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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking LLMD in southeast PA (nursing mom)

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Author Topic: Seeking LLMD in southeast PA (nursing mom)
FaithMama*5
Junior Member
Member # 51695

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Nursing mom seeking a LLMD for testing to rule out possible lyme infection contracted from husband.

Im new to this but my husband has been infected several times and is under current treatment from a LLMD in NY. We'd like to find a doctor to get me tested properly in PA.

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Teresa Carfagno

Posts: 1 | From Pennsylvania | Registered: Oct 2018  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

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Welcome to Lymenet

I will send you pm.

Healing wishes for your family.

Posts: 2977 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
NJHelena
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I am in central Jersey, which is close to south eastern Pennsylvania, did you find a good Lyme literate doctor and if so, would you share the contact information with me?

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HRC

Posts: 2 | From NJ | Registered: Sep 2019  |  IP: Logged | Report this post to a Moderator
marie
LymeNet Contributor
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Any info on a local LLMD would be appreciated. I am also in NJ.
Posts: 509 | From southern new jersey | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
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FaithMama*5 - Welcome to Lymenet! PM sent for PA.

I know you are looking to rule out Lyme, but there is a possibility you might have it along with your baby.

Here are some links for you to read:

https://sites.google.com/view/marylandlyme/sexual-transmission

"Gestational Lyme" - read pg. 33 "Does infection in the father matter?"
https://drive.google.com/file/d/0BySm7nJtGqM7T1ZMUXVGaVBENjg/view

https://sites.google.com/site/drjoneskids/pregnancy-and-lyme

*NOTE: Click on the line icon located on the upper-left hand side of the page, then scroll down to "Pregnancy, Lyme & TBD". There is quite a lot of information there.

Because your husband is currently being treated by a Lyme-literate doctor (LLMD), you know that you need to be evaluated by one. If you have been diagnosed to have Lyme, you should be treated by the LLMD as well. Non LLMDs have no clue about this disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/PennsylvaniaLyme/info

Maybe they can help. They would know better about PA.

Some more resources for you (including Support Groups info):
www.lymepa.org [*Note: they are very knowledgeable]

http://whatislyme.com/lyme-in-pennsylvania/

http://www.lymenet.org/SupportGroups/UnitedStates/Pennsylvania/

Btw - I know you are new to Lymenet, but you should not use your real name, because this is a public forum with all sorts of people on it. Read this link about it:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=011844;p=0

To remove your name from the signature line, click on "Edit Profile" under Lymenet Flash in the top middle section of the Lymenet page.

Click on "Edit Profile" on the left-hand side, scroll down to "Profile Fields" then down to "Signature". Make your changes, then click "Update Profile".

Posts: 8981 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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NJHelena & marie - you should write a separate post in "Seeking a Doctor" instead of adding onto an existing one, because most people don't re-read old posts.

PM sent to both of you with a name for PA.

Posts: 8981 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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