of what others are doing / finding?
Are they completely familiar with the books by Dr. H, a leading LLMD . . . and also with Zhang's Modern Chinese Medicine and Lyme . . . and with Buhner, the LL Master Herbalist. They should know all these authors have written as well as books by a couple other LL doctors.
Do they use the Burrascano guideline as a template to be sure that all points are addressed, even if other methods are used?
Likewise, Dr. H's two books should also be key "templates" of sorts for problem solving.
What kind of feedback do you hear from members of both the nearby support group to where that doctor is located - and the leader of the state group?
Also check out meetings with various groups. There is a special presentation by a LL ND in Eugene on March 18, for example, in case you might be able to get to that.
No need to answer, just hope you find your answers. Good luck. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
The use of the term "phobia" saddens me as if that is what other doctors have told you, it's not likely the correct term and it's certainly one that will land you in the mental illness section with most other doctors -- and with any other people, even family.
Unless you fear the bus being taken up by aliens from outer space [that would be a phobia] but my guess is that there are very real medical reasons for your travel hardships.
Rather than a "phobia" . . . it's highly likely that your transportation stressors are due to lyme and the issues raised for the vestibular system (inner / middle ear) . . . the various nervous systems . . . the adrenal system and just the toll it takes on someone who is ill.
Multiple chemical sensitivities can be involved and that's often also around the liver stress lyme causes.
A bus ride is likely to be very rough due to the chemicals they would use on the bus and in the toilet -- and the various scented products most passengers might use.
If there is anyway at all to find a volunteer to drive you, that would be best. And, if at all possible, plan for time to rest after the appointment in a park or nature preserve, etc.
The support groups might know of someone in your area who might help you find a ride. If you would cover the cost of gas and their meal it would still likely be less than a bus.
If you do take the bus, call ahead so that your driver can be alerted to your travel issues. If you have vertigo, ask an official with the company office which seat is best to ride in -
most likely on the side of the road, not on the traffic side. And most likely near the front over the wheel for smoothness of ride IF the vibration is not too much there.
Be sure to have hearing protection.
Look out straight ahead most of the time.
If possible, ask if they might be able to do a fresh air circulation before you get onto the bus. -
[ 02-16-2017, 01:34 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- All the books and authors mentioned can be found in this links set, which can also serve as a guide to the various aspects that an LL ND should be aware of:
Herbal Safety considerations & reference books; etc.
BOOKS - Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:
knowing which methods offer assertive & direct impact, which are only support and which are both. And when to use what, how to combine, & when to step back.
You can compare and contrast many approaches with links to articles, books, methods . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- If you need suggestions on what might help make travel easier in terms of chemical issues or inner ear / balance matters, be sure to post in the medical or general sections.
Many with lyme have traveled the same rough & tumble roads and can share what might be of help in your specific case. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Thank you for all of this information Keebler. I am not on facebook any longer and haven't heard back from my local group's email so I figured I'd check in here regarding this doc.
I can follow up in person at their next meeting.
I know they are indeed in the ILADS directory and they follow the big protocols. I'm more curious about personality and how connected the patients at this location feel to their healing.
Along with vestibular challenges, I do indeed suffer from psychological issues: depression, anxiety, and phobias. I was misdiagnosed for 27 years and so have been through the "psychosomatic" ringer.
I'm a mental health clinician myself and know that my Bb and coinfections absolutely exacerbate/are likely the cause of my psych conditions but they exist.
I have panic attacks around transportation (even in private cars with my partner) along with bridges, freeways, airplanes, high buildings, and (sadly now) riding my bike. I'm doing my best to support myself in all of the ways I can.
I appreciate your distinction though as I know for many years I thought I *just* had very resistant anxiety/panic...didn't know about the role Lyme and Babs played in it.
Along with my physical symptoms, I knew something else was "wrong."
Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do this, click the pencil/paper icon, make your change, then click "Edit Post". Thanks.
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