Topic: saw a new neurologist today-pleasantly surprised
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i saw neuro at noon. after i woke up i spent 2 hrs writing up what was most impt. he already had 2 old neuro reports and 4 neuropsychs t took me 2 hrs to summarize 12 of my worst neuro sx
when i got to his office i was prepared for the kind of neuro i have almost always seen. the last one i saw was also pretty good...by that i mean reasonably human. he was very professional...and tried to help me but his best medical reports were never in the right form to satisfy workers comp...so my cases have been stalled for 5 yrs
but he was human enough that he showed me his frustration of knowing how impaireed i was and knowing the chance of improvement was not good-and not being able to get that across to the lawyers
anyway-i was ready for quick-abrupt-walk a staight line-stick your tongue out etc and that is not what i got
this guy actually asked to see pics of my kids.
he was 35 and the first thing i did was ask how old he was. he told me to guess and i guessed 36 and he was shocked i got so close so i told him he reminded of my kids who were near his age and that got us wasteing time talking but i think he was getting info the whole time
but when he tried to explain to me about 2 tierded lyme testing...and how you could not get a false negative with a pcr i just couldnt keep quiet.
i was respectful...i really liked him...but there were things i just couldnt let go
he wants a new brain mri with and without contrast...and i have been turning down the contrast things they want to give me cuz i think i am getting too much radiation and too much chemicles
but he was pretty insistant-he says with the contrast he can see infection...and twice i asked well if you see infection what will you do and he said a lumbar puncture and i reminded him i already said i wouldnt do that
im still not sure why i agreed to the mri...by this time my brain was really fried...i dont think they can see infection...
but he is very clear that i am impaired-but not so much that i cant be independent.
he also wants another neuro-psyc.
all i want from him really is a report that says im messed up enough to need household and advocate help. i dont want more cognitive therapy that doesnt transfer to daily living.
i guess hes taking the lyme seriously tho and wants to rule it out or if it is there maybe tx it...but how???
i did give him ilads site and one top llmd who im pretty sure will talk with him. we'd be having these disagreements...but both really respecting the other. he never put me down or didnt listen...he came back with exactly what the cdc says...
and when i talked about alternative and eastern medicine and herbs he really listened-he was 1/2 japanese.
i told him-im not a doc or a scientist but talk to these ppl(ilads and llmd) and let them explain it all to you in doctor talk.
he did say a few things that were new to me...i cant believe it-i was even explainging to him how long term abx are not one month...they can be years. again he didnt put me down-and at the end he said he believed in integrative med and that western med wasnt the best for all situations.
he wouldnt have known a lot of what he said if he didnt read the lyme guidelines and some studies so i give him credit for that
well-we'll see what happens. anyone else ever have a human neuro who is not lyme literate?
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Wow, a neurologist who is not arrogant. Will wonders never cease!
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Two Tier testing, the CDC mandate, March 5, 2012
See this thread below about the CDC, just days ago issue a strong warning to doctors about sticking to the ELISA first and, only if that is positive, do Western Blot -
- and how they instruct them from there is literally criminal in their deliberate omission of more recent works than those cited.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
yeah -i agree with carol too.
and keeb...i know!!!
that is why i was so impressed with him. he wasnt a robot.
he hasnt had time to really study lyme...but when we talked i saw lightbulbs go off in his head...
i respect west med docs when they choose not to fight the system...i know too many personally who have young children to support and huge med school loans. but it makes a difference when they quietly agree there is a problem and dont try to smack you down. to me-when they do that-they show their own ignorence
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Yea!!!
I saw an Asian md after returning from Germany for detox. He used natural remedies as well as pharmaceuticals.
He knew about a wide range of things: parasites, chemical toxicity, heavy metals etc.
I think the Asian doctors, if you can find one, are much more open-minded about this stuff.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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