posted
Looking for a second opinion on Lyme and coinfections. Currently seeing someone but not convinced of the treatment. Is for adult with 20 years of symptoms. Prefer the Kansas City area.
Posts: 1 | From Kansas City, MO | Registered: Aug 2017
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
You may not have many doctors in that area who are knowledgeable at treating lyme.
Until others come along, I suggest you see Support Groups on the left side of this page. Contact as many in MO as possible, and those in other states that are near you.
Ask them who is getting people well.
You may even want to go to some support group meetings and get on their mailing list so that if speakers are coming you will be informed.
The best document you can read to get your education on this disease and what good lyme treatment looks like is here:
Dr. Burrascano was the #1 lyme doctor on the planet when he was practicing.
Compare your treatment to what Burrascano says it takes to clear lyme and its various coinfections.
When he speaks, he says that anyone with lyme at least 1 year also has coinfections. 100% of the time. All of these diseases help one another remain in the body.
So, do not overlook treatment for coinfections.
I got rid of lyme (and babesiosis and bartonella) over 12 years ago now by going to a doctor who followed the Burrascano lyme treatment protocol.
Prior to this doc, I saw 2 other doctors recommended by a lyme support group leader. They were a waste of 2 years time and 2 years of taking antibiotics!
So, once I studied Burrascano's Guidelines and traveled to hear him speak, I searched for a doc who followed his protocol. Bingo! That's when I got rid of all of my diseases.
Then, I sent at least 5 of my friends to Burrascano type doctors and they also got cured. So, I believe in the Burrascano protocol because I have seen it work over and over again.
Here are a few points from Dr. B's guidelines:
You must attack both the regular and cyst (or other) form of lyme simultaneously--requires at least 2 different antibiotics taken together to do so.
You must test the patient for all co-infections and other physical ailments (thyroid, etc.) and treat everything the person has.
You must treat all co-infections the patient has (including babesiosis, bartonella, ehrlichia, mycoplasma, etc.) or the patient will not get well.
You must use Igenex or another well-known reference laboratory for most of these tests--Igenex is a tick-borne disease speciality lab in Calif.
You must use very high doses of antibiotics to kill the diseases (batericidal doses).
You must give the patient supplements, probiotics, herbs such as artimesinin if babesiosis is suspected, and require adherence to rules such as low carb diet, no alcohol, no smoking, rest, and exercise as the patient is able to do it.
You must treat at least 2 months after all symptoms have disappeared (if sick at least 1 year).
The exercise must be one continuous hour of weightlifting every OTHER day. A full body workout each time. Light weights, many repetitions. This is what will bring your immune system back to normal so that you do not relapse when you finish treatment. Do not neglect this requirement!
These are just a few of the important points you will see in the guidelines. If possible, you want a doc who does EVERYTHING Burrascano says to do. He treated lyme for over 25 years, and compiled what he learned so that other docs could benefit from it. He was the most successful lyme doctor on the planet. They came from every country in the world to be treated by him.
This is what I learned in all my years of being in the lyme world: Many doctors treat lyme disease, but few (very few) have ever cured anyone of it. You need to find one of these very few. I know a few in the east.
Get yourself to the very best lyme disease specialist you can possibly afford. You are looking for expertise. Be willing to travel to get it. This is how you will get well.
Welcome to LymeNet! We will help you here all we can.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Yes, welcome to LymeNet!
If you go to www.MarylandLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".
Click there to find the names and contact information for health care professionals in many fields who are treating Lyme & TBD's in all of the states that have them.
Additionally, here are ways to locate a variety of alternative health care professionals too. Hope it helps!
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are. At least half of all Lyme patients go out-of-state for care.
Most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
The top LLMD, Dr. H, has written books titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.
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