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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking clinic in OR

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Author Topic: Seeking clinic in OR
Portlander
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Member # 51847

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In the 1980's, I camped thru-out the USA. Since then, chronic issues come and go but aren't resolved-IBS, MCS, CFS, tendonitis, etc.

Recently I got a positive Igenex ImmunoBlot IgG: 23+, 28+, 31+, 41++, plus 3 indeterminate cofactors.

I'd like to find a clinic around Portland, OR if possible. I really want an expert with successful experience, even if I need to travel to WA or beyond. Thanks.

Posts: 1 | From OR | Registered: Mar 2019  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

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Welcome to Lymenet Portlander

You can request a LLMD through ILADS here;

https://www.ilads.org/patient-care/provider-search/

You can request a LLMD through Global Lyme Alliance here;

https://globallymealliance.org/education-awareness/find-medical-professional/

You can connect with the Oregon Lyme Support group to see how Lyme patients are being treated in your area. Scroll down to find the Portland area group;

http://oregonlyme.com/supportgroupsinoregon.html

Here's an organization that could also help you financially;

http://oregonlyme.com/patientassistance.html

I will send you a private message.

Posts: 2977 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

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BartenderBonnie's links are good.

There are no LLMDs in Oregon - the Oregon Medical Board is harshly against the idea of "chronic lyme" & even untreated or undertreated or ineffectively addressed lyme. They often punish doctors who treat, important to know.

They also want to ignore other tick-borne infections.

Be careful when in typical doctors' offices about mentioning lyme - it's sad to say but there is the risk of being written off as a loon and then discounted. There may be a few "safe" places but just be careful until you know more about their stance.

However, there are several excellent LL NDs in Oregon, and in Portland, too. ND are naturopathic doctors. NDs can prescribe Rx in Oregon. A few NDs are covered by some insurance, too, though for a restricted set of things. And an ND can also be one's PCP.

As the Oregon Lyme Disease Network (link above) for recommendations of ILADS-trained LL NDs &/or lyme "friendly" MDs who might fly under the radar to help in more subtle ways.

I hope you can connect with both the state group and a local group, too.

Good luck.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
   

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