LymeNet Flash: Looking for LL Doc in WA-

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Looking for LL Doc in WA-

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Topic: Looking for LL Doc in WA-

LymeMom Kellye
LymeNet Contributor
Member # 24807

posted

Hi I haven’t posted in years, and for that I’m sorry. When I have more time I will provide an update. Long story short my daughter is now 24, and still struggling. I have moved away from the big city, and I’m looking for a doctor to help her in our area. We live 60 miles south of the big city, and I’m hoping to find someone close by. She seems to be struggling most with MCS & MTHFR issues. Any help or suggestions are appreciated. Please PM me if you would like to know our exact location. Thank you!

Posts: 333 | From Lyme Here Too | Registered: Mar 2010 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for WA.

Your daughter needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. She needs to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:

https://groups.yahoo.com/neo/groups/WashingtonLyme/info

Maybe they can help.

Some more resources (including Support Group info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Washington/

Read the books written by the top LLMD, Dr. H titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.

To do this click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

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