posted
I only just recently learned about what Lyme disease actually is and I am beginning to suspect I may have it.
I would like to talk to a doctor to determine if I do have it or not. I am located in Georgia.
The biggest symptom for me is the chronic fatigue and migraines/headaches. Overwhelming weakness in just about any activity.
I get occasional heart palpitations when I am laying down. Another doctor put an EKG monitor on me for 24hrs and determined it wasn't frequent enough to be of concern. (Less than 1% of the time).
I am starting to notice some memory issues that I am concerned will get worse.
I have been seeking treatment for these things for several years now but have had minimal improvement. The chronic fatigue is the most debilitating symptom.
I hope you can help me find a doctor who can provide a diagnosis (or at least rule out Lyme).
Posts: 1 | From Georgia | Registered: May 2019
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I am so sorry you are going through this. It is very important you be your own health care advocate.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are. I don't know of any in GA.
Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. View "Under Our Skin" and "Under Our Skin2: Emergence" DVDs. Check your local library or buy them used online.
Posts: 8981 | From Illinois | Registered: May 2006
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Welcome to Lymenet Anonymouse
We can help you. You must become your own healthcare advocate. Research everything you can about Tick and Vector Borne Diseases.
Most LLMD'S don't participate in insurances and your intial visit (sometimes up to 3 hours long) will be expensive so you need to get your finances in order. Specialized testing is usually ordered.
Start a folder and include all things medical in it, all previous blood work results, all providers you have seen, diagnosises, tests performed, medicine list, symptom list. Take this with you to your LLMD visit.
As you may have experienced, mainstream doctors have FAILED us. They are not properly trained in Vector borne diseases and many don't want to learn.
Lymenet is a community of Lyme sufferers and care-takers who volunteerly share our experiences with treatments, symptoms, doctors, all things Lyme. Feel free to post any questions or utilize the 'search' function for answers. We are open 24 hours a day, we never close.
You can request a LLMD through Global Lyme Alliance here;
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