posted
Looking for a really experienced and reputable lyme-literate MD for my brother, who has been diagnosed with Parkinson's disease.
Thanks for any help! Tina
Posts: 25 | From new york | Registered: Dec 2007
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I don't know of any highly rated lyme specialists in the Pittsburgh area. (It is my home town.) I know who they have there. Based on that, I have been recommending that folks there come to the D.C. area for their lyme treatment. We have much better lyme doctors here.
There is a really top notch lyme specialist who has been closed to new patients for nearly 3 years but has now reopened her practice to new people.
I highly recommend he go to her. She only requires an in-person visit once every 6 months. She will do telephone appointments the other months. So, that is not much travel at all.
It's not a bad drive to D.C. from the burgh.
Let me know if you want the name and prices, wait time, etc. This is a great opportunity to see a great doctor.
My husband was recently diagnosed with Parkinson's. It would be great if your brother's case was actually due to lyme disease.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Welcome to Lymenet! PM sent for PA, OH, MD, & DC.
Your brother needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. He needs to go where they are. At least half of all Lyme patients go out-of-state for care.
Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better". They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.
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