LymeNet Flash: Help - Need Lyme Specialist for 2nd Opinion

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Help - Need Lyme Specialist for 2nd Opinion - SE PA, DE or NJ

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Topic: Help - Need Lyme Specialist for 2nd Opinion - SE PA, DE or NJ

Steve_Medvid
Junior Member
Member # 51933

posted

My son has seen a infectious disease specialist at Crozier (Upland, PA). He has stated nothing can be done and took him off meds. My son has severe headaches and lost his appetite and is losing weight. I am very worried. Can someone please help recommended a "Lyme" Specialist that may offer a 2nd opinion and help us? Thanks in Advance! Steve

Posts: 1 | From Media, PA | Registered: Jul 2019 | IP: Logged |

Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

posted

Welcome to Lymenet Steve

You need to have your son evaluated by a Lyme Litterate Medical Doctor (LLMD). These specialists treat according to ILADS (International Lyme and Associated Diseases Society)

Infectious Doc's treat according to the IDSA (Infectious Disease Society) that promotes the "Lyme is hard to get and easy to cure" falsehood. Here's more;

https://www.clinicaladvisor.com/home/features/controversy-continues-to-fuel-the-lyme-war/

You need to research all you can about vector borne diseases.
You have to become your son's healthcare advocate. Start getting your finances in order as Lyme is expensive to treat. Most LLMD'S don't participate with insurances. Here's why;

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/25539?

You can also connect with your area's Lyme support group. Members offer valuable information on your area's LLMD'S and provide much needed support while you navigate this horrible disease. Here's your group;

https://rawlsmd.com/lyme-support/united-states/pennsylvania/lyme-disease-association-of-southeastern-pennsylvania

You can request a LLMD through ILADS here;

https://www.ilads.org/patient-care/provider-search/

I will send you a private message.
To view your pm, click on 'my profile' located in the middle of the page under the 'Post New Topic'.

Healing wishes to your son and family.

Posts: 2977 | From Florida | Registered: Nov 2016 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

How old is your son? We need this info so as to be able to send you the names of Lyme-literate doctors (LLMDs) who can treat him, because some LLMDs only treat adults, others only children, while still others see both.

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

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