lpkayak
Honored Contributor (10K+ posts)
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posted
Google wont help me...what is this
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Remember that whatever term it may be called, muscle spasm are a large part of what's happening. If you find a video that shows how the heart works, that visualization is helpful - for a start. Google searches can zero in with more word descriptives. Even a search for: "flip flop" & heart - brought up some information sites.
Think of it more as muscle spasms but do talk to your LLMD
You will find a lot of good detail with a search for: Stephen Sinatra, MD
and find his excellent web site, articles and book about the heart, how to interpret when it's a bit off and what we can do about it - with some good basics.
From reading his work and from some web sites where I've gathered information, here's what comes to mind:
Magnesium is the ultimate heart support (in balance with other key minerals, of course).
Up to 2,000 mg a day - in 3-4 divided doses is what my heart needed to finally settle down these kinds of muscle spasms / nerve irritations.
Of course no one can tell you what exactly is happening. Too many variables. Best to discuss with your doctor, and best to start with LLMD as this is a common lyme symptom, too, even during treatment.
If your LLMD thinks you need to see a specialist, they will know of those in your area who might be best. -
[ 08-19-2013, 04:08 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
- Details for upper dose ranges, types, why it must be in divided doses and never all at once for the day, -- and how to balance with other minerals:
EXERCISE INTOLERANCE is (partially) explained in the article: "when exercise doesn't work out" (and what we can do about that)
ADRENAL, CARDIAC, MITOCHONDRIA & MYELIN SUPPORT - that all helps movement better work for us. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Did some kind of excitatory something get into your food (or supplements) when you weren't looking?
posted
It doesn't have to be AFib. It could be a less serious form of irregular heartbeat. My husband had the least serious kind, in which the heart sometimes missed a beat, then sped up.
His description was exactly the same as yours: "It feels like a fish flopping around in my chest."
I would definitely get it checked out by a cardiologist, even if you had a stress test recently. Your body's going through so much right now. Things can change quickly. They can put a Holter Monitor on you, get a 24-hr EKG, and find out what's going on.
Posts: 431 | From New England | Registered: Dec 2011
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posted
BTW, you take the Holter Monitor home and wear it there. This is not hospital monitoring.
Posts: 431 | From New England | Registered: Dec 2011
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posted
I hope you are ok? Definitely, if it lasts more than a few minutes, you should have it checked immediately. It could be a side-effect of some drugs you are on.
At a minimum, call your doc?
Posts: 867 | From PA | Registered: Jan 2006
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posted
why aren't you in the ER? This troubles me as much as your symptoms.
My brother went into the hospital yesterday from numbness in his arms and leg......they found a blood clot in his brain. Don't know what prognosis is, but I'm devastated.
Please, please don't just sit there until you find out cause?
Posts: 867 | From PA | Registered: Jan 2006
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droid1226
Frequent Contributor (1K+ posts)
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posted
In answer to your question on how they tested my brother, I believe he had an x-ray first, then an MRI. I was told that's how they found the clot.
They gave Tom an injection of a special blood thinner to dissolve it. Said surgery wasn't necessary as it was still intact and had not caused too much damage to the tissue surrounding it.
I'm not sure of next steps.....but I heard they want him to do a stress test in a few weeks. I know there is a valid reason but to me, I can't see stressing a body out to see if they can force it to happen again is logical, but what do I know?
Posts: 867 | From PA | Registered: Jan 2006
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Keebler
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posted
- Quote: "i think the stress test will show other clots or potential clots or places where a clot cant fit thru." (end quote)
That is not what a stress test does. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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lpkayak
Honored Contributor (10K+ posts)
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posted
Ok. I was told stress test finds blockages
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- It is just different than how we might think about that. Clots, and even "thick" blood are not exactly constants. So, while it's good that your stress tests were fine, that does not mean that something won't change. Clots can develop any time.
[Allicin, anti-oxidants in diet are helpful to blood viscosity, though. And magnesium can help keep it all running smoothly, from "cramping" up, so to speak.]
And I don't think I'd want to find out about a blockage during a stress test. If a blockage, a stress test can be dangerous, actually.
Symptoms really do matter. A stress test cannot show or know all, and can't predict the future.
I'm glad the symptoms seemed to have settled down still, be sure to let your doctor know of the numbness, etc. Symptoms can have various messages but we can't always assume what those messages are. Fortunately, magnesium really can help, though, in so many ways . . . along with good communication with one's doctors.
If pain from the neck, with a nerve impingement, someone trained in UPLEDGER cranial-sacral therapy would be good. Just never let anyone suddenly twist the neck or spine, ever. That is very dangerous with lyme. Upledger does not do that, though. It's good yet gentle approach. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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lpkayak
Honored Contributor (10K+ posts)
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An Echocardiogram Stress Test (Stress Echo) is a test that combines an ultrasound study of the heart with a stress test. A stress echo looks at how the heart functions when it is made to work harder. The stress echo is identical to the stress exercise test, except, an echocardiogram is performed before and after you exercise.
The stress echo is especially useful in diagnosing coronary heart disease and the presence of ***blockages*** in the coronary arteries (the vessels that supply oxygen-rich blood to the heart muscle).
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Keebler
Honored Contributor (25K+ posts)
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posted
- Indeed, the echo is much better than just the traditional stress test that I thought was what you had. Imaging is always nice to see.
And, yes, it can help to diagnose blockages - but it is not the end-all, be-all tests, even in combination. There are other factors, especially for someone who could have "thick" or "sticky" blood that frequently occurs with lyme.
Allicin is just one measure that can help with that aspect, in prevention. There are others. I just mentioned it as something that most with lyme need to be proactive about. Not everyone can "do" allicin / garlic but most good LLMDs have a variety of ways to address that concern. Prickly Ash Bark is another.
Any test is one point in time . . . things change. And it can't look at all the complex factors.
An echo both standing and lying down is also much better than just lying down. In the Cardiac thread, there is an article explaining why but that most are not done that way and the standing up part can catch lots that the lying down part does not.
Bottom line: no matter what tests you had a while back - at one point in time - if you have certain key symptoms . . . Hopefully, those symptoms will have other logical causes / triggers as you work through all that but it's still best to communicate with a doctor anytime there are key symptoms that could point to the heart.
The symptoms you described sounded like something that a doctor should be discussing with you.
A pinched nerve can cause arm numbness that that's not going to cause a heart to do the fish flip-flop. Magnesium deficiency can certainly be involved both regarding soothing those possible spasms as the fish-flop trigger and to help with nerve pain.
Still, these are symptoms that need to be discussed with a doctor. Best to start with your LLMD since lyme affects so much about the heart . . . and they should know the best specialists if it's determined you need to see one.
Or - the LLMD may be able to explain the symptoms and have some great advice for what will help. All the tests in the world are sometime not the answer. A very smart and experienced doctor, with excellent diagnostic skills can go a very long way. I would rather know what they think rather than one just one test might see at that point. (Usually). -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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posted
- As it's been several days now, I do hope you are feeling better. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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lpkayak
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posted
Back doctor said its not pinch nerve in the neck primary said don't go to ER it's not heart I have an appointment with the shoulder doc on Monday that said its been the same except last night in the middle of the night it got worse and I did get ready to go to the ER but after showering it wasn't so bad again so I didn't go and I'm still alive and it's just the same ol same ol I haven't really had an LLMD in awhile and I try not to go to ER because every time I go its nothing
reading about health things brother makes me really concerned about stroke but honestly what can you do we live like this
oh yeah primary also wants me to go to a neurologist it will be months before I can get into one I'm actually looking for one for my head injury issues but try to find the right one this time
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Just got back from my trip and read this. Glad the eye appt went well but these continuing cardiac symptoms are very concerning. I get why you don't want to go to the ER, but how about an urgent appt with a cardiologist?
A stress test 2 months ago does not address the irregularity. A 24-hr Holter monitor would reveal what's going on. They could also give you that simple blood test they have to see whether you're having a cardiac event of some kind.
Take care of yourself, Kayak!
Posts: 431 | From New England | Registered: Dec 2011
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
Atrial flutter will give you that sensation.
I had it with Babesia. It catches your attention. The above poster is correct that a 24 hr halter monitor would catch it.
That's if it happens while you have it on. Kind of like going to the dentist with a toothache and when you get there it stops.
Hope you're feeling better.
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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lpkayak
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posted
The heart thing only happened once a week ago
It has happened a few times in the last ten yrs or so but all cardio tests are fine
Today ortho sent me to neurol
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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