LymeNet Flash: LLMD in Central NY

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » LLMD in Central NY

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Topic: LLMD in Central NY

mtnwanderer
Junior Member
Member # 50799

posted

Searching for the right LLMD for me in Central NY.

After doing my own research, I began to suspect I had Lyme (potentially have had for multiple years), and brought my concerns to my PCP. I tested positive, and he put me on a 1-month course of doxycycline earlier this summer. I haven't experienced much improvement, and think it's time to consult with an LLMD.

I've had some positive results with dietary changes and herbal supplements, so I'd like a doctor who takes a holistic approach, and can give me advice regarding the supplements I'm already taking, as well as assess what else I should be doing.

Posts: 2 | From Central NY | Registered: Aug 2017 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for upstate NY.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the books written by Dr. H, the top LLMD titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

mtnwanderer
Junior Member
Member # 50799

posted

Wondering if anyone has experience with the S- Center in Delmar, NY?

Posts: 2 | From Central NY | Registered: Aug 2017 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

I would suggest you write a new post to ask about this, because people don't re-read old posts.

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091

posted

Is that the Dr. S center in Albany? If so, he is good to my knowledge.

Posts: 3771 | From around | Registered: Mar 2008 | IP: Logged |

Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091

posted

Oops, mods is that ok (w/ the city)?

Posts: 3771 | From around | Registered: Mar 2008 | IP: Logged |

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