posted
11 year old son needs a lyme Doctor. Neurological symptoms no help from network doctors
Posts: 1 | From Iowa | Registered: Sep 2019
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Welcome to lymenet Mother
Your son needs to be evaluated by a Lyme Litterate Medical Doctor (LLMD). This is a medical doctor that specializes in Tick and Vector Borne Diseases.
You can request a LLMD through ILADS (International Lyme and Associated Disease Society) here;
Most LLMD'S don't participate with insurances. Lyme disease is expensive to treat, with the 1st visit being the most expensive. This is why they don't take insurances;
You must become your son's healthcare advocate. Learn all you can about Tick Borne Diseases. You can post any questions you have and lymenet members will respond. Utilize lymenet's 'search' function for treatments and experiences. We are all in this together.
Also, research all LLMD'S before committing. Google for patient reviews or ask support groups in your area. You might have to travel to see a LLMD because there are so few in Iowa unfortunately.
Healing wishes to your son. Keep us posted on his progress. We will help you.
I will send a private message. To view your pm, click on 'my profile' located in the middle of page under 'Post New Topic'.
Posts: 2970 | From Florida | Registered: Nov 2016
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Your son needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. View "Under Our Skin" and "Under Our Skin2: Emergence". Check your local library or buy them used on online.
Posts: 8978 | From Illinois | Registered: May 2006
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
There are great Lyme support groups in the state of Iowa. I highly recommend you do a web search and find their sites and connect with the folks in Iowa that have worked hard to get laws passed.
These fine folks will be able to tell you each LLMD in your state including those that are treating the children of Iowa.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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