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» LymeNet Flash » Questions and Discussion » General Support » My Letter to State Officials:

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Author Topic: My Letter to State Officials:
Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546

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Dear Government Officials:

I recently visited Washington DC for a rally in May, 2011 concerning a very serious issue. I'm writing to you as a concerned My State resident who's been in the trenches in the war against Lyme disease and appealing to you to please hear our voices. Since first contracting the illness in May of 2010, I've been in contact with many other MyState residents who are afflicted with the disease. Hundreds of individuals in the state are sick, including children, not to mention those who are misdiagnosed or dismissed as ``mental patients''. This is not only a state-wide issue, but a national epidemic as well, with as many as 300,000 individuals affected last year. The serology testing for the disease is inaccurate and under great debate since diagnosis cannot be based on testing alone, as the CDC states it is a ``clinical diagnosis''.

Here are my concerns. The state of MyState is not addressing the issue of Lyme Disease as a serious problem. According to the MySTate Dept. of Health website, they have documented 23 cases of Lyme since 2004, which seems grossly under-reported. In addition, they did NOT report all the Lyme cases to the Center for Disease Control. The statistics on the CDC website show MyState reported only 1 case since 2004. Strangely enough, the MySTate State Health Department website reports OTHER tick borne diseases like Ehrlichiosis and Rocky Mountain Spotted Fever in increasing and alarming numbers since 2004.

I'd like to share with you a comment left on Part 2 of my article **************

``...Lyme is very alive in MyState so don't let them tell you differently. When my dad called the state health dept to report my case they told him they would rather not because MySTate is the **** state and it's economy [is] based on people coming to hike, float the rivers, and other outdoor activities, so they don't like to report such things. Yeah.....I was shocked as well. So much so that I called the head of the dept myself who oddly was a vet [Veterinarian] (human state health dept and head a vet???) Anyway, he repeated the same words to me. Yes, I am on the list just so you know. There's nothing right about hiding and misleading people. We are in a very sad situation in MyState, as it's one of just five hot spots in the nation for Lyme but diagnosed as some type of autoimmune disease. Scary....''

This is just one example of reports from MyState residents. Our numbers are great, but the illness is not being acknowledged. According to one source, (a woman from Somewhere, MyState with chronic Lyme), U of My State Medical Center actually refused to treat her. I hear many stories such as this, not only in MySTate, but other states as well. I'm imploring you as a government official to please recognize our plight and help us create a MyState task force to investigate the seriousness of this disease and give it the recognition it deserves to warn our residents that Lyme Disease is alive and well in MyState, despite being ignored, unreported, misdiagnosed, and concealed.

I'd like to remind you that this is a very serious disease that disables individuals if left untreated or misdiagnosed. Please research the subject with an objective outlook. We need your help and recognition.

Very Sincerely,
ARkie's Hinny

--------------------
Early Disseminated LD- 2010.
Currently doing acupuncture and yoga.
Negative Igenex (IND & Pos Bands)
ISSUES AFTER: Tendonitis, letter reversal, Low immune system.
PREVENTION:SaltC,Iodine,Humaworm,
Chiropractic.

Posts: 1013 | From In a van down by the river. | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
payne
Frequent Contributor (1K+ posts)
Member # 26248

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Please research the subject with an objective outlook. We need your help and recognition...
Lord, this would be a biggy for us all.
Many prayers answered with one WILL.

--------------------
TULAREMIA/rabbit fever ?

Posts: 1931 | From mid-michigan | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
momlyme
Frequent Contributor (1K+ posts)
Member # 27775

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Great letter Arkiehinny!

--------------------
May health be with you!

Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began.

Posts: 2007 | From NY/VT Border | Registered: Aug 2010  |  IP: Logged | Report this post to a Moderator
Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546

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Maybe I should invite them for coffee in my van down by the river. We could eat some catfish, too!

--------------------
Early Disseminated LD- 2010.
Currently doing acupuncture and yoga.
Negative Igenex (IND & Pos Bands)
ISSUES AFTER: Tendonitis, letter reversal, Low immune system.
PREVENTION:SaltC,Iodine,Humaworm,
Chiropractic.

Posts: 1013 | From In a van down by the river. | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546

Icon 1 posted      Profile for Tricky Tickey     Send New Private Message       Edit/Delete Post   Reply With Quote 
The head of this DHS office just called me. Hehehe. Same song & dance....governor's office notified him.
Mission accomplished.

--------------------
Early Disseminated LD- 2010.
Currently doing acupuncture and yoga.
Negative Igenex (IND & Pos Bands)
ISSUES AFTER: Tendonitis, letter reversal, Low immune system.
PREVENTION:SaltC,Iodine,Humaworm,
Chiropractic.

Posts: 1013 | From In a van down by the river. | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
momlyme
Frequent Contributor (1K+ posts)
Member # 27775

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Fantastic!

--------------------
May health be with you!

Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began.

Posts: 2007 | From NY/VT Border | Registered: Aug 2010  |  IP: Logged | Report this post to a Moderator
   

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